Circle eNewsletter | 4 Dots Logo
By IMPROVECARENOW for Patients & Families living with Crohn's disease and ulcerative colitis
Special Issue | September 2013


#healthier2gether Chris J
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Greetings!
Your voice made a big difference!

In June we asked you to complete a survey telling us what matters when it comes to your health data. The results we collected have made an important difference. They were used to help write a grant application for funding to support continued development of the ImproveCareNow Enhanced Registry (called ICN2).

 

Our application received a very rare and prestigious review-score of 10. And we were recently notified it has been selected for funding, pending successful completion of the administrative review.

 

What does that mean?

This grant will enable us to: enhance the existing digital infrastructure, bringing Electronic Data Transfer (EDT) to ImproveCareNow centers; engage all stakeholders in our Learning Health System to help prioritize comparative effectiveness (CE) research questions; and enhance and increase the types of data collected to ensure the registry can support top research priorities.

 

Thank you! We couldn't have done this without your help! Will you please share your voice, and help again?

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There are only 2 days left! The healthier together campaign ends on September 15th. We are so close to reaching the goal of 1,000 shows of support for ImproveCareNow and collaborative healthcare networks. If you haven't had a chance to show your support yet here is an easy way to do it!

 

Send an email to [email protected] and type "I support ICN" in the subject line. That's it. Our campaign crew will add your name to the list of supporters.

 

How does this help?

ImproveCareNow is applying for another grant that, if awarded, will enable us to meaningfully engage more patients and families, to learn and work together to spread the benefits of ImproveCareNow, so every child with IBD can get better, faster!  


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CIRCLE is an official publication of IMPROVECARENOW  | July-August 2013