Metastatic Breast Cancer Network
Voices Newsletter                  February 2013  
Meet Katherine: our newest board member
kob
Katherine O'Brien is our newest MBCN board member and will serve as Secretary and Public Relations Chair.

She was diagnosed with a small volume of bone mets in 2009 at the age of 43. Meeting Joani Gudeman and Shirley Mertz at a Chicago seminar for people with breast cancer inspired her to attend MBCN's annual conference in 2010.
 
After her metastatic breast cancer diagnosis, she realized very few media accounts featured people living with a Stage IV diagnosis. She was determined to change that--she wrote many letters to the editor and frequently offered feedback to online stories. The late Ellen Moskowitz, then MBCN's President, read one of Katherine's letters and invited her to volunteer with the group.

 

 
Expanded study on Avastin


You may remember that Genentech and 23andMe, a genetics company, have partnered on an investigative study of Avastin (bevacizumab), called the InVite Study. The guidelines and recruitment standards have recently been expanded to include cancers other than breast cancer and to include those who may have received Avastin during 2012. 

Please check out the updates HERE to see if you qualify or can recommend this important study to a friend.
 
New brochure available:
Guide for the Newly Diagnosed
Guide
MBCN collaborated with LBBC (Living Beyond Breast Cancer) to produce this new, in depth, 52 page guide for the newly diagnosed.
The brochure covers topics including diagnosis, treatment options and their side effects, clinical trials, and complementary therapies to relieve stress and anxiety.

Learn how to talk effectively about your concerns with your healthcare providers and with the people closest to you. Understand your diagnosis to play an active role in your treatment.

To ORDER click HERE . (The first 9 copies are FREE. Bulk orders over 10 copies have a modest pricing schedule.)


PLEASE ORDER SOME COPIES AND TAKE THEM TO YOUR ONCOLOGIST ON YOUR NEXT APPOINTMENT! 
 
A Valentine for your Caregiver
 Share these links with your caregiver. They may help you both! 

 
Click and raise $ for metastatic breast cancer
Faces of MBC

Please help us continue to spread the word:

 

For every new video upload, view, comment or share of the  Faces of MBC Video Wall, Genentech will donate $1 to MBC initiatives and programs (up to $20,000).    

 

 
Breast Cancer Research Update
MBCN represented the metastatic community at this recent Washington DC Summit. We wanted to share with you the opening remarks of NBCC's Laura Nikolaides: 
The Long View of Breast Cancer Research

We are hopeful that the message of the need for more focused, new research on metastases is beginning to take hold with funders.
 
 
Meet a Metastatic Researcher
University of Maryland School of Medicine research team, led by Stuart S. Martin, PhD, is pursuing interesting research on The Role of Microtentacles in Breast Cancer.

View this short, fascinating video
from 2009. Dr. Martin's team is continuing these studies and has published some findings in the journal Oncogene.
 
 
MBCN is a national, independent, nonprofit, patient advocacy group dedicated to the unique concerns of the women and men living with metastatic breast cancer. We strive to help those living with stage IV breast cancer be their own best advocate through providing education and information on treatments and coping with the disease.

© 2012 Metastatic Breast Cancer Network. All rights reserved.

MBCN is a 501(C)(3) not-for-profit organization.   

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MBCN PO Box 1449 New York, NY 10159