October 2012 

METS MATTERS

INFORMATION FOR WOMEN LIVING WITH METASTATIC BREAST CANCER 
In This Issue
Awareness 2012
MBCN Annual Conference
Count US
New Caregiver Group
Upcoming Programs/Conferences

Quick Links


SAVE THE DATE
Join SHARE for an evening at La Palapa
77 St. Marks Place
Monday Dec 3, 2012
5:30 - 7:30 PM
Space is limited. Reserve Today.
For more info:
 
Click Here

To Register:

Call (212)719-2943

 

or Email

 

Click HERE

 

WATCH
The Balancing Act
on Lifetime
to hear Kathy Hynes-Kadish
and Christine Benjamin talk about metastatic breast cancer

Breast Cancer Helpline
212-382-2111  


HABLA CON UNA SOBREVIVIENTE

Llame a la Línea de Auxiliode Cáncer de Seno de SHARE al

(866) 891-2392. Usted podrá hablar con una sobreviviente que tiene cáncer de seno metastático.

 

 

Additional Resources 

Transportation Assistance

ACS Road to Recovery

888-227-6333

 

Medication Assistance

Medication Health Wellness Foundation

800-675-8416

 

The BigAppleRx Prescription Discount Card  

 

Medicare Fundamentals Video  

 

Call The Breast Cancer Hotline For Additional Resources

1-866-891-2392 

 

Join Our Mailing List 
Need Trials?

BreastCancerTrials.org is a non-profit service that is dedicated to providing accurate information about breast cancer clinical trials. 

 

Studies
Genentech and
@23andMe are
partnering on a new
metastatic breast
cancer research
initiative, called InVite.
The study aims to learn
more about how
genetics play a role in
response to treatment.
Click Here for more info. 
 

No Pink Ribbon

Are We Aware Yet 2012 - Views from Women Living with MBC

 

October is upon us again in all of its Pink glory. Well, maybe not. Last year I wrote an article wondering if the pink that surrounds us during the month of October leads to any behavioral changes that might enable one to get an "early diagnosis," for example. Or, maybe all the pink educates us further about breast cancer. I don't think the pink does any of the above. It doesn't teach us that even if a tumor is detected early, there is a 20 - 30% chance the cancer will metastasize. The pink also doesn't tell you that when your cancer does metastasize you can no longer be a part of the pink team. That you are in fact the one the pink is most afraid of.

 

 READ MORE HERE   

Metastatic Breast Cancer Network (MBCN) Annual Conference

MBCN

On Saturday October 13, 2012 (Metastatic Breast Cancer Awareness Day) MBCN held its annual conference in Chicago. The conference is one day long and packed with information covering many topics. There are five general sessions and three breakout sessions.  

 

1. The first general session was given by Virginia Kaklamani, M.D., Associate Professor, Division of Hematology/Oncology at Northwestern and it was entitled, Understanding MBC: How it is Followed in the Clinic and When to Use Standard Care or Clinical Trials.

 

Dr. Kaklamani discussed the definition of MBC, the pattern of spread based on the type of breast cancer, methods of diagnosis and follow up, and clinical trials. She reported on the difference between each phase of clinical trials and gave a list of questions for patients to ask when considering a trial.  

READ MORE HERE   

CountUsBe Counted Today

SHARE has joined forces with other organizations in the breast cancer community to help get at least 3,000 people counted as part of the advanced breast cancer community during the month of October. We need your help to reach our goal! All you have to do is go to:

www.advancedbreastcancercommunity.org and click the Count Me button. You'll be showing support for the thousands of people who are touched by advanced breast cancer. The site offers a wealth of information and tools for those living with advanced breast cancer, their loved ones, and caregivers. We helped shape the newly relaunched site and will continue to support its mission to fulfill the needs of those living with advanced (metastatic) breast cancer.

 

Groups

METASTATIC SUPPORT GROUPS AND HOTLINE INFO

 

ONE-TO-ONE SUPPORT: speak with another woman living with metastatic disease.  Call the SHARE Hotline @ 212-382-2111.

 

TELEPHONE SUPPORT GROUP:  Every Monday, 4-5 PM Click HERE 

 

IN PERSON DAYTIME SUPPORT GROUP: First and Third Thursday of the month.  12-1:30 PM  Oct dates: Oct 18  Nov 1, 15th.   Click HERE  for more information. 

 

IN PERSON EVENING GROUP: LIVING WITH UNCERTAINTY  

Monthly on Wednesdays, 6-7:30 PM.  Nov 7, Dec 5 Click HERE.  

 

NEW GROUP FOR CAREGIVERS

 

This group is for those whose loved ones have been diagnosed with any stage of breast or ovarian cancer.  Caregivers will have the opportunity to share experiences and support each other as they help their loved ones deal with cancer.  Facilitator is the husband of a SHARE participant.   

Monthly on Tuesdays: Nov 13, Dec 11 

 

You must register.  Call the Helpline to register in advance for support groups.   SHARE Helpline: 212-382-2111.

 

In Person groups meet at the SHARE office.  1501 Broadway. Suite 704A, New York, NY 10036.  Broadway between 43rd & 44th Street.  

 

Click HERE  to see additional SHARE programs.   

ProgramsConferencesUPCOMING PROGRAMS & CONFERENCES

 

Call 212-382-2111 to register for all programs. 

  

Living with Metastatic Breast Cancer A Two-Part Series free "Connect" workshop for people living with mbc, their families, friends and health care professionals. 
This is a telephone workshop offered by Cancer Care.
Call 1-800-813-HOPE (4673) or visit www.cancercare.org/connect to register.

Breast Cancer and the Environment Current research about chemicals and radiation that are linked to breast cancer and are in our environment, products and workplaces.
SHARE Office 1501 Broadway #704A
Thursday November 1, 2012 6:00 - 7:30 PM       

VolunteerVOLUNTEERS
Interested in being a Helpline Volunteer or Peer Referral? 

Helpline training is scheduled for Oct 17th and 24th at the SHARE office beginning at 6:00 PM. Contact Donna Faranda to register.  212-937-5577

Mission ABOUT SHARE 

SHARE's mission is to create and sustain a supportive network and community of women affected by breast or ovarian cancer. We bring these women and their families and friends together with survivors to provide participants with the opportunity to receive and exchange information, support, strength and hope.   

 

SHARE provides telephone support, support groups, educational programs and advocacy opportunities.  All services and programs are free.   


Sincerely,

Christine Benjamin LCSW
Breast Cancer Program Director

Cbenjamin@sharecancersupport.org  

212-937-5586