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PKS Kids Registry 
Greetings!

 

 

We have very exciting news to announce. On our website, we are now hosting a mini-registry for Pallister-Killlian Syndrome. This is completely voluntary (but we hope you'll participate), it's anonymous, and is a tracking method for your child and for all PKS children.  

You'll be able to see all the data that is entered, but not whom it belongs too. We feel this will be an excellent way to track correlations, common traits, etc. The more families who use this (please, just one account per child) the better info we will have on hand for medical professionals and families.


I've put together a step-by-step instruction sheet with pictures here.

If you have questions though, be sure to contact Gretchen at [email protected]

 


 

Thank you for your support!

Mike, Cammie, Gretchen, Kate, Kim, Christine, and Nicole