Voices Newsletter                April 2015   


MBCN President Shirley Mertz

MBCN 2015 Research Leadership Awards 

 

MBCN is proud to announce that it is able to financially support the scientific work of two outstanding scientists who tackle tough questions important to metastatic patients. Each individual will receive an award of $50,000 to continue their work. 

Dr. Andrew Ewald, associate professor in the Departments of Cell Biology and Oncology at the Johns Hopkins University School of Medicine works to describe and understand the invasion and spread of cancer cells to other parts of the body. The spread of metastasis is not yet fully known.
 
 
Dr. Matthew Ellis, the director of the Lester and Sue Smith Breast Center at Baylor College of Medicine has been focused for over a decade on understanding mechanisms of treatment resistance and using this information to find new treatments to extend the lives of patients in the clinic. He is a pioneer in the application of breast cancer genomics, identifying mutations and their clinical relevance.

In 2014, MBCN made a commitment that all contributions made to MBCN in honor of someone living with metastatic breast cancer or in memory of someone who has died would go to support research to help patients. These awards are the result of everyone's commitment to change the course of our disease.

I encourage you to read the entire press release about these two dedicated individuals HERE.

Wishing you well every day,

 

Shirley

 
The Emperor of All Maladies

If you missed Ken Burns' 3 part series on cancer, you can still view it on a PBS website.
It's a fascinating biography of cancer based on Dr. Siddhartha Mukherjee's best selling book. The film includes the historical perspective, patient stories and the direction of future research.

Dan Munro from Forbes wrote some interesting articles, pulling the top quotes from each episode:  

Top 10 Quotes from Part 1: Magic Bullets  

Top 10 Quotes from Part 2: The Blind Men and the Elephant 

Top 10 Quotes from part 3: Finding the Achilles Heel  

 

 
Spotlight on Metastatic Breast Cancer

Thanks to noted breast cancer advocate, Musa Mayer for Shining a Spotlight on Metastatic Breast Cancer in the spring issue of Cancer Today magazine. Musa talks about the Metastatic Breast Cancer Alliance and discusses research and the myths about mbc.
 
Follow up to FDA Meeting
MBCN participated in the recent FDA Breast Cancer Public Meeting on Patient-Focused Drug Development. Shirley Mertz was a panelist and many other metastatic breast cancer patients spoke from the floor. Our voices were strong!

The FDA was very receptive and you can still add your comments to the official record by clicking HERE. There were 2 topics: Disease Symptoms and Daily Impacts; and Patient Perspectives on Current Treatments with a total of 7 questions to be answered. Just scroll down until you see TOPIC 1 and TOPIC 2 with the questions listed. Click on the COMMENT NOW button at the top of the page to enter your answers.

 
 
SAVE THE DATE: JUNE 9

SAVE THE DATE!
Tuesday June 9, 2015  4:00-8:30PM

Dr. Cliff Hudis
Dr. Cliff Hudis of Memorial Sloan-Kettering will speak on
DEVELOPMENTS IN TREATMENT FOR METASTATIC BREAST CANCER.

A panel of women living with MBC will discuss daily challenges of living.

Opportunity to meet others living with mbc.



At: Rockefeller Research Laboratories
     430 East 67th St (between York and 1st aves)
     New York City

Registration required: call Christine at 212-937-5586 or
 
Sherri's Story: Both Sides Now
Sherri Fillipo

New York State  

Age at metastatic diagnosis: 52

Current Age: 54

Subtype: HER2+

 

What happens when a nurse becomes a patient? Sherri reflects on knowing too much as a nurse and yet feeling overwhelmingly vulnerable as a patient.
 
MBCN is a national, independent, nonprofit, all volunteer, patient-led advocacy organization dedicated to the unique concerns of the women and men living with metastatic breast cancer. We strive to help those living with metastatic breast cancer be their own best advocate through providing education and information on treatments and coping with the disease.

© 2015 Metastatic Breast Cancer Network. All rights reserved.

MBCN is a 501(C)(3) not-for-profit organization.   

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MBCN PO Box 1449 New York, NY 10159