Originally from Poole,  I moved to Brighton in 2004, in order to study at university, where I gained a BA (Hons) in Tourism Management which was followed by a Masters degree in Event Management. Upon completion of these I returned to Bournemouth in 2009 with my husband of 2 years, Jon.

I have always had a special interest in fundraising, through tailoring university modules and research assignments to focus on this, to working as fundraising officer for a Southampton based charity. More recently, I have gained valuable experience of working in event organisation by working as a special events coordinator at the Bournemouth Highcliff Marriott Hotel. It was here that I first became aware of CMT United Kingdom, as I helped coordinate a fundraising event for the charity held at the hotel in 2013 (The Myelin Masquerade Ball) 

I am extremely excited and delighted to be a part of CMT United Kingdom and look forward to working towards the objectives of the charity!

Nichola starts with us on 24th March - I'm sure you'll agree that this is a very exciting time for us all!   If you'd like to email Nichola - her email is nichola@cmtuk.org.uk - lets make her inbox nice and full for when she starts!! 

In six weeks time, I turn 50.  From a personal perspective, I don't know whether to celebrate or hide.... Where have all those years gone?  I was 26 when I first joined the board of Trustees of CMT United Kingdom - it doesn't seem possible!

So I have been pondering on how (or even whether!) to celebrate this landmark, and I think that it would great to launch a Birthday Appeal to raise some money for this charity which is so important to myself, and to my family.

But I don't want it to be all about me - I'm just a small cog in a very large wheel, taking into consideration everyone, members, Trustees, helpers, founders and fundraisers who have been involved in the last 28 years of the existence of CMT United Kingdom.

Therefore, let's all celebrate.... whoever you like, and make a donation to CMT United Kingdom.

Go to www.justgiving.com/celebratecmt to read more of my idea and what we need a ridiculously large amount of money for!

And thank you!

Karen 

Dear CMT

I am organising a training course for junior doctors to develop their skills in examining patients.

I would like to ask that you kindly share this email with your London area members who may wish to help enable doctors to become more familiar with their medical condition and to help them to make a diagnosis with greater ease in future.

All patients are treated with the utmost respect and privacy at all times. There will also be qualified nurses present to provide care as necessary during the day.

The courses take place at St. George's Hospital, Tooting, London SW17 0RE.

The day begins at 8:30am and will come to a close at 5:30pm. A hot lunch, tea, coffee and snacks will be provided throughout the day.

At the end of the day, the patient will be paid a sum of £60 for their assistance.

The dates for the next series of courses are 29th May, 1st June, 5th June or 8th June.4.

I would be happy to speak to any member who may be interested in attending.

Thank you for your assistance.

Jaguar Exhibition Hall, Ricoh Arena, Coventry, CV6 6GE   

Free entry, Free parking, Fully accessible  

Information on funding, mobility, seating, bathing, transport, communication, transition, moving and handling,

continence, sensory, sports, leisure and much more!  

http://www.disabledliving.co.uk/Kidz/Middle/Download--showguide

Orthotics for Knee Instability

Can you help us in our research?

We are a group of researchers at the University of York carrying out research into the use of orthotic devices to help adults with neuromuscular conditions who have an unstable knee.

We are seeking two people who can bring the perspective of patients to our Project Steering Group.

The role of the Project Steering Group is to make sure that the research takes into consideration the views of patients and healthcare professionals and to ensure the research is of a high standard. The project will last 12 months and starts on 1^st April 2014. The group will meet three times over the year. We might also contact you occasionally in between meetings. We are seeking two people who

·         Have been offered an orthotic device to help with knee problems related to a neuromuscular condition

·         Are comfortable working as part of a small team

·         Are willing to share their opinions at a meeting and listen to the views of others

·         Are able to attend three Steering Group meetings at the University of York- so live within easy travelling distance of York

You do not need to have any research experience just an enthusiasm and interest in the project. Further information is attached.

If you would like to join us, please send an email to Catriona McDaid (catriona.mcdaid@york.ac.uk) explaining why you would like to join the Project Steering Group by Wednesday 26^th March.  You can also email Catriona if you have any queries about this role.                  

Thank you for your interest.