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Please Participate in our 2015 DRC User Survey!
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Your feedback is extremely important to us as we think about the future of the DRC. Please share your voice in our 2015 DRC User Survey -- this website is for you! Your input is greatly appreciated, and we look forward to your response! Thank you.
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| Come Visit us at the National Conference on Health Statistics | |
The Data Resource Center (DRC) will be exhibiting at the National Conference of Health Statistics in North Bethesda, MD, from August 24-26, 2015.
Come by Booth #111 to say hello and get new resources on NHIS data, Autism Spectrum Disorder data, and our local level estimation work!
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Need Technical Assistance or Help Analyzing Data?
Email
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Learn More About Other Data In Action Projects
Advancing National ACEs and Resilience Agenda
Since 2014, CAHMI has been engaged in a partnership with AcademyHealth (AH) on a national agenda-setting process around Adverse Childhood Experiences (ACEs) and positive health. As part of that collaboration, the CAHMI and AH are currently organizing input from different groups, including family leaders, health care providers, state, local, and federal program leaders, researchers, and community services leaders. The goal of this process is to build a national consensus on topics, research questions, and action priorities in the ACEs, trauma, and positive health field. For more information and resources, check out our ACEs page. Keep watching for more in-depth updates in upcoming newsletters!
A Focus on County and City Level Data
The DRC team has been working on ways to optimize the use of data from the National Survey of Children's Health to provide actionable data at the county and city level. Look here for a sneak peak at a Baltimore City report on Adverse Childhood Experiences, an example of similar reports we are exploring and creating as we formulate ways to share this data further.
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APHA Learning Institute on Scientific Writing for Health Professionals
There is a full-day workshop being given just before APHA given by Dr. Michael Kogan and Dr. Sam Posner, on how to do scientific writing. For more information, see the Learning Institute Course descriptions. Registration is open now through Sept. 17th.
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About Us
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The DRC is a project of the CAHMI and is supported by the
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We've Moved! Have You Been Trying to Reach Us or
Dr. Christina Bethell?
If you have been trying to reach Dr. Christina Bethell at her previous OHSU email address, you can reach her now at [email protected], or email the CAHMI at [email protected].
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 Access the DRC's New Data Query Options on NHIS-Child and Pathways! |
The CAHMI announces the release of 4 new data queries on the Data Resource Center this month -- 3 from the National Health Interview Survey (NHIS) and one from the Pathways survey!
National Health Interview Survey (2010-2014):
The NHIS, conducted by the CDC's National Center for Health Statistics, is a primary source of data on U.S. population health and health care, with many untapped potential uses, especially for children. The DRC has now made data from the NHIS-Child available from 2013, 2014 and the 2010-2013 years combined. The data query includes sections on health status, health care access and utilization, family resources, and health care costs. Please stay tuned to see state level data from the 2010-13 combined years coming in early October.
- 17.2% of children live in families with insufficient food.
- Approximately one third of children without health insurance cannot access needed health care due to cost.
- 16.8% of adolescents aged 12-17 years have problems for which they regularly take prescription medications.
- The rate for children living in families where someone had a problems paying medical bills ranges across states from 3.4% (DC) to 38.5% (WY).
You can learn more about NHIS-Child on our NHIS-Child data portal, including FAQs, fast facts, guide to survey topics and questions, and methodology information. In the near future, we also plan to provide an NHIS-Child data set and SAS and SPSS codebooks.
The Survey of Pathways to Diagnosis and Services (2011):
In addition to the DRC's current Pathways data query among children with autism spectrum disorder (ASD), developmental delay, and intellectual disability, we are pleased to introduce a new data query among children with ASD only. The new data query includes data about educational and developmental needs and experiences, families' unmet needs, safety concerns, and families' views about their child's health services. The Pathways dataset is also now available in SAS and SPSS formats upon request, as are SPSS and SAS codebooks.
Here are some data highlights from the Pathways survey:
- A little over half of school-aged CSHCN with ASD (52.9%) received a developmental screening.
- Nearly one third of school-aged CSHCN with ASD (32.2%) take two or more medications currently on a regular basis.
- Nearly one quarter of school-aged CSHCN with ASD's health insurance coverage does not meet their needs (23.7%).
- 1 out of 3 school-aged CSHCN with ASD (33.8%) wandered off or became lost in the past 12 months.
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| CAHMI Partners with Head Start/Early Head Start Centers and Family Groups to Disseminate Parent Engagement Tool | |
The Well Visit Planner (WVP), a tool created by the CAHMI, was designed to assist parents in navigating and getting more out of well-child check-ups during their child's first 6 years of life. Recently, the CAHMI partnered with both the American Academy of Pediatrics (AAP) and Family Voices to inform families, advocates, and professionals about the WVP and support its dissemination.
First, the CAHMI worked with AAP to deliver a series of three webinars throughout the first part of 2015 to Head Start/Early Head Start (HS/EHS) leaders. The first webinar served as an overall introduction to and demonstration of the WVP. The second focused on the supporting the process of implementing the WVP at HS/EHS Centers, including tools and timelines to make implementation a success. The final webinar provided a glance into the WVP experience from the perspectives of HS/EHS staff, parents, and providers, and provided tools for engagement and strategies for dealing with challenges.
CAHMI also partnered with Family Voices to create a series of family-friendly tools to support families and family advocates in their use of the WVP. These tools were bundled into a media toolkit aimed at family advocates, which will enable them to disseminate information about the WVP to the families they serve. The toolkit provides handouts, videos, social media tools, and more to promote WVP use among all families, particularly those that include children with special health care needs. Family Voices and CAHMI also presented a webinar that introduced these tools and provided an overview of the WVP.
Check out these and other tools (including FAQs for families), and then let us know how you or others you know are using the WVP, and what other resources might be helpful in the future, by e-mailing [email protected].
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NEW! Data in Action Feature:
Childhood Disrupted: A new book on ACEs and resilience
Childhood Disrupted, a long-awaited book that discusses the impact of childhood trauma on long-term physical and emotional health, was released on July 7th, and includes data from the 2011/12 NSCH. The book was authored by science journalist Donna Jackson Nakazawa, who spent two years writing, researching and interviewing a number of impacted individuals for the book in order to accurately represent their experiences with Adverse Childhood Experiences (ACEs) and reflect the pathways they have since
 taken in order to heal. Nakazawa hopes that through the book's publication people will begin to understand the interconnectivity of ACEs with long-term health and that this will spark a change in the way that treatment is administered and healing is understood in the medical field, and provide hope and understanding for those affected by ACEs. From the publisher: "Your biography becomes your biology. The emotional trauma we suffer as children not only shapes our emotional lives as adults, it also affects our physical health, longevity, and overall wellbeing. [ACEs] can leave permanent, physical "fingerprints" on our brains. [...] Groundbreaking in its research, inspiring in its clarity, Childhood Disrupted explains how you can reset your biology-and help your loved ones find ways to heal." Click here to read an excerpt from Childhood Disrupted and here for a Q&A with author, Donna Jackson Nakazawa. Check out our website for more information and resources about ACEs, as well as how the DRC is actively addressing this topic. |
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A Look Ahead:
Attention Maternal and Child Health Services Title V Block Grant Leaders!
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We are working to provide access to national and state level data for the Title V Maternal and Child Health Services Block Grant Performance and Outcome measures that are available from the 2011/12 National Survey of Children's Health (NSCH) and 2009/10 National Survey of Children with Special Health Car Needs (NS-CSHCN). Contact us to receive notification about data availability!
APHA Annual Meeting & Exposition
CAHMI will be exhibiting and presenting at the APHA Annual Meeting in Chicago from Oct. 31st-Nov. 4th. Stay tuned for more information in our Autumn 2015 newsletter!
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Explore What the DRC Website Has to Offer
The Data Resource Center (DRC) website provides easy to use,
interactive point and click access to data findings from MCH surveys. We offer a range of resources to help you put data into action.
Go to the DRC website to quickly access data findings from your state, learn about the data, get ideas for using data to monitor needs, assess system performance, inform and drive innovations, and get technical assistance at www.childhealthdata.org. Fast-track to some of our most popular resources:
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Get ready for our newly redesigned DRC website, coming later in 2015!
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