| QUICK LINKS | |
TSA-IL Website
|
|
JOIN OUR LIST
|
 |
| RUN FOR THE ROSES SPONSORS | |
|
| 17th Annual Golf Classic, 6/17 |  | |
One Swing Closer to a Cure...
Monday, 6/17
Bryn Mawr
Country Club
|
Annual Picnic, 8/18
|  | |
SAVE THE DATE!
Sunday, August 18th
1 - 4 pm
Wheeler Park Pavillion
Geneva, IL
Details coming soon!
|
New Facebook Support Page!
|  |
Exciting News! Tourette Connection now has a FB group. It is a great way to connect with others in between meetings and/or if you can't make it to the in-person meetings.
It is also a great way to ask questions, share resources, network, plan events and help others.
We hope you consider joining!  SUMMER EVENTSTourette Connection is looking for a few volunteers to help plan some fun summer outings. If you can donate a few hours of your time, please contact Shari Meserve (shari.eps&gmail.com)
|
|
|
Greetings!
May 15-June 15th is National TS Awareness Month. How are you going to spread awareness? Will you - Participate in the Run for the Roses on June 2nd?
- Request an In-Service for your child's school for the fall?
- Send a letter to your Congressman urging him/her to join the new bi-partisan Congressional Caucus on Tourette Syndrome?
- Volunteer to help at TSA-IL Events?
- Express yourself with an article, poem, song or drawing?
- Tell a friend about TS?
As you can see there are so very many things we can do to advocate and spread awareness. If you are doing anything special for Tourette Awareness Month, let us know about it, we want to hear from you!
Hope to see you at the Run for the Roses and other TSA-IL events! Sincerely,
The Tourette Syndrome Association of Illinois
|
Run for the Roses, Sunday, June 2nd
|
Looking for a Family Event?
 If you are looking for a fun family event that promotes being healthy while supporting a good cause, then the 19th Annual Run for the Roses in Roselle is simply a must do! Be sure to sign up early, TSA-IL needs YOU!  The Run for the Roses has something fun for everyone (for children up to Senior Citizens), a certified 5K course for runners or walkers, free childcare for advanced registered participants, a youth 0.6k wholly contained within the Lake Park HS parking Lot, live music along the race course, a dj, free pony rides, petting zoo, balloon artists, food by Nancy's Pizza and more. You don't have to have Tourette Syndrome to participate, spread the word, invite friends, family, neighbors, classmates and co-workers to partake in Race Day Events! FOR MORE INFORMATION
 Running or walking not really your thing? We also need VOLUNTEERS to sign up now to assist on race day!
Please send an email to [email protected] if you are interested in volunteering! |
TS Congressional Caucus
Please help, IL is not Represented!
| 
TSA Government Awareness Week
May 27 - 31
TSA has worked closely with Members of the House of Representatives to establish this bi-partisan Congressional Caucus on Tourette Syndrome whose purpose will be to spread awareness about TS and promote legislation to support people and families coping with the disorder.
Chairing this Caucus is Tennessee Congressman, Steve Cohen and New York Congressman, Peter King. There are also representatives from CA, FL (2), KY (2), MD, MN, NJ, NY (3), PA and TN.
As of now, Illinois is NOT represented!
Please help add the state of Illinois to this very important Caucus:
- Please send a letter (letter template) to your Congress Representative (find your elected officials), sharing your personal story. Sharing your story provides powerful images and information to help them begin to realize what it is truly like to live with TS.
-
Request that they join this important and influential body.
-
Without your stories, our elected officials will not realize the importance of Tourette Syndrome to the state of Illinois. Please take a few minutes to Have your say and make a difference!
|
| Tourette Syndrome Awareness Month |  How Can I
Spread Awareness?
Share your knowledge Submit an article to [email protected] for the website and newsletters. Your words and your actions are inspiring! Take the time to help someone else by sharing your experience. Your words might help someone realize they're not alone, someone else has the same crazy tic they do or that someone else feels the same way -- shared experiences not only touch people it may also change their life!
Donate to TSA-IL in the honor of a loved one with Tourette's Syndrome! Mail your donation to TSA-IL, 800 E Roosevelt A-10, Glen Ellyn, IL 60137.
Follow us on Facebook and Twitter What's on Facebook or Twitter? Current Tourette Syndrome news and events!
 
Volunteer We are always looking for individuals to share their talents with us! We are in need of volunteers for: - Run for the Roses on June 2nd (need 30 more volunteers!)
- committees
- Annual Picnic
- Summer Events
- fundraising
- grantwriting
- leadership experience
- public relations
- or any other talent or time you can share
If you are interested in volunteering, please contact Lisa at [email protected]! Don't take a back seat -- get involved! |
|
Welcome to our 2013 Youth Ambassador, Bradley Wilinski
| 
We are pleased to welcome Illinois' newest Youth Ambassador, Bradley Wilinski. This courageous 13 year old is no stranger to public speaking. In 2010, he spoke to more than 300 people about the challenges he faces as someone with Tourette's syndrome. In 2012, Bradley was featured as part of a documentary about Tourette's syndrome. Last month, he spoke at a luncheon in Washington DC for the Youth Ambassador program as well as speaking to IL Congressman and Senator's offices on Capitol Hill about his TS journey. "I like to speak to people so they won't make fun of people with Tourette's, and help them understand that it's OK to be different." At the end of the month, Bradley will be interviewed by Channel 7 where he will continue to share his experiences with Tourette Syndrome. The interview will air on the Sunday Morning show sometime in June. If anyone has any questions for this amazing youth, please send them to [email protected] and maybe we'll use it in the next newsletter! |
The Archer Study
|
The ARCHER Study is evaluating an investigational medication to see if it may help reduce the number and severity of tics in children ages 7-17 years old with Tourette's Disorder. Click here to learn more about the Archer Study. Study approved by National TSA. |
|
|
|
|
Tourette Syndrome Association of Illinois (TSA-IL)
