JUNE 2014   

METS MATTERS

INFORMATION FOR WOMEN LIVING WITH METASTATIC BREAST CANCER 
In This Issue
PALOMA TRIALS
Helpline Volunteers Needed
Miss Dr. Dizon's Webinar?
Upcoming Programs

Breast Cancer Helpline
212-382-2111 

Or 866-891-2392

 


HABLA CON UNA SOBREVIVIENTE

Llame a la Línea de Auxiliode Cáncer de Seno de SHARE al

(866) 891-2392. Usted podrá hablar con una sobreviviente que tiene cáncer de seno metastático.

 

 

Additional Resources 

Transportation Assistance

ACS Road to Recovery

888-227-6333

 

Medication Assistance

Medication Health Wellness Foundation

800-675-8416

 

The BigAppleRx Prescription Discount Card  

 

Medicare Fundamentals Video  

 

Call The Breast Cancer Helpline For Additional Resources

1-866-891-2392 

 

Need Trials?

BreastCancerTrials.org is a non-profit service that is dedicated to providing accurate information about breast cancer clinical trials. 

 

NBCC's Clinical Trial Partnerships for women living with metastatic disease can be seen HERE

 

BROCADE Study for women and men who have metastatic breast cancer as a result of a BRCA mutation.  Read more HERE

 

 

 

 

 

JOIN OUR MAILING LIST
DONATE TO SHARE
CLICK HERE
BECOME A HELPLINE VOLUNTEER
Being diagnosed with metastatic breast cancer is frightening, isolating and overwhelming. By becoming a Helpline Volunteer, you will be able to help others living with metastatic breast cancer feel less scared and alone. 
If you are interested in volunteering, please contact Christine:
ARE PALBOCICLIB AND LETROZOLE THE NEW HERCEPTIN?

Results of the PALOMA-1 trial show the drug palbociclib, "an inhibitor of cyclin-dependent kinases (CDK) 4 and 6, significantly improved progression-free survival when administered as a first-line treatment in patients with hormone receptor-positive, metastatic breast cancer."

 

In February, the Phase 2 trial (PALOMA-1) of palbociclib demonstrated a statistically significant and clinically meaningful improvement in progression-free survival for the combination of palbociclib and letrozole, as compared to letrozole alone in women with ER-positive, HER2-negative locally advanced or newly diagnosed metastatic breast cancer.


TO READ MORE, CLICK HERE

If you would like to learn more about the trials being conducted, you can click below to learn about PALOMA-2 and here to learn about PALOMA-3. 

Palbociclib shows promising results in patients with hormone receptor-positive metastatic breast cancer. (2014, April 6). American Association for Cancer Research. Retrieved from http://www.aacr.org/home/public--media/aacr-in-the-news.aspx?d=3335 

 

SHARE NEEDS HELPLINE PEERS
VOLUNTEER TODAY
If you are living with metastatic breast cancer and feel able to volunteer as a helpline peer, give us a call.  Helpline training is taking place via WEBINAR on JULY 10TH from 5:30 - 7:30 PM.  
Call Christine for more info:  212-937-5586 or EMAIL
 
MISS DR. DIZON'S WEBINAR?
 
 
NEWS FROM ASCO 2014: What is Relevant for Those Living with Metastatic Breast Cancer?


Dr. Don Dizon 


Dr. Don Dizon, Associate Professor at The Warren Alpert Medical School of Brown University and board certified medical oncologist, discussed news from ASCO including different modalities of treatment such as targeted therapies in a way that is useful to those living with metastatic breast cancer.

  

One topic of interest discussed by Dr. Dizon, was palliative care as an effective method in increasing the number of months of survival for metastatic patients. He mentions one study presented at ASCO by Dr. Dionne-Odom, that showed a research intervention of palliative care improved survival at one year and improved participants' median overall survival.  

 

To read more, CLICK HERE 
This webinar was in collaboration with the Metastatic Breast Cancer Network and made possible through grants from Celgene and Genentech.   
 
If you missed this program, you can view it by  


 
 
UPCOMING PROGRAMS
 
WHY SHOULD I JOIN A CLINICAL TRIAL?
 
Dr. Dawn Hershman of the Herbert Irving Comprehensive Cancer Center at Columbia University discussed the pros and cons of participating in clinical trials. 
 
This webinar took place on June 25, 2014.
To view a recording of this webinar, CLICK HERE
 
How, When, and Why You Should Juice  
 
 
Stacey Jayne, AADP, Certified Health Coach, will talk about how to incorporate fresh juices into your diet and how they can improve your health.  She'll address where to find the highest quality fresh fruits and veggies and why this matters, as well as which fruits and veggies are best for juicing.  Other topics include home juicing vs. store-bought products.

SHARE Main Office 1501 Broadway, Suite 704A
Manhattan, NY
Thursday July 17, 2014 6:00 - 7:30 PM 
RSVP@SHARECANCERSUPPORT AND YOU WILL GET AN EMAIL INVITATION 
 

 SUPPORT  FOR WOMEN LIVING WITH METASTATIC BREAST CANCER AND THEIR FRIENDS AND FAMILY
 
LIVING WITH UNCERTAINTY
Evening Telephone Support Group
This group is facilitated by a trained volunteer who is living with metastatic breast cancer.  Call the SHARE Breast Cancer Helpline to register and receive instructions on how to dial in. 
Thursdays - 6:30 - 8:00 PM
June 26 July 10, 24 August 14, 28
CALL 212-382-2111 TO REGISTER
(This program is partially funded by JALBCA and Genentech)

TELEPHONE SUPPORT GROUP
This weekly group is facilitated by an LCSW who has had early stage breast cancer.  Join other women living with metastatic breast cancer to discuss living with this disease.  Please note this group is usually filled, please call to check on openings. 
Mondays - 4:00 - 5:00 PM 
Every Monday
CALL 212-382-2111 TO REGISTER
(This program is partially funded by JALBCA and Genentech)

METASTATIC BREAST CANCER HELPLINE
This toll free Helpline can match you with a trained peer who is living with metastatic breast cancer.  
CALL 866-891-2392 AND ASK TO SPEAK WITH A PEER

CAREGIVER SUPPORT GROUP
This in-person support group is for those whose loved ones have been diagnosed with any stage of breast or ovarian cancer. 
Tuesdays  6:00-7:30PM
JUNE 10,  JULY 8, August-No Group
CALL 855-498-5523 TO REGISTER
 
CAREGIVER HELPLINE
Caregivers can call this toll free number and speak with a trained peer volunteer.  Talk to someone who's been there.
CALL 855-498-5523 AND ASK TO SPEAK WITH A PEER

 

Mission ABOUT SHARE 

SHARE's mission is to create and sustain a supportive network and community of women affected by breast or ovarian cancer. We bring these women and their families and friends together with survivors to provide participants with the opportunity to receive and exchange information, support, strength and hope.   

 

SHARE provides telephone support, support groups, educational programs and advocacy opportunities.  All services and programs are free.   


Sincerely,

Christine Benjamin LMSW
Breast Cancer Program Director

 Cbenjamin@sharecancersupport.org  

212-937-5586