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Voices Newsletter May 2013
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SAVE THE DATE - September 20-22
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Dr Kaklamani and Deb Tincher at Chicago 2012 Conference
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Hi Everyone, As we approach summer, September seems a long way off. But it will be here before we know it---and so will our annual conference. Your MBCN board and volunteers are already hard at work--we are fine tuning the agenda and will post the details as soon as we have them. Houston-area readers, we'd love to hear from you! If you are interested in volunteering or doing a guest blog post with Houston tips, email me: d.tincher@mbcn.orgTake Care, Deb Tincher MBCN Conference Chair New Directions for Metastatic Breast Cancer
7th Annual MBCN Conference
September 20-22, 2013
Houston, Texas
Presented in conjunction with
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Wondering what it's like to attend an MBCN Conference?
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Our 2012 event in Chicago was a big hit. Here's what's some attendees had to say:
"Thank you for the amazing conference in Chicago...I really enjoyed the lectures, meeting other amazing women, and overall it just motivated me to fight for more and keep living my life. I thank you from the bottom of my heart and am happy to know I am not alone in my fight and that we truly do have a voice in YOU. "
--R.H.
"Dr. Patricia Steeg's passion and determination for research involving the prevention of metastasis was incredibly inspiring and uplifting. Meeting other mets patients, like me, was also a great part of my weekend. Thank you, MBCN for the wonderful conference!" --S.S. "I really learned a lot at the bone mets session and about clinical trials. You all did a wonderful job putting on the conference. I'm really glad I made the trip. Thank you." --L.C. |
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Help Change the Experience for Those Living with Metastatic Breast Cancer
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The Cancer Support Community (CSC) has developed a survey on the social and emotional needs of patients with metastatic breast cancer which we urge you to participate in. Make your voice heard!
This new tool expands upon CSC's groundbreaking work in The Breast Cancer M.A.P. Project, in which over 3,700 breast cancer survivors have participated, and will further highlight and raise awareness around the unique needs of people living with metastatic breast cancer.
The Cancer Experience Registry is a critical step in understanding the impact of metastatic breast cancer and ultimately discovering innovative ways to address the needs of people who have been diagnosed with metastatic breast cancer by informing next steps in research, programs, and policy that address their ongoing and changing social and emotional needs.
Participating is easy. There are only two steps:
- Visit www.CancerExperienceRegistry.org to sign up for the Cancer Experience Registry. After registering, you will be directed to questions specifically designed for those living with metastatic breast cancer.
- Answer a set of survey questions and provide updates on a yearly basis.
Anyone who completes the survey by June 30 will be entered to win a grand prize of $500 and five second place prizes of $100.
If you have any questions about registering and completing the survey please contact: anne@cancersupportcommunity.org
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NYC area : SHARE program June24
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Mark your calendars for Monday, June 24, 5:30-7:30 PM for a social evening sponsored by SHARE Cancer Support:
AN EVENING FOR YOU AND YOUR LOVED ONES
For more information, click HERE
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Christine's Story: It's Love that Matters
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With Angelina Jolie's revelation of having a preventive double mastectomy due to her BRCA1 status, the news has been full of information (and misinformation) on the procedure.
Christine presents the other side of the story on double mastectomies. Read the difficulties she faced with the surgery, her eventual metastatic diagnosis and how she is coping.
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MBCN is a national, independent, nonprofit, all volunteer, patient-led advocacy organization dedicated to the unique concerns of the women and men living with metastatic breast cancer. We strive to help those living with metastatic breast cancer be their own best advocate through providing education and information on treatments and coping with the disease.
© 2013 Metastatic Breast Cancer Network. All rights reserved.
MBCN is a 501(C)(3) not-for-profit organization.
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