JULY 2013  

METS MATTERS

INFORMATION FOR WOMEN LIVING WITH METASTATIC BREAST CANCER 

In This Issue
Report From ASCO 2013
An Evening at Trinity Place Restaurant
Clinical Trial for Women with BRCA 1/2 Metastatic Breast Cancer
Evening Support Group Meets Twice Monthly
Upcoming Programs and Special Events
2013 Metastatic Breast Cancer Network National Conference

Quick Links


SHARE An Evening with us at Amali Restaurant and Bar
(seen here in New York Spaces Magazine)

SHARE in collaboration with MBCN and Weill Cornell Breast Center invite you and your loved ones to join us for an evening out.  Meet others living with MBC and those who love and care for them. 
 
November 25th, 2013 5:30-7:30 pm

Call (212) 382-2111 to register 

 

or Email 

 

 

 

WATCH
Each Voice Counts--The Advocates Part 1

 The Balancing Act
on Lifetime
to hear Kathy Hynes-Kadish
and Christine Benjamin talk about metastatic breast cancer

Breast Cancer Helpline
212-382-2111 
 


HABLA CON UNA SOBREVIVIENTE


Llame a la Línea de Auxiliode Cáncer de Seno de SHARE al

(866) 891-2392. Usted podrá hablar con una sobreviviente que tiene cáncer de seno metastático.

 

 

Cancer Experience Registry: Metastatic Breast Cancer
RegistryMBC2
SHARE and Cancer Support Community are proud to launch the Cancer Experience Registry: Metastatic Breast Cancer! If you have ever had a diagnosis of metastatic breast cancer, please share your experience and help make a difference for the future of cancer care. 

Additional Resources 

Transportation Assistance

ACS Road to Recovery

888-227-6333

 

Medication Assistance

Medication Health Wellness Foundation

800-675-8416

 

The BigAppleRx Prescription Discount Card  

 

Medicare Fundamentals Video  

 

Call The Breast Cancer Helpline For Additional Resources

1-866-891-2392 

 

 Join Our Mailing List
Need Trials?

BreastCancerTrials.org is a non-profit service that is dedicated to providing accurate information about breast cancer clinical trials. 

 

Teleconference for Caregivers and Supporters
 
This teleconference is designed to help family caregivers, who are vitally important members of the health care team.  We'll focus on managing practical and emotional tasks, negotiating the health care system, and handling stress. Helpful resources will also be discussed. Presenter will be Myra Glajchen, DSW, Director of the Institute for Education and Training at Beth Israel Medical Center and creator of Beth Israel's Family Caregiver Initiative. Funding for this series is provided by SHARE supporters and Celgene.

Register at (212) 719-2943 or rsvp@sharecancersupport.org

To participate please call: (866) 210-1669
Use code: 9353618

July 30th, 2013 6:00 pm

 

Anne Moore

Report From ASCO 2013 Webinar with Dr. Anne Moore and Dr. Linda Vahdat

 

On June 27th, Dr. Moore and Dr. Vahdat of the Weill Cornell Breast Center reported the latest research findings from the 2013 American Society of Clinical Oncology (ASCO) via webinar.  If you missed the webinar, you can view it by clicking HERE.

 

An Evening at Trinity Place Restaurant

 

 

On June 24th, forty women living with metastatic disease and their loved ones got together at Trinity Place Restaurant in downtown NYC.  This is the third event of it's kind since 2011 and the first of 2013.  SHARE will be co-hosting the opening night get together of the MBCN conference in September at MD Anderson Cancer Center.  To learn more about the conference, click HERE.  

 

 

SHARE will be hosting another event for women living with metastatic disease and the people who love them on November 25th, 2013 at Amali Restaurant.  To find out more and to register for this event, see the box below.   

 

Clinical Trial for Women with BRCA 1/2 Positive Metastatic Breast Cancer


Mutations of human tumor suppressor genes BRCA 1 and BRCA 2 have been linked to breast cancer. Currently, the FDA-approved chemotherapy drugs, Temozolomide (Temodar®), carboplatin and paclitaxel, have been widely used as a first treatment for advanced or metastatic (spread to/from other areas) cancer. The effect of these drugs may be improved with the addition of an experimental drug called Veliparib, which can prevent the cancer cells from repairing themselves and resume growing after chemotherapy treatment. The purpose of this study is to determine whether patients with the BRCA 1 or BRCA 2 mutation and metastatic breast cancer do better with or without veliparib in combination to chemotherapy treatment. Click HERE for more information. 

New Evening Telephone Support Group 

 

Living with Uncertainty the evening in person support group now meets by TELEPHONE twice each month. Join others via telephone to discuss living with metastatic disease. This group is facilitated by a woman living with metastatic breast cancer. Call the SHARE Breast Cancer Helpline to register and receive instructions to participate: 212-382-2111

Thursdays: 6:30-8:00 pm

Sept 12, 26  

Oct 10,24  

Nov 14  

Dec 12,26  

 

CAREGIVER SUPPORT GROUP:

This group is for those whose loved ones have been diagnosed with any stage of breast or ovarian cancer.  Caregivers will have the opportunity to share experiences and support each other as they help their loved ones deal with cancer.  Facilitator is the husband of a SHARE participant.   
Monthly on Tuesdays:
6:00-7:30PM
Sept 10
Oct 8
Nov 12
Dec 10  

METASTATIC SUPPORT GROUPS AND HELPLINE INFO

 

ONE-TO-ONE SUPPORT: speak with another woman living with metastatic disease.  Call the SHARE Helpline @ 212-382-2111.

 

TELEPHONE SUPPORT GROUPEvery Monday, 4-5 PM, No group on Sep 2

Click HERE 

 

 

You must register.  Call the Helpline to register in advance for support groups.   SHARE Helpline: 212-382-2111.

 

In Person groups meet at the SHARE office.  1501 Broadway. Suite 704A, New York, NY 10036.  Broadway between 43rd & 44th Street.  

 

Click HERE  to see additional SHARE programs.   

ProgramsConferencesUPCOMING PROGRAMS & SPECIAL EVENTS

 

Call 212-382-2111 to register for all programs.  


AN EVENING FOR YOU AND YOUR LOVED ONES ON US 
 
Join us for a very special evening at Amali Restaurant.  Meet and mingle with others living with metastatic breast cancer while your loved ones meet and mingle with others in similar situations.  This event is in collaboration with MBCN and Weill Cornell Breast Center. Lead support for this event is provided by Celgene.  

 

November 25th, 2013 5:30-7:30 pm 

 

Amali Restaurant and Bar
115 E 60th St. 
Manhattan, NY 10065

Register by calling (212)-719-2943 or email: rsvp@sharecancersupport.org  

 

WEBINAR: Caregivers Helping Manage Symptoms and Side Effects

 

Jane Carleton MD, from The Monter Cancer Center, will present information on how the caregiver can help their loved one manage the symptoms and side effects of metastatic breast cancer and treatment. Q&A will follow.    

October 23rd, 2013 1:00-2:00 p.m.  

 

Register at

rsvp@sharecancersupport.org and we will send you an email invitation.   
  

 

 

 
FOR MORE SHARE PROGRAMS,  CLICK HERE     

VolunteerVOLUNTEERS
Interested in being a Helpline Volunteer or Peer Referral? 

Helpline training is available to give you the skills to help others.  Contact Donna Faranda for more information.
2013 Metastatic Breast Cancer Network National Conference

Join MBCN for their 3 day weekend, exploring New Directions in Metastatic Breast Cancer, in conjunction with MD Anderson Cancer Center! Attend all 3 days or just the main program on Saturday.

September 20-22
Houston Marriott at the Texas Medical Center

6580 Fannin Street
Houston, TX 77030


Click HERE for more information on the program, registration and travel grants.

 

Mission ABOUT SHARE 

SHARE's mission is to create and sustain a supportive network and community of women affected by breast or ovarian cancer. We bring these women and their families and friends together with survivors to provide participants with the opportunity to receive and exchange information, support, strength and hope.   

 

SHARE provides telephone support, support groups, educational programs and advocacy opportunities.  All services and programs are free.   


Sincerely,

Christine Benjamin LMSW
Breast Cancer Program Director

 Cbenjamin@sharecancersupport.org  

212-937-5586