News for Members and Friends, September 16, 2014
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It was thirty years ago...

On September 28, 1984, thirty years ago this month, President Ronald Reagan signed a resolution proclaiming October 1984 as National Down Syndrome Month. In attendance at the resolution's signing in the Oval Office that day, were (left to right) Senator Richard Lugar of Indiana (who introduced the resolution in the Senate); Madeleine Will, Assistant Secretary of Special Education and Rehabilitative Services; George Will, parent; NDSC Executive Director, Diane Crutcher; and Tom O'Neill, President of the NDSC.
October has been celebrated as Down Syndrome Awareness Month ever since. What do you have planned? Please send us your stories, photos, resolutions, and proclamations, so we can share on our social media sites and in next month's E-News!
Here are a few ideas that have been successful in past years. Maybe one of these will help get you started in 2014!
- Ask to show this short video during the announcements at your child's elementary school and share the message, "We're More Alike Than Different".
- Use this opportunity to write a brief article or letter to the editor about your daughter's cheerleading squad, or your son's Boy Scout Troop for your local newspaper.
- Ask to speak about Down syndrome at a civic club's meeting (like Rotary or Optimists) or the Ladies' Group at your church. Provide information about all of the possibilities today for people with Down syndrome. If you help even one person in the room see Down syndrome in a new way, you've spent your time well!
- Donate a great book about Down syndrome to your media center.
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Call for Speakers!
While we'd love to keep celebrating the amazing time we had in Indianapolis (check out this awesome video from the convention here), we are already hard at work planning for next summer's convention in Phoenix. We'll be heading to the JW Marriott Desert Ridge June 25th through the 28th, and are accepting speaker proposals now!
General ConventionWe are always proud to bring the best speakers to our convention each year. Don't miss this opportunity to be a presenter (or let your favorite speaker know about this event). We look for experts in topics that cover the lifespan of individuals with Down syndrome, including health and medical concerns, positive behavior support, education (from pre-school to post-secondary), transition, employment, living options, friendships and social relationships, speech and communication, aging and much more. Workshop proposals are being accepted on our convention website at http://convention.ndsccenter.org/, so please pass this information along to everyone you know that might be interested. Okay, we can't resist sharing one more video from Indianapolis. Check out David Saville's keynote speech, with a little help from his famous friends. Youth and Adults ProgramOur self advocate attendees enjoy interactive workshops that get people moving, thinking, learning, and having fun! If you are a self advocate (or you know a self advocate) who is knowledgeable about a topic that others will find interesting, this is the place to share what you know with your peers in a workshop or panel presentation. Successful speakers in the past have presented on topics ranging from Acting to Cooking to Zumba (and pretty much everything in between). Are you an artist or photographer? Share your creativity! An expert at cake decorating? Share your skills! You can find more ideas and suggested topics on our website: http://www.ndsccenter.org/self-advocates/be-a-presenter/ Discuss your ideas with someone you like to work with. Friends, parents, siblings, coaches and teachers all make good partners. Then just fill out the easy-to-complete speaker proposal form on our website. If you have questions, contact Jean Beck at Jean@ndsccenter.org.
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Convention Workshop Recordings
Of course, it's not the same as being there, but even if you didn't attend our convention in Indianapolis, you still have the opportunity to listen to (and see the PowerPoint presentation of) more than 60 of the workshops that were presented! For just $70.00, you can get the lowdown on healthcare, nutrition, education, financial planning, independent living, research, employment, and so much more! See this list of topics that span the lifetime of people with Down syndrome, then decide for yourself if you'd like to experience our "convention from your couch"...or desk...or patio...(you decide where!) Even if you only listen to half of them, it's just a couple of dollars per session. It sure is hard to turn down that offer!
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Help Health Care Professionals Improve the Way they Work with Families, by Participating in a Research Project
A graduate student at University of South Carolina's Genetic Counseling Program needs your help with a research study. The goal is to collect information that will help health care providers give more "family-centered" care when working with their patients. Learn more about the survey and how to take it here.
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Just a couple of other things...
1. We listened to a very cool radio documentary titled, "What a Difference Differences Make", by author Jane Leder. Jane describes her experience as a volunteer at Misericordia, a residential option in Chicago for individuals with developmental disabilities. Their continuum of care ranges from CILAs (Community Integrated Living Arrangements) to on-campus apartments to group homes on-campus to a skilled nursing residence. Misericordia aspires for each individual to live as independently as possible in the highest level of community integration feasible. Read about Jane stepping out of her comfort zone to volunteer, and then listen to her interviews with three residents at Misericordia.
2. In order to do a better job in serving NDSC members, we will be emailing a brief survey soon, to collect information about what you most need from us! Be on the lookout for this request for information!
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Making a difference. One family at a time. |
National Down Syndrome Congress 30 Mansell Court, Suite 108 Roswell, GA 30076
800-232-6372; 770-604-9500
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Fax: 770-604-9898| Email: info@ndsccenter.org | Website: www.ndsccenter.org Copyright � 2014. All Rights Reserved.
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