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2010 PKS Kids Face2Face Our next medical conference will be held June 24-27, 2010 in Mount Laurel, NJ. A registration form will be sent to you via email in late January. We have rooms booked at the Mount Laurel Marriott and Coco Key Indoor Water Resort. Hotel rooms are $119.00 per night. If you are interested in booking at this time you may call Toll-free:
1-877-231-7703 and ask for the PKS Kids reservation.
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Fundraising Efforts
Thanks to Elizabeth Longman for her great idea to have a Superbowl pool! It was such a great idea, Gretchen got in on the act as well and now $1000.00 is being donated to PKS Kids in Anthony's and Simon's names. Next year let's try for 5 or more families to do the pool!
The Knights of Columbus council #5999 has made their third donation to PKS Kids. We have been fortunate to receive more than $3000.00 from the KofC Tootsie Roll drive in Marshall, MI.
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Family Involvement Fund
We are offering a way for you to fundraise to cover your travel expenses for the 2010 conference in NJ. You may do a fundraiser or solicit donations and ask that they donate to a fund in your name (or any designated family name) via pkskids.net or through PayPal and anything raised for you is not only tax-deductible but will be given to that family for conference expenses.
We hope this helps many families to be able to attend our medical conference.
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Giving Grant 
We'd love to help you with a medical or therapeutic expense you may have. You may be eligible for up to $1000.00! Please visit this link for details:
http://www.pkskids.net/pkskidsgivinggrant.htm
Any financial/insurance information you provide is kept confidential. |
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Featured Sweetheart Simon Peters is a happy 5 year old who lives in Michigan with his mom and dad, his brother and three sisters.
Simon has severe delays and is not yet sitting up, bearing weight or playing with toys, but he will brighten anyone's day with his smiles! He loves to listen to music and go swimming and just recently learned to drink from a straw. He is well loved by his family and loves to snuggle with his Papa and Grandma.
Hi, this is Simon's sister Maddy,
I'm writing to tell you all about what Simon has been doing. Well first I love Simon and now when people ask me what PKS is I know what to tell them. In March my mom is coming to my school to talk about PKS. Simon has accomplished many things. If you hold him up he will lock his knees and he is drinking out of a strawe. I'm excited for my mom to come with Simon because more people will know what PKS is so then I can explain it more carefully. That's all I have to say, bye!  |
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Thanks for your continued support of PKS Kids!
Sincerely,
PKS Kids Board of Directors |
Eric and I found this bed in the Exceptional Parent magazine and Aidan has been in it for around 2 years. Aidan moves around on his stomach during the night and we needed a bed that he would not get caught in between the mattress and the side of the bed or railing. We are very happy with this bed! The mattress fits tight up next to the sides. The sides fold up and down to make it easier to get him in and out and also for changing. We also love that we can see through the sides to check on him when he is napping without disturbing him. It is completely enclosed so there is no danger of him falling out yet with the "windows" in the side it feels more open and he can see out! The top and bottom of the bed can incline when he is having respiratory issues and the bed is also on wheels. I actually can not think of any cons to this particular bed. It comes in a twin or full size and the mattress can be wiped off in case it gets wet.
