OCT 2014   

METS MATTERS

INFORMATION FOR WOMEN LIVING WITH METASTATIC BREAST CANCER 


In This Issue
MBC Awareness
A Fresh Chapter
Miss Dr. Dizon's Webinar?
Upcoming Programs

Breast Cancer Helpline
212-382-2111 

Or 866-891-2392

 


HABLA CON UNA SOBREVIVIENTE


Llame a la Línea de Auxiliode Cáncer de Seno de SHARE al

(866) 891-2392. Usted podrá hablar con una sobreviviente que tiene cáncer de seno metastático.

 

 

Additional Resources 

Transportation Assistance

ACS Road to Recovery

888-227-6333

 

Medication Assistance

Medication Health Wellness Foundation

800-675-8416

 

The BigAppleRx Prescription Discount Card  

 

Medicare Fundamentals Video  

 

Call The Breast Cancer Helpline For Additional Resources

1-866-891-2392 

 

Need Trials?

BreastCancerTrials.org is a non-profit service that is dedicated to providing accurate information about breast cancer clinical trials. 

 

NBCC's Clinical Trial Partnerships for women living with metastatic disease can be seen HERE

 

BROCADE Study for women and men who have metastatic breast cancer as a result of a BRCA mutation.  Read more HERE

 

 

 

 

 

JOIN OUR MAILING LIST
DONATE TO SHARE
CLICK HERE
BECOME A HELPLINE VOLUNTEER
Being diagnosed with metastatic breast cancer is frightening, isolating and overwhelming. By becoming a Helpline Volunteer, you will be able to help others living with metastatic breast cancer feel less scared and alone. 
If you are interested in volunteering, please contact Christine:
SHARE, Robin Roberts and the Metastatic Breast Cancer Alliance

 



 


 

October can be a tough month for women living with metastatic disease.  While some loathe the color pink, some embrace it because it's brought recognition if not "awareness" to a disease that continues to kill nearly 110 women in the US every day.  Many living with MBC feel that pink is the color of those that are surviving breast cancer and women with MBC are living with it every month, and every day of every month. 

 

This October it seems there are an unprecedented number of events, webinars, programs, announcements, blogs and news about MBC.  In fact, information about MBC and images of women living with metastatic breast cancer were on a billboard in Times Square on October 13th, MBC awareness day.  SHARE, MBCN and IBCRF (Inflammatory Breast Cancer Research Foundation) were there, trying to get the attention of the hosts of Good Morning America.  At one point, Robin Roberts came outside of the studio.  I told my MBCN and IBCRF cohorts that I was "going in."  As I approached the area where Robin was greeting the crowd gathered outside of the studio, the sea of people parted and I walked right up front.  Robin was two feet away from me.  As she got even closer, I said "Hey Robin, we have the same doctor, Lauren Cassell."  She said she loved Dr. Cassell and I agreed.  I told her we (by now MBCN and IBCRF had come over) were here to raise awareness about metastatic breast cancer.  She acknowledged our efforts and the importance of what we were doing.  


 

Read more HERE.

 

A FRESH CHAPTER

A Fresh Chapter launched the Fresh Chapter Alliance Foundation; a non profit corporation with a mission to transform the lives of those impacted by cancer through programs that inspire purpose and cultivate healing. A Fresh Chapter is working on programs for those living with metastatic disease.  Find out more about our friends at A Fresh Chapter @ www.afreshchapter.com

 

 
ONE-TO ONE SUPPORT FOR CAREGIVERS


One-to-one support for caregivers is available via telephone with a therapist free of charge.  Contact Christine Benjamin to make an appointment.  
212-937-5586 or email: Cbenjamin@sharecancersupport.org

This service is made possible by a grant from Celgene.

Unable to attend Dr. Dizon's Webinar?
 
 
COPING WITH OCTOBER:  IDEAS FOR THOSE LIVING WITH METASTATIC BREAST CANCER


Dr. Don Dizon 


Breast Cancer Awareness Month can be difficult for those living with MBC. Their reality of being in treatment for life is generally ignored in favor of stories urging early detection or celebrating the end of treatment. It may seem as if friends, media, and the general public just don't get it. Feelings of anger, isolation, and depression are common. In this session, specifically tailored for October-related issues, Dr. Don Dizon, an oncologist at Massachusetts General Hospital Cancer Center, shares some coping strategies. 

 


This webinar was in collaboration with the Metastatic Breast Cancer Network and made possible through grants from Celgene and Genentech.   
 
If you missed this program, you can view it by  

  Metastatic Breast Cancer: Cutting-Edge Research from the National Cancer Institute

Patricia Steeg, PhD., Chief of Women's Cancers SEction at the Center for Cancer Research at NCI presented her research related to metastatic breast cancer. This webinar was presented on OCT 15 however you can view it HERE. 


SHARE Talk Radio

Dr. Denise Yardley, Senior Investigator of Breast Cancer Research at Sarah Cannon Research Institute, and Medical Oncologist with Tennessee Oncology, PLLC, presented information about this phase 3 clinical trial for women with BRCA 1 or 2 positive metastatic breast cancer.

You can listen by clicking HERE.

 
 
UPCOMING PROGRAMS


 



Dr. Mindy Schiffman, Clinical Psychologist and Sex Therapist, NYU Langone Fertility Center will discuss ways to counter the emotional and sexual fallout of ongoing cancer treatment.  
You can participate in person or VIA WEBINAR. Register for webinar HERE.
SHARE Main Office
Wednesday NOV 5, 6:00 - 7:30 PM EDT

BREAST CANCER UPDATE 2014
 
Dr. Larry Norton, Deputy Physician in Chief for Breast Cancer Programs, MSKCC will discuss the current state of breast cancer research and treatment.  
 
UFT, 52 Broadway, NY, NY 19th Fl., Rm. B & C
Thursday NOV 13  6:00 - 7:30 PM EDT
 
 

 SUPPORT  FOR WOMEN LIVING WITH METASTATIC BREAST CANCER AND THEIR FRIENDS AND FAMILY
 
LIVING WITH UNCERTAINTY
Evening Telephone Support Group
This group is facilitated by a trained volunteer who is living with metastatic breast cancer.  Call the SHARE Breast Cancer Helpline to register and receive instructions on how to dial in. 
Thursdays - 6:30 - 8:00 PM
OCT 23, NOV 13, 27, DEC 11
CALL 212-382-2111 TO REGISTER
(This program is partially funded by JALBCA and Genentech)

TELEPHONE SUPPORT GROUP
This weekly group is facilitated by an LCSW who has had early stage breast cancer.  Join other women living with metastatic breast cancer to discuss living with this disease.  Please note this group is usually filled, please call to check on openings. 
Mondays - 4:00 - 5:00 PM 
Every Monday
CALL 212-382-2111 TO REGISTER
(This program is partially funded by Celgene and Genentech)

METASTATIC BREAST CANCER HELPLINE
This toll free Helpline can match you with a trained peer who is living with metastatic breast cancer.  
CALL 866-891-2392 AND ASK TO SPEAK WITH A PEER

CAREGIVER SUPPORT GROUP
This in-person support group is for those whose loved ones have been diagnosed with any stage of breast or ovarian cancer. 
Tuesdays  6:00-7:30PM
NOV 11 DEC 9
CALL 855-498-5523 TO REGISTER
 
CAREGIVER HELPLINE
Caregivers can call this toll free number and speak with a trained peer volunteer.  Talk to someone who's been there.
CALL 855-498-5523 AND ASK TO SPEAK WITH A PEER

 

Mission ABOUT SHARE 

SHARE's mission is to create and sustain a supportive network and community of women affected by breast or ovarian cancer. We bring these women and their families and friends together with survivors to provide participants with the opportunity to receive and exchange information, support, strength and hope.   

 

SHARE provides telephone support, support groups, educational programs and advocacy opportunities.  All services and programs are free.   


Sincerely,

Christine Benjamin LMSW
Breast Cancer Program Director

 Cbenjamin@sharecancersupport.org  

212-937-5586