Sotos Syndrome Support Association

SSSA NOTES

December

In This Issue
Your Charity of Choice
News from YOU
Meet the New Board Member
Next Year's Conference

 

 

Photo of DVD and Handbooks
Order DVD or Handbook Now!

 DVD:

A Journey from Diagnosis Through Life

 created by the SSSA

$5 + shipping

This 30 minute video contains interviews of doctors, families and individuals with Sotos Syndrome, explaining the basic characteristics, experiences and expectations of their journey. 

 

      Buy Now

 

                          
 

 

A Handbook for Families

(Third Edition) 

$15 plus shipping

 

   English        Spanish

     Buy Now                     Buy Now

  
This 64-page soft-bound booklet includes:
A Description of the Syndrome
  • The Newborn Period
  • Infants and Toddlers
  • Young Children
  • Adulthood
  • Differential Diagnoses
  • Genes and Hereditary
  • The Role of the Schools
  • Community Resources
  • Siblings and Families
  • The Wider Community
  • Coming to Terms

 Medical and Developmental Evaluations

  • Genetics
  • Central Nervous System
  • Internal Organs
  • Muscle
  • Skeletal System
  • Endocrine
  • Hearing
  • Speech and Language
  • Eyes and Vision
  • Development and Intelligence
  • Behavioral and Psychiatric

  

 

  To order the DVD or Handbook by check, please visit our site.

 

Book/DVD Order Form

 

Tell the SSSA world how proud you are of you special someone. Send your story, book reviews, or articles to us for inclusion in the SSSA Notes:

newsletter@sotossyndrome.org

 

No access to email? 

 Send submissions to:

SSSA

Newsletter Submissions

PO Box 4626

Wheaton, IL

60189

 

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The SSSA expresses its sincere condolences to the family of member Jim Sullivan who unexpectedly passed away .


Make the SSSA  your charity of choice to receive a
tax-deductible donation this year.
 As you decide which charities to donate to this holiday season, we hope you will consider the SSSA.   As a 501(c)3 tax-exempt organization, all donations are deductible to the full extent of the law.    Any gift,  no matter how small, will be acknowledged with a thank-you letter which can be used as a tax receipt come April 15th. 
It's easy to give with Paypal Make a Donation or by mailing in a check to the Sotos Syndrome Support Association, P.O. Box 4626, Wheaton, IL  60189.   
 
Thank you so much for considering the SSSA in your annual charity giving - without generous members like you, we could never provide the support we do to individuals and families around the world.
 
To learn more about the impact your donations will make, read more here.....
 
News from YOU
 
Hello,

I joined the Sotos Syndrome association last year but we were not able to attend last summer's conference.  I have a four-year-old daughter, Margot, who was diagnosed with Sotos at the age of four months.  She is pictured here on the left--the bumblebee...read more...
 

Meet the New Board Member

Ellyn Hefner and Family 
Ellyn Hefner is from Oklahoma City, Oklahoma.   Married for 12 years, Ellyn and her husband Jimmy have three children; Evelyn is 11, Harry is 9 and William is 7.   Read more about Ellyn...

Next Year's Conference

Please plan to join us

5 Girlfriends

 

 

 

 

 

July 20-22, 2012

in Vancouver, Canada

 Learn more about our upcoming conference!

Remember to send us an update if your email address ever changes. 
Don't risk missing a single issue of SSSA NOTES!!  

Disclaimer:  The SSSA does not endorse any of the medication, diagnostic procedures, treatments or products reported in this email newsletter.  The information is intended only to keep you informed.  We strongly advise that you check any medication, procedure or treatment with your physician.

 

 

Donate to the SSSA every time you search the Internet or shop online at select sites!!!

 

Search the web with Yahoo-powered GoodSearch.com and they'll donate a penny to the Sotos Syndrome Support Association when you designate the SSSA as your cause!