Sotos Syndrome Support Association

SSSA NOTES

September 2012

Back to School Edition

 

In This Issue
SSSA 2013 Conference City
Comic relief complements of Peter Costello
Back to School Articles
SSSA 2012 Conference Highlights
kelsey
Kelsey Weick 
on her first day of school
2012-2013
  

 

July 12-14, 2013 
SSSA Annual Conference
Minneapolis, MN
 

 

The contract has been signed with the hotel for the 2013 SSSA Annual Conference. The conference will be held at the Hilton Hotel in Minneapolis, MN., July 12-14, 2013.

 

Click here for more details.

 

photo courtesy of

HILTON MINNEAPOLIS/ST. PAUL 

AIRPORT MALL OF AMERICA 

 


brook
Brook Gregory on her first day of kindergarten at 5 yrs in 1996

 

Peter Costello's
Stand Up
 

Peter 

 

Peter Costello, age 17,

 is renowned for his joke telling 

with his friends,

family, acquaintances 

and even strangers. 

 He cracks them up!

 

 

What is a golfer's favorite letter? 

The letter Tee

 

What do you call a pig 

that plays basketball? 

A ball hog.

 

Why do baseball players

 stay so cool? 

They sit close to the fans.

 

Why did the football coach 

visit the bank? 

To get his quarter-back.

 


Tell Us Your Story

 


Find Support. 

Give Support.

Learn Something. 

Teach Something.

 

GET INVOLVED!! 

 

Send your comments, book reviews or a story about your experience to us for inclusion in the SSSA Notes:

 

newsletter@sotossyndrome.org

 

No access to email? 

Send submissions to:

SSSA

Newsletter Submissions

PO Box 4626

Wheaton, IL

60189

 

Would love recent pics and a blurb of what your child is doing for the newsletter.


 

 

 

Photo of DVD and Handbooks
Order DVD or Handbook Now!

 DVD:

A Journey from Diagnosis 

Through Life

 created by the SSSA

 

$5 + shipping

 

This 30 minute video contains interviews of doctors, families and individuals with Sotos Syndrome, explaining the basic characteristics, experiences and expectations of their journey. 

 

Buy Now           

 

                             

 

A Handbook for Families

(Third Edition) 

$15 plus shipping

 

           English      Spanish       

        Buy Now       Buy Now

This 64-page soft-bound booklet includes:
A Description of the Syndrome
  • The Newborn Period
  • Infants and Toddlers
  • Young Children
  • Adulthood
  • Differential Diagnoses
  • Genes and Hereditary
  • The Role of the Schools
  • Community Resources
  • Siblings and Families
  • The Wider Community
  • Coming to Terms

 Medical and Developmental Evaluations

  • Genetics
  • Central Nervous System
  • Internal Organs
  • Muscle
  • Skeletal System
  • Endocrine
  • Hearing
  • Speech and Language
  • Eyes and Vision
  • Development and Intelligence
  • Behavioral and Psychiatric

  

 

  To order the DVD or Handbook 

by check, please visit our site.

 

 

 

Book/DVD Order Form

visit us on Facebook  click here   
       
jacob 12 Jacob Jennings 
on his first day of grade 7
 2011-2012 school year
  
jacob jennings 14
Jacob helps the little ones cross
the street safely as a
member of the safety patrol
 

 

Back to School 

 2012-2013

 

 
No matter where your child is in their academic school year,  educational help and support is important .
 
Here are a few articles found in the September Issue of EP Magazine and  one from a website to help you plan and progress through this next school year.
 
editor's note:
There were so many great articles in the September Issue of EP Magazine - I could not limit myself to a few.
Pace yourself in reading these articles because they are packed with information. 
 
The next issue of the SSSA Notes will be light and breezy. SEND IN HALLOWEEN PICS (photos or pics of Fall Art).
Are there any budding writers in the SSSA community?
Send in a short paragraph about school or an activity that you enjoy!
 
Until November.......

__________________________________ 
 
Back-to-School Tips for Parents 
of Children with Special Needs

 
__________________________
 
Fight the Good Fight:
Getting Special Education 
Services for your child 

 
__________________________ 
 
MY CHILD "CAN"


__________________________
 
The Future of 
Special Education
"Why is Special Educaton so difficult?Why is inclusion so rarely fully implemented and effective? 
These are questons that resonate throughout the world of exceptional parents." 
Here is one of the many stories of an exceptional parent.


_________________________

NYIT: 
Providing Access to Higher Education 
& Employment
 
"New York Institute of Technology Introduction to Independence and Vocational Independence programs. The notion of this program is that special education students sometimes need a bridge between high school and post-secondary education."
 
 
__________________________

Play Well with Others.......
Be active against Bullying

"Remember that prevention is the most important part of any of the anti-bullying awareness programs"




 

SSSA 
Vancouver 
Conference Photos
 

 
51 families headed to Vancouver 
for the 2012 conference. 
Click here to view photos of the conference.
 
 dr s holding lucy samuelson 
Dr. Schaefer holding Lucy Samuelson 
with his wife Becky Schaefer
  
conference photo 1
Tracy Lloyd and her daughter 
Talia Goertz at the Friday Night dinner 
 
 

Make a tax deductible donation to the SSSA TODAY!!

 

  

To donate using PayPal, 

click on one of the

 dollar amounts below.

 

$10  $20  $50  $100 
 ______ 

To donate by check

Mail to:

SSSA

P.O. Box 4626

Wheaton, IL  60189

_______

 

THANK YOU!!

 

 

 


Editor's note:

There will not be an October Newsletter. 
Don't forget to take a Halloween pic to send in for the November issue of SSSA Notes.
 
Thank you.


           william 2012
William Hefner getting off the bus on his first day of school

 Disclaimer:  The SSSA does not endorse any of the medication, diagnostic procedures, treatments or products reported in this email newsletter.  The information is intended only to keep you informed.  We strongly advise that you check any medication, procedure or treatment with your physician.

 

 

Donate to the SSSA every time you search the Internet or shop online at select sites!!!

 

Search the web with Yahoo-powered GoodSearch.com and they'll donate a penny to the Sotos Syndrome Support Association when you designate the SSSA as your cause!