SFA Spotlight

May 2014

In This Issue

Now Recruiting for an Observational Study...

2014 Childhood Cancer Action Days

SFA Gift Shop

Alternative Ways to Support SFA

Alliance for Childhood Cancer Faces of Childhood Cancer Project

12th Annual Fundraising Gala

SFA Advocacy & Volunteering

Thank you, Dr. Richard Riedel!

John Green - World Cup Fundraiser

Thank You, Amanda Elbassiouny, Run with the Butterflies!

Maire's Journey

Share Your Story - Wednesday Warrior

Around the Country

Now Recruiting for an Observational Study
The Sarcoma Foundation of America is now recruiting adult patients for an observational study. Click for more details

2014 Childhood Cancer Action Days
The Alliance for Childhood Cancer, of which the Sarcoma Foundation of America is a member, is hosting the 2014 Childhood Cancer Action Days in June. Click for more information

SFA Gift Shop
Be sure to check out the SFA Gift Shop. These items in our shop not only help increase sarcoma awareness, but a portion of your purchase benefits the Sarcoma Foundation of America. Visit the SFA Gift Shop

Alternative Ways to Support SFA
Shop through our Amazon Associates link and SFA will receive up to 10% per purchase! Click to learn other ways you can help

Alliance for Childhood Cancer Faces of Childhood Cancer Project

If a child in your life has been touched by childhood sarcoma, please consider taking part in the Alliance for Childhood Cancer's "Faces of Childhood Cancer" project. We want legislators to recognize that childhood cancer goes beyond statistics by showing them the faces of our children. The "Faces of Childhood Cancer" Project was created in order to share their stories with legislators during advocacy meetings to be held in June.

Click here for more information

12th Annual Fundraising Gala
The annual fundraising gala was very inspiring evening. A huge thank you to our supporters and sponsors who made this event possible. Special thanks to Evan Ruggiero and Jason Mraz for their amazing performances. Click to view photos

SFA Advocacy and Volunteering: How you can help make an impact on sarcoma!
Limited registration slots available. Register today for this complimentary webinar!

Thank you, Dr. Richard Riedel!

The Sarcoma Foundation of America would like to thank Dr. Richard Riedel for delivering an informative presentation on the "Current and Future Treatment Options for Advanced Soft Tissue Sarcoma." Dr. Riedel kicked off the first of the SFA Empowering Patient's webinar series. SFA is always looking for innovative methods to disseminate relevant information to patients, family members, and medical professionals that know first-hand the challenges of sarcoma.

If you missed this webinar, you can listen to the recorded copy here.

Visit the SFA website at www.curesarcoma.org to view upcoming SFA webinar topics.

John Green - World Cup Fundraiser

John Green, the author of the The Fault in Our Stars, is holding an incredible World Cup fundraiser through the Foundation to Decrease Worldsuck that benefits the Sarcoma Foundation of America.

The Fault in Our Stars is a book about two teenage cancer patients, one of whom has osteosarcoma. A movie based on the book is being released on June 6. Watch the official movie trailer here.

Check out John's video about the fundraiser, then vote for which team you want John and his brother Hank to support in the FIFA World Cup by donating at least $1.

For every dollar donated, John will match it with $3!

Thank You, Amanda Elbassiouny,
Run with the Butterflies!

The Sarcoma Foundation of America would like to extend a special thank you to 14-year-old Amanda Elbassiouny for planning, organizing, and delivering a wonderful inaugural "Run with the Butterflies 5K" event.

The run was held on May 4, 2014, in loving memory of her dear friend, Allison Valverde, who received her angel wings in April of 2012. The event raised over $6,000, which will directly benefit sarcoma cancer research. Amanda has set a great example for each of us who share the goal of finding the cure for this disease.

Thanks so much for your hard work and dedication to finding the cure in our time!

For additional photos from the event, check out the photo slideshow here.

Maire's Journey

I would like to introduce Keith Famie to the SFA Family. Keith is an award-winning documentary director whose next project is about a sarcoma patient. As his website explains, "Maire's Journey" is a "90-minute, emotionally touching documentary story that follows the final months of a 24-year old cancer patient, Maire Kent (pronounced "Mary"), and the fulfillment of her last wish for her ashes to travel to the ocean in a custom built sailboat hand-crafted by a blind carpenter."

Keith has asked that we share the following letter with everyone as he is keen to help the SFA fight sarcoma through disease awareness and fundraising for research.

Bert Thomas, CEO, Sarcoma Foundation of America

Click to read the letter

Share Your Story - Wednesday Warrior

Each Wednesday, SFA selects the story of a sarcoma warrior to feature on our online platforms.

Stories can be about your own experience with cancer, or that of a friend, family member, or loved one.

Sharing your story can be such an inspiration to others who are dealing with sarcoma in their own life and remind us all of the urgency to find better treatments in order to make an impact on the devastation that sarcoma cancer brings. Let your experiences help others become involved with raising awareness.

Click to Share Your Story

Around the Country

Upcoming Events

CONNECTICUT

NEHDS Golf Classic

June 2, 2014 - Wallingford, CT

ILLINOIS

11th Annual Bud's Run

June 28, 2014 - Carol Stream, IL

NEW JERSEY

3rd Annual Car Show

July 26, 2014 - Sewell, NJ