May 8, 2008 
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Tony Bennett sings a song about leaving his heart in San Francisco. Well, the SADS Foundation is going there next week to find new heart information!

The SADS office is busy getting ready to go to Heart Rhythm 2008, the Heart Rhythm Society's 29th Annual Scientific Sessions. This conference is a meeting of the world's top cardiac professionals. While there, we will learn about new research and projects that will benefit our SADS families.

And this year we will be even busier than usual! SADS is excited to unveil its new booth, present its first research award, and welcome a new board member, as well as new scientific advisers!

 SADS Sponsors PACES Dinner in Honor of Katherine Timothy

Katherine Timothy On May 14th, the Pediatric and Congenital Electrophysiology Society (PACES) will convene during the HRS conference for a dinner meeting sponsored by the SADS Foundation.

The lecture at this year's dinner will be named in honor of Katherine Timothy, long-time Board member, researcher, and supporter of SADS.

The SADS Foundation would like to recognize Katherine's innovation as one of the researchers responsible for discovering the Long QT gene, as well as co-founder of the SADS Foundation.

Katherine has inspired us all and we are proud to present this dinner in her honor. Thanks Katherine!


 1st Annual SADS Foundation Young Investigator Award

girl with heart SADS is pleased to announce the First Annual SADS Foundation Young Investigator Award in Cardiac Channelopathies. The Award will be presented at the annual PACES dinner, Wednesday May 14th.

The SADS Foundation Young Investigator Award will recognize an outstanding, original academic work in the field of cardiac channelopathies, which has not been published prior to the 2007 Heart Rhythm Society annual meeting, and/or presented in the prior year by a junior investigator.

Information about the recipient and the unique research that was done can be obtained from the SADS website at the end of May.


 Advocacy and Action

Help us declare an official "National Sudden Cardiac Arrest Awareness Week" for the week starting October 5, 2008. Sudden Cardiac Arrest (SCA) is one of the nation's leading killers, claiming the lives of over a quarter of a million Americans each year. Yet it is still not well understood by doctors, researchers or recognized by the general public. And an official awareness week will help open the public's eyes to just how dangerous SCA is. Our website has more info for you on declaring a National SCA Awareness Week.

And, while you're on the website, now that the GINA bill has passed, help us make sure that GINA works for you! Take our new survey about your personal experiences dealing with genetic discrimination.


 SADS Partners with REI for Climb Event
 John Roskelly to speak on May 22nd

Climb Banner The SADS Foundation is proud to partner with REI and climber John Roskelly to highlight the upcoming second annual Climb to Conquer SADS. Mr. Roskelly, well-known adventurer, author and photographer, will speak at the Spokane REI on May 22 about the Climb and his adventures in Bhutan.

Mr. Roskelly and a team of climbers will climb Mount Rainier July 9-12 to raise money for research and efforts to save the lives of children and young adults at risk of sudden cardiac death.

If you are interested in climbing with John Roskelly and/or attending the SADS seminars, please contact us now!


 Your No Ball Invitation

No Ball 2008 Coming to a mailbox near you...

No Ball!

That's right, your invitation to the most anticipated non-event of the summer is soon to be delivered.

Please help the SADS Foundation continue Your contributions to No Ball make our programs possible!

Thank you for your generous support!


 New Board Member and Scientific Advisors

heart graphic SADS also announces the selection of Silvia G. Priori. MD, PhD, associate professor of Cardiology, University of Pavia (Italy) to serve on its Board of Directors.

Since the beginning of her career Dr. Priori has been working actively within the European Society of Cardiology: From 2003 - 06, Dr. Priori served as Chairman of the Guidelines Committee of the European Society of Cardiology. From June 2005 to June 2007, she was President of the European Heart Rhythm Association (EHRA). She has authored more than 241 articles in published in leading peer reviewed medical journals.

The SADS Foundation warmly welcomes Dr. Priori. We're glad you're with us!

SADS is also happy to welcome the following medical professionals as members of its Scientific Advisory Board:
  • Heather MacLeod, MS, GC, from Atlanta, Georgia
  • James C. Perry, MD, from Chicago, Illinois
  • Shubhayan Santani, MD, FRCPC, from Vancouver, British Columbia
  • Phil Saul, MD, from Charleston, South Carolina
  • John Treidman, MD, from Boston, Massachussetts
  • Frank Zimmerman, MD, from Oak Lawn, Illinois


Thanks to all our volunteers for making SADS possible. We are overwhelmed with the support you continually give us...we are honored to have such caring individuals and families helping us.

Thanks again