SADS 20th Anniversary Logo

  January 2014

January, 2014 - Some Things In This Issue:
Power Up for Heart Month 2014


February 1st is the kick off for this year's National Heart Month! Initiatives are starting all over the country urging people of the United States to recognize the nationwide problem of heart conditions and to support all essential programs required to solve the problem. While we are still preparing our website ready to feature all of the amazing activities for heart month, we wanted to let you know early about actions you can take to raise awareness for SADS conditions!

Help Power Research on SADS Conditions: Be a part of the patient - powered research movement and join SIRCh today to expand and speed up research on SADS conditions, connect with researchers and clinical trials, and explore what others experience with SADS in a confidential and anonymous way.

Be a Social Media Awareness Expert: Check out the SADS website for information you can share with your family and friends on the world wide web.

Don't forget!
Tell The SADS Foundation about your activities during the month of February by emailing Carol Lai at


Got an ICD? Get Connected! 


California - Lucile Packard Children's Hospital in Stanford is hosting an event on Saturday January 25, 2014 aimed at educating and supporting adolescents and young adults with ICDS and their families. There will be yoga, tai chi, biofeedback, and a keynote address by Dr. Sam Sears. You won't want to miss this!  

Cardiopulmonary Resuscitation Quality: [corrected] Improving Cardiac Resuscitation Outcomes Both Inside and Outside the Hospital: A Consensus Statement from the American Heart Association




The "2010 American Heart Association Guidelines for Cardiopulmonary Resuscitation and EmergencyCardiovascular Care" increased the focus on methods to ensure that high-quality cardiopulmonary resuscitation (CPR) is performed in all resuscitation attempts. There are five critical components of high-quality CPR: minimize interruptions in chest compressions, provide compressions of adequate rate and depth, avoid leaning between compressions, and avoid excessive ventilation. Although it is clear that high-quality CPR is the primary component in influencing survival from cardiac arrest, there is considerable variation in monitoring, implementation, and quality improvement. As such, CPR quality varies widely between systems and locations. Victims often do not receive high-quality CPR because of provider ambiguity in prioritization of resuscitative efforts during an arrest. This ambiguity also impedes the development of optimal systems of care to increase survival from cardiac arrest. This consensus statement addresses the following key areas of CPR quality for the trained rescuer: metrics of CPR performance; monitoring, feedback, and integration of the patient's response to CPR; team-level logistics to ensure performance of high-quality CPR; and continuous quality improvement on provider, team, and systems levels. Clear definitions of metrics and methods to consistently deliver and improve the quality of CPR will narrow the gap between resuscitation science and the victims, both in and out of the hospital, and lay the foundation for further improvements in the future. 


Meaney PA, Bobrow BJ, Mancini ME, Christenson J, de Caen AR, Bhanji F, Abella BS, Kleinman ME, Edelson DP, Berg RA, Aufderheide TP, Menon V, Leary M; CPR Quality Summit Investigators, the American Heart Association Emergency Cardiovascular Care Committee, and the Council on Cardiopulmonary, Critical Care, Perioperative and Resuscitation.




We did it!


thankyou_charity_box_hdr.jpg All of us at the SADS Foundation extend our most       heartfelt appreciation to the loyal and dedicated families, friends, colleagues, and medical professionals who helped us to reach our $75,000 year-end campaign goal! We thank you for your ongoing generous support through your time, talent and treasures. Because of you, the SADS Foundation continues to expand our programs to serve an ever-increasing number of families with SADS conditions. Because of each of you, we support families and save lives!


Happy 2014!


Grant $$$!


Thanks to your help and support we managed to rack up over 820 likes in the Conquest Graphics Grant Contest. We went from being a very late entry into the contest to being in the Top 20 within the first two weeks. Then we soared into the Top 5 no long after that. As a result of your support and "likes" have been awared a grant for $1,000, the largest sum Conquest is awarding! Woohoo! We look forward to putting this money to good use developing materials to further SADS' awareness and education efforts as well as advancing the mission of our Foundation. 

Comcast Newsmaker - President & CEO Alice Lara


If you are in the Utah broadcast area and watch CNN Headline News, be on the lookout for the Comcast Newsmakers spot that will feature our very own President & CEO Alice Lara speaking on behalf of the SADS Foundation about SADS conditions and warning signs. 



 SADS Connect- Join Today!


SADS Connect is a program designed by youth for youth. Through SADS Connect children, teens and young adults can connect with peers, share their stories and ask the questions that are important to them. If you are interested in signing up for SADS Connect (or know a youth that may be interested) please visit this link to learn more. Keep an eye out for the SADS Connect E-news letter- this quarter's edition will be coming soon to all SADS Connect members!


 Connecting Day
1/25/2014 Standford, CA
Upcoming Events
Dance to the Beat
2/7/2014 Perkasie, PA 

Youth Safety Sports Summit
3/10/2014 - 3/11/2014 
Washington, DC 

American College of Cardiology
3/20/2014 - 3/31/2014
Washington, DC 
An Evening with SADS
Washington, DC 


The SADS Foundation

Alice, Carol,  Christine, Shelley, Connie,  Jan, Rachel, Sarah, Grace, David and Brandon