What has the SSSA done lately?



Why not join the SSSA again?

You have expressed an interest in the Sotos Syndrome Support Association (SSSA) in the past.  You have been a member, or attended a conference or purchased a book from us.  Why not join the SSSA again and help us support families and educate professionals about Sotos syndrome?
What you will receive

  • Our monthly electronic newsletter, SSSA NOTES, containing organization news,stories from members, valuable tips and advice and announcements of upcoming conferences.
  • Access to galleries of photos from past conferences.
  • The opportunity to ask questions of our Advisory Board consisting of geneticists, speech therapists and neurologists familiar with Sotos syndrome.
  • The satisfaction of supporting our organization and helping to inform, educate and spread public awareness about Sotos syndrome around the world.
What we accomplished in 2015

  • Last year's conference in Orlando was the largest ever, serving over 300 members.
  • Our veteran member who answers our toll-free-phone line (888) 246-7772 handled almost 100 phone calls offering support and education.
  • SSSA NOTES, our monthly, electronic newsletter was sent out to over 500 families worldwide.
  • Our website www.sotossyndrome.org was seen by over 60,000 visitors.
What is yet to come



Registration is now open for our 2016 Annual Conference in Portland, Oregon!!  July 8 - 10. Join families and professionals from all over the world to learn, network and bond.  We combine a program of speakers with social events for the entire family. 
What you need to know


If you have paid your dues in the past 12 months you are considered an active member and should have received an email from us to set up your own unique userid and password for our web site.  If you have not received one, check your spam folder for a communication from WordPress and the Sotos Syndrome Support Association.  Thank you for keeping current with your dues and supporting your organization.
 Sotos Syndrome Support Association | 888-246-SSSA | www.sotossyndrome.org
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Sotos Syndrome Support Association | P.O. Box 4626 | Wheaton | IL | 60189