Sotos Syndrome Support Association

SSSA NOTES

June 2013

SSSA Annual Conference Edition

 

In This Issue
SSSA 2013 Conference
Conference Support
SSSA Notice of General Meeting
What to do in Minneapolis......
Conference teasers
Silent Auction Items WANTED

 

 

2013 
SSSA Conference
Bloomington, MN
July 12-14
 

It's not too late!

  

 Make your travel plans 
to atend the conference in 
Bloomington, Minnesota 
July 12-14, 2013 

 

  

Click here for Hilton 

Minneapolis/St. Paul Airport

-Mall of America 

Hotel information.

 

  bloom min

Australia 
to the States:
destination
SSSA

by Melissa 
Patterson

 

  

"We travelled from Australia to the states to attend the conference in Williamsburg, Virginia. We had an amazing time. The conference was full of information and offered more than we had expected. Being in the same place as so many other families experiencing the joys and difficulties of raising a child with Sotos Syndrome was priceless. We met wonderful people who we have remained in touch with and also learnt a lot about the potential of our boy Jack. Without the Sotos Syndrome Association we would have been a total mess!!! For any of those tossing up whether to attend a conference, don't think again, do it, you will have the best weekend with your Sotos family and learn more about your child and yourself than you expected."


*This is an excerpt from a story that was printed in the February 2013 newsletter. Click here to read Melissa's story. 
  patterson family 

 


NOTICE:
SSSA
General 
Meeting
  

 

Take Notice that the Annual General Meeting of the Members of Sotos Syndrome Support Association will be held at the Hilton Minneapolis/St. Paul Airport 

3800 American Blvd E 

Bloomington, Minnesota, 55425 

Sunday, July 14, 2013 at 9:00 a.m. local time for the following purposes:

 

1.To receive the financial report of the      treasurer

2.To receive the membership report

3. To elect directors; and

4. To transact such business as may be    properly come before the meeting or any  adjournment thereof.

 

 

If you are unable to attend the meeting, you may appoint another person to cast your vote by completing, signing and returning the attached form of Proxy. You may appoint any person by inserting that person's name where indicated or you may appoint the President, Monica Boers, by checking the box next to her name.

 

  


 
Things to do in Minneapolis, Minnesotta
 
  mall 33
Mall of America
min3
 Minnesota Streetcar Museum
min1
Weisman Art Museum
min5
Walker Art Center

  

 

 

SSSA Conference
Sneak peek

 

 
SSSA Conference 
Friday Night Entertainment:
 
The Teddy Bear Band
Teddy Bear Band is a REAL band, playing REAL instruments, in REAL time. In this age of computers and pre-programmed entertainment, the Teddy Bear Band believes it is important to give kids a musical experience they can see and feel for themselves, as it happens!

Here are some youtube links......

 

Teens
Field trip Details
The teens are going to
 Nickelodeon Universe, 
an indoor theme park inside the 
Mall of America! 
The hotel shuttle will take them to the
 MOA for the day on Saturday, eating lunch at the mall as well.

 

Rides include:

SpongeBob SquarePants

 Rock Bottom Plunge

pineapple  

 Gerstlauer Euro-Fighter 

style coaster themed after 

the Nickelodeon show 

SpongeBob SquarePants

 

the Splat-O-Sphere: 

a tower drop-ride 

in the center of the park

 

Avatar AirbenderairbenderBrain Surge

 and MORE. 

 


See you at the conference!
  

 

 

Silent Auction
&
Carol Richey Fund

  

 

The Friday night Silent Auction

proceeds go to the Carol Richey Fund

which assists families attending

the SSSA conference for the first time.

 

Please be generous in your donations

to the auction so we can continue

to provide scholarships to families

to experience this supportive environment.

Thank you.

  

5 Girlfriends

 


Minneapolis
Friday
GOLF

  
 
Dwan Golf Club
Golf Course

"Dwan's undulating greens and narrow, tree-lined fairways make for an exciting course time and again. Measuring 5,485 yards, Dwan is a fun, challenging layout where all levels of players are welcome. It's no wonder this is one of the most popular courses in Minnesota."

 

Those interested,  

meet in the lobby of the hotel

Friday morning

 July 12, 2013 

8:30a.m.

 

 

winding path golf course

vancouver 5

William Hefner with Mrs. Bradley Schaefer
2012 SSSA Conference 
Saturday night entertainment
Vancouver
  
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 Disclaimer:  The SSSA does not endorse any of the medication, diagnostic procedures, treatments or products reported in this email newsletter.  The information is intended only to keep you informed.  We strongly advise that you check any medication, procedure or treatment with your physician.

 

 

Donate to the SSSA every time you search the Internet or shop online at select sites!!!

 

Search the web with Yahoo-powered GoodSearch.com and they'll donate a penny to the Sotos Syndrome Support Association when you designate the SSSA as your cause!