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E-nnouncement from the National Bone Marrow Transplant Link- September 2015
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Have You Seen Us Lately? Announcing Our Brand New Website! 

 

Our new website was launched last week. Words cannot express the joy and gratitude we feel for all who have helped to make this happen. We especially thank K2 Media LLC in Royal Oak, Michigan who have donated their expertise and valuable time to develop our new website. Please check it out and let us know what you think. The address is www.nbmtlink.org.

 

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Coping with Chronic Graft Versus Host Disease: Telephone Education and Support Group

 

Registration is currently open for a free 4-week Telephone Education and Support Group. (Group fills up fast, so register early!)

Coping with Chronic Graft Versus Host Disease (cGvHD) for the BMT Patient & Survivor is facilitated by Sandra Mitchell, PhD, CRNP, AOCN from the National Institutes of Health. The program will take place 4 consecutive Tuesday evenings starting October 6, 2015 through October 27th, 2015 from 7:00 - 8:30 pm (EST) for 10-12 survivors living and coping with the late effects of cGvHD.

 

If you are interested and can attend all four evenings, contact Cindy Goldman at cindygoldman@nbmtlink.org or call nbmtLINK at 800-546-5268. This program is generously supported by educational grants provided by The Leukemia & Lymphoma Society and The Meredith A. Cowden Foundation. 

nbmtLINK Fundraiser: Detroit Red Wings vs. the Los Angeles Kings
Friday, November 20 at 7:30 p.m.
Joe Louis Arena, Detroit, Michigan
                            
Here is the information on how to get your Red Wings tickets and support nbmtLINK. The National Bone Marrow Transplant Link and the Detroit Red Wings have teamed up for an nbmtLINK Fundraiser!

National Bone Marrow Transplant Link Ticket Pricing
$37- Regular - Rows 13-16
$52 - Preferred - Rows 8-9
 
Tickets include $10 donation back to nbmtLINK!
 
For more information or to purchase tickets, visit our website, www.nbmtlink.org, or visit our Facebook page
or email Peggy at peggyburkhard@nbmtlink.org
Connect With the National Bone Marrow Transplant Link.
 
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New Graft Versus Host Disease Webinar for Health Professionals 
  
Sign up for a free webinar, Coping with Chronic GVHD: Resources for Health Professionals on Wednesday, September 23, from 11:00 a.m. - 12:15 p.m. CDT.
Stephanie J. Lee, M.D., MPH, will discuss the 2014 NIH Chronic GVHD Consortium consensus recommendations for the diagnosis and care of patients affected by chronic graft-versus-host disease (GVHD) and address the impact of chronic GVHD on quality of life. Continuing education credit is available for RNs, social workers, and medical technologists.
Know a colleague who may be interested? Please share the details of this event.

Be The Match
Seattle Genetics Announces FDA Regular Approval of ADCETRIS (Brentuximab Vedotin)
 
This is the first and only consolidation treatment available for Hodgkin Lymphoma patients who are at high risk of disease relapse of progression and undergo an autologous transplantation. The FDA approval was based on data from a phase 3 clinical trial. See press release to learn more about the positive clinical trial results supporting the use of ADCETRIS as a post-autologous transplant consolidation treatment for these patients.
 
 
We Thank Our Distinguished LINK Partners Who Generously Support the Work of the nbmtLINK!

 

Barbara Ann Karmanos Cancer Institute City of Hope Dana-Farber/Brigham and Women's Cancer Center Duke Adult Blood and Marrow Transplant Program Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance Froedtert Hospital and the Medical College of Wisconsin Henry Ford Transplant Institute Loyola University Medical Center Mayo Clinic Cancer Center Memorial Sloan-Kettering Cancer Center The Blood and Marrow Transplant Program at Northside Hospital Oregon Health & Science University Knight Cancer Institute  Roswell Park Cancer Institute  Blood & Marrow Transplant Program, The Sidney Kimmel Center at Thomas Jefferson University Hospitals  University Hospitals Seidman Cancer Center  UPMC Cancer Center  University of Iowa Holden Comprehensive Cancer Center   University of Michigan Comprehensive Cancer Center   University of Nebraska Medical Center and Nebraska Medicine  Vanderbilt Ingram Cancer Center  American Society for Blood and Marrow Transplantation  Be the Match  Center for International Blood & Marrow Transplant Research  The General Motors Foundation  The Leukemia & Lymphoma Society  Meredith A. Cowden Foundation Sinai Medical Staff Foundation Anthem, Inc  Blood & Marrow Transplant Service, Westmead Hospital, Sydney, Australia