Leading the Way to Save Lives
The Sudden Arrhythmia Death Syndromes (SADS) Foundation is a leader in
education, research and advocacy for families and individuals at risk
for cardiac arrhythmias that can cause sudden death in young people.
I hope your year is starting our with a bang like ours is. Our meeting in New York City was a
wonderful success and we're planning a few
more meetings like it in the future. We also have many support groups forming around the country--including in NYC. Check our website frequently for one in your area: www.StopSADS.org
Federal Stimulus Package Increases NIH Funding for Research
The stimulus package includes an historic
victory for the health of Americans and an
important step towards President Obama's
pledge to double science funding over the
next ten years. We have secured a significant
funding increase of $10 billion for the
National Institutes of Health. We thank the Congress and the Administration for
recognizing that NIH funding can help cure
the economy as well as disease.
Genetic Testing and Blue Cross Insurance
PGx Health and Blue Cross Blue Shield have
entered into a partnership that will make
Familion testing more accessible to the
millions of BCBS members across the country.
The agreement with the Blue Cross and Blue
Shield Association is to offer its genetic
tests for inherited cardiac syndromes to
BCBSA member companies.
The agreement will give BCBSA's 39 member
companies access to the Familion Long QT
Syndrome test. The individual insurers will
be able to independently enter into an
ancillary contract to offer the tests to
Have you successfully appealed a high co-pay
or denial from your insurance for coverage
of: genetic testing, an AED, an ICD, or a
physician specialist for LQTS, Brugada, CPVT, ARVD, etc.? If so, you can help
other families by:
- providing SADS with a
copy of your appeal that we can use as
an example (we will delete any identifying
- be willing to talk with
other families about the appeal process. We
are collecting appeals so we can have a
"library" of appeals to different carriers.
Mail or fax copies to: Joanne Robinson, 508
South Temple, Ste 20, Salt Lake City, Utah
84102; FAX 1-801-531-0945. If you have any
questions or comments contact Joanne at
1-800-786-7723 or email@example.comTips for Dealing with Insurance Claims from our Website
find us on Facebook!
Be sure to get help for your family pedigree from Joanne!
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