Voices Newsletter                 January 2014   
Letter from the MBCN President
Shirley
Shirley Mertz
,

Thank you to all who sent donations to MBCN throughout the year, but particularly in response to our end of year appeal. We appreciate your generosity and pledge to continue to work hard for the metastatic breast cancer community.

I urge you to find 15 minutes to view this excellent video---Genes, Drugs and Breast Cancer---on the work of Dr. Matthew Ellis at the Siteman Cancer Center in St. Louis. Dr. Ellis is an oncologist who does collaborative research to improve outcomes in the clinic for metastatic breast cancer patients.

Plans are already under way for our 2014 annual conference. We'll share more details in the months to come. As always, we welcome your questions and feedback. Drop us a line at mbcn@mbcn.org.

Sincerely,  

Shirley Mertz

President

Metastatic Breast Cancer Network

 

 
Calendar of Events
We believe it is important for the mbc community to be aware of all programs, webinars and information sessions available. Check our CALENDAR for activities from other breast cancer organizations that we feel would be of interest to you, including: a webinar on metastatic updates from San Antonio, telephone support group, healing retreats and the upcoming C4YW conference. 
 
Tuesday Tips on Facebook

Check out our new feature, TUESDAY TIPS, posted every week on Facebook.

If you're not on FB yet, it's easy to join and you don't have to share personal information or your picture, if you don't want to. Go to: www.facebook.com to join.

Here are the TUESDAY TIPS so far:

1/21/14 CAMP KESEM is a college student run summer camp for kids with a parent who has (or has had) cancer. The free one-week sleep away camps are a chance for kids 6-16 to have a fun-filled week and just be kids.
 Read more





1/14/14  FINDING FINANCIAL ASSISTANCE
We get a number of calls from people asking about financial help, so we wrote this blog to help.


 
 Controversy on mbc blogger

Lisa Bonchek Adams has metastatic breast cancer and has been blogging and tweeting about her experience with mbc for the last year. New York Times columnist Bill Keller wrote a controversial piece, personally criticizing Adams' use of social media and mischaracterizing her opinions and outlook on living (and dying) with mbc.

If you haven't been following the controversy, you can catch up on it below. MBCN entered the fray, supporting Lisa and trying to educate Mr. Keller and the public about mbc:
 
Vote for our mbc video!
 
MBCN Board member Katherine O'Brien has entered a short video in a Canadian Breast Fest contest --
 "Dumb Things People Say to People with Metastatic Breast Cancer"

Check it out! (If you attended our September Houston conference, you'll recognize it, since we also played it there, although we had to change the music.)

By clicking below you get 3 votes which you can cast for one video or vote for several videos. Metastatic Breast Cancer Alliance also has a great video in the running called Living with MBC.

Please take a minute and vote to spread the word about living with metastatic breast cancer. You have until Feb 14 and you only get 3 votes total. (You don't have to vote everyday!) Thanks!



 
Anne's Story:  11 years and counting...

Anne was diagnosed as triple positive (ER+, PR+ and Her2+) and has been living with metastatic breast cancer for an amazing 11 years.

 

 
MBCN is a national, independent, nonprofit, all volunteer, patient-led advocacy organization dedicated to the unique concerns of the women and men living with metastatic breast cancer. We strive to help those living with metastatic breast cancer be their own best advocate through providing education and information on treatments and coping with the disease.

© 2014 Metastatic Breast Cancer Network. All rights reserved.

MBCN is a 501(C)(3) not-for-profit organization.   
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