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April 27, 2015
News from the Alzheimer's Foundation of America

Help Raise Awareness of Alzheimer's Disease During Older Americans Month

Older Americans Month kicks off May 1, and the Alzheimer's Foundation of America (AFA) has kicked off a social media campaign to help raise awareness of the disease. 

 

The campaign aims to educate people about the issues that affect individuals with the illness and their families each and every day and to let families who have loved ones with Alzheimer's disease know that they are not alone in their journey.

 

Supporting the campaign is easy and requires no investment of time or money. Simply click here and agree to share the message that "Sam is Not Alone," via a valid Facebook, Twitter or Tumblr account.

 

If 100 people support this campaign by doing the above, on May 1, at 9 a.m., tens of thousands of social media users will be able to view a heartwarming video, introducing America to Sam, a Holocaust survivor and one of more than 5 million Americans living with Alzheimer's disease.

Speakers Announced for Concepts in Care Conference

On May 15, AFA will host its annual Concepts in Care conference. The full-day educational event will explore such topics as paying for long term care, how to avoid caregiver burnout, and the importance of building relationships in dementia care.

 

The conference is free and open to the public and offers separate presentations for family and professional caregivers, as well as on-site recreational therapies for individuals with Alzheimer's disease. Speakers include: Dr. John Zeisel,president of Hearthstone Alzheimer Care and The I'm Still Here Foundation, and author of "I'm Still Here: A New Philosophy of Alzheimer's Care;" and Ann Margaret Carrozza,a renowned elder law and estate planning attorney who also served for 14 years as a New York State Assemblywoman. Click here to register.

'Doc Fix' Includes Funding For Post-Acute Care Services And Other Provisions Impacting Medicare Beneficiaries with Dementia

Congress has reached an agreement that reforms how Medicare reimburses physicians as well as extends-for two years-some other Medicare provisions, including funding to extend the therapy cap exemption for post-acute care therapy services, and the Qualifying Individual (QI) program, which helps low-income seniors pay their Medicare premiums.

 

To help pay for these provisions, the legislation imposes changes to Medicare that will impact some Medicare beneficiaries. Starting in 2018, wealthier Medicare beneficiaries (those who have incomes above $133,500, higher for couples), would pay more for their Medicare premiums. In addition, "first-dollar" supplemental Medicare insurance known as "Medigap" policies would not cover the Part B deductible for new beneficiaries starting in 2020, increasing out of pocket costs for many seniors.

 

Medicare providers will also help fund the changes. Post-acute providers, such as long-term care and inpatient rehabilitation hospitals, skilled nursing facilities and home health and hospice organizations, will only receive base pay increases of 1 percent in 2018, about half of what was previously legislated.

 

AFA and other senior stakeholder groups were helpful in discouraging Congress from adopting a co-payment on Medicare home health beneficiaries as part of the funding package. Such a provision would have created a significant barrier for those in need of home care, including many seniors living with dementia, while increasing utilization of more costly institutional care.

News to Use

Fourth Annual Washington, D.C. Mayor's Senior Symposium

The 4th Annual Mayor's Senior Symposium will take place May 13, from 8:00 a.m. to 4:30 p.m. at the Renaissance Washington, D.C. Downtown Hotel. This is a free event for older adults, persons living with disabilities, service providers, community stakeholders and family caregivers. The theme is: "Career to Golden Years: Promoting Longevity and Independence for Seniors." Click here to register. 

Member Spotlight

Hospice of Ukiah

Ukiah, Calif.

 

Hospice of Ukiah is a "volunteer hospice" organization that relies solely on donations from the community, small grants, and the proceeds from its Thrift & Gift Store. The organization has provided end-of-life care--free of charge--in Ukiah, Calif., since 1981, and later added palliative care to its services.

 

Two years ago the group's medical director, Dr. Robert Werra, realized that there were many people caring for loved ones with Alzheimer's on a 24/7 basis, with no relief and no resources, often for many years at a time. Knowing that supporting the health and well-being of the caregiver plays an important role in treating Alzheimer's disease, Hospice of Ukiah kicked off a volunteer respite care program. The organization provides training to the respite volunteers to help them understand and care for individuals with Alzheimer's.

 

"Our respite program is designed to give caregivers a vital break - to shop, nap, take a walk, see friends, get a massage or attend a Caregiver's workshop, said Dr. Werra. "It's also a break for the individual with the disease and can help provide stimulation."

 

Ukiah's Alzheimer's respite volunteers

 

Did You Know?

What is the ACT Caucus?

 

Recently, Sens. Kelly Ayotte (R-N.H.) and Michael Bennett (D-Colo.) along with Reps. Diane Black (R-Tenn.) and Michelle Lujan Grisham (D-N.M.) formed the Assisting Caregivers Today (ACT) Caucus in Congress.


 

This caucus aims to inform members of Congress about issues impacting family caregivers and individuals who seek to live independently, to forge an environment conducive to reaching bipartisan solutions, and to help create a sense of urgency to act on caregiver issues.

 
Studies in the News
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