"The ... conference met and exceeded my expectations. I went to [the conference] feeling confused and worried about my son's future and now I feel confident and hopeful. I recommend anyone whose child has Sotos to come and experience a conference as soon as possible."
"The first [lecture we attended] was with Dr. Schaefer. After about thirty minutes into his presentation, I wrote a note to my wife saying 'This first thirty minutes of his presentation was worth the cost and time of the trip.'"
"I definitely feel as if this trip laid the foundation for future success not only for [my child] but for our entire family."
"Attending the conference gave us a much better picture of what to expect than any book or physician."
"I felt like I was in a world that accepted my little boy."
"I have felt "out of sorts" since the birth of my daughter 7 years ago. For the first time in 7 years I felt like I was the mom of two "typical" kids."
"Experiencing the seminars and the fellowship at the conference was very helpful to me as a sister of a Sotos child. It helped me better understand my brother."
"When it came time for my family to meet with Dr. Cole, we felt a sense of relief. He was the first professional that I have ever talked to that knew what Sotos syndrome was. He confirmed the diagnosis and answered questions I had wanted to have answered for so long!"
"Our son had a great time in childcare and made new friends."
"Childcare was especially helpful because we could rest assured our little one was in goods hands while we relaxed and listened to all the speakers."
