Sudden Arrhythmia Death Syndromes Foundation
In This Issue
Sign a Petition
Wedding Gift Ideas
Climb to Conquer SADS
Phoenix Family Seminar
Sign our petition

Health Care Reform is underway - please support those with genetic conditions. This petition includes the following:

1.  Group and individual health care plans must cover any preexisting conditions.

2. Premiums for health care plans shall not be rated based upon health status, gender, genetic status or claims experience.

3. Free market programs must prevail but all Americans must have access to the same kind of meaningful choices of health benefits plans that Members of Congress, as Federal employees, enjoy through the Federal employee health benefit program.

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Great things are happening at the SADS Foundation!  Please take a few minutes and check out the latest.

Wedding gifts

If you're looking for a meaningful gift this summer, consider a gift to the SADS Foundation. These couples gave a gift on behalf of their wedding guests to the SADS Foundation.  For more unique giving ideas, please contact Laura at

Lucatuorto WeddingAnnie Lucatuorto and cousins

Lisa and Brett gave in honor of Annie

Annie Lucatuorto is one of our favorite success stories! Pictured on the right, the tallest girl, Annie, lives and thrives with Long QT.  Her Aunt Lisa and new Uncle Brett (left) gave a gift in her honor to the SADS Foundation. Annie's family are dedicated to raising awareness and funds.  Click on the photos to read about Annie's amazing fund raising and awareness raising campaign.

Falzon weddingFalzon wedding favors 2

Nicole and Clark remember Brian with a gift

Brian Falzon (the bride's brother) passed away from undetected Long QT at age 19.  The Falzon family has been extremely involved with the SADS Foundation, giving generously of their time, money and expertise.  This couple gave a gift in memory of Brian to the SADS Foundation. Click on the photos above to read Brian's story.

The 3rd annual Climb to Conquer SADS is right around the corner!  Twelve climbers will ascend Mt. Rainier in Washington to raise awareness and funds for the SADS Foundation. 

Please click here to make a donation today!2008 Climb Banner 2

Save the DateCactus

Phoenix Arizona Family Seminar

There will be a Family Seminar on Saturday, August 22nd! Below is a description. Please contact Joanne Robinson at 1-800-786-7723 or to register, or if you have any questions. We hope to see you there!

Cost:        Free (Low cost catered Lunch available for order on your registration form)


When:     Saturday, August 22nd


Time:       9:00 am - 2:00 pm


Who:       SADS Families - Including children 9 and older


Where:   Phoenix Children's Hospital


Meeting activities include:

Diagnostic and Treatment Issues for Long QT  Presenter Mitchell Cohen, M.D., Medical Staff Section Chief, Cardiology, Phoenix Children's Hospital
The Effects of Drugs on LQT  Presenter, Raymond Woosley, M.D., Ph.D, Director Arizona CERT, President & CEO, The Critical Path Institute

Health Insurance Problems, Genetic Testing, and GINA (Genetic Information Non Discrimination Act)   Presenter Joanne Robinson, M.S., Director of Family Services SADS Foundation

After Diagnosis - Panel of Youths & Adults: Examples of how children, teens, adults, and parents adapted to a SADS diagnosis.  Facilitator Dick Stafford, Associate Pastor, North Phoenix Baptist Church

Space donated by Phoenix Children's Hospital



Laura Wall, VP Development & Marketing

SADS Foundation

508 East South Temple, Suite 20

Salt Lake City, UT  84102

SADS Foundation | 508 E. South Temple, Suite 20 | Salt Lake City | UT | 84102