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E-nnouncement from the National Bone Marrow Transplant Link -  November 2014
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Voices of Hope & Healing

 

Resource Guide   

 Caregivers' Guide 

 

 Survivorship Guide

 

Online Resources

Understanding & Coping with cGVHD Podcast 

 

Coping with cGVHD Webcast

 

BMT Spouse Webcast 


The Medical Aspects & Management of cGVHD in Children Webcast    

 Families Coping with cGVHD in Children Webcast 

 

The New Normal Video   

 

Support Services

Celebrate Your Transplant 

 

Request Peer Support 

 

NMDP ExploreBMT 
nbmtLINK has partnered with other patient-focused organizations to create ExploreBMT, an easy-to-search online tool that provides direct access to information about blood & marrow transplantation.

Very Last Call for GVHD Book Sponsors


 
 

There is still time for you to be counted among the sponsors of the LINK's upcoming book, Graft versus Host Disease: Living with the After Effects of Bone Marrow/Stem Cell Transplant for BMT patients, caregivers, families, and health professionals. To gain visibility for your BMT Center as a LINK Partner; to honor an individual, memorialize a loved one, pay tribute to a friend, physician or caregiver, please contact Cindy Goldman at 248-358-1886 or cindygoldman@nbmtlink.org. Organizations, Private Foundations, Corporations and Businesses are also invited to be sponsors.
Save the Date, April 24, 2015 for the Meredith A. Cowden Foundation 2015 GvHD Symposium
GVHD National Symposium

 

The Meredith A. Cowden Foundation 2015 GvHD Symposium Planning Committee is pleased to announce the speakers and topics for the one day, dual track conference which will be held at the Embassy Suites in Independence, Ohio.

 

Bruce Blazar, MD; University of Minnesota - Keynote Speaker


 

Sessions for Physicians & Medical Professionals:

Navneet Majhail, MD, MS; Cleveland Clinic - Survivorship

Dan Couriel, MD; University of Michigan Health Systems - 2014 NIH Ancillary and Supportive Care

Steven Pavletic, MD, MS; NIH - 2014 NIH Consensus Updates

Kirk Schultz, MD; U. of British Columbia, Vancouver, Canada - 2014 NIH Consensus and Biomarkers

Kenneth Cooke, MD; Johns Hopkins - Lung GvHD

Hein Duong, MD; Cleveland Clinic - 2014 NIH Consensus Training Course for Practitioners


 

Sessions for Patients, Families and Caregivers:

Lindsay Malone, MS, RD, CSO, LD; Cleveland Clinic - Nutrition & cGvHD

Steve Devine, MD; OSU Comprehensive Cancer Center - GvHD ABC

Brian McMichael, MD; UPMC - Rehabilitation Aspects of cGvHD

Madan Jagasia, MD, MBBS, MS; Vanderbilt University - 2014 NIH Consensus Criteria for Patients and Families

Heidi Adams,President & CEO; Critical Mass: The Young Adult Cancer Alliance - AYA Issues Related to BMT

Meet the Experts - topics to be determined

Cancer and Your Finances, Updated Publication from The Leukemia & Lymphoma Society (LLS) 

 

LLS is pleased to present the following updated publication for patients and caregivers: Cancer and Your Finances in English and Spanish. To view PDFs or order copies of this free publication, visit www.LLS.org/publications or contact an LLS Information Specialist at 1-800-955-4572. 

Online Chats for Patients and Caregivers
    

The Leukemia & Lymphoma Society (LLS) provides weekly online chats where patients and caregivers share experiences and chat with others about anything from the initial phase of diagnosis to treatment and survivorship.

 

The Leukemia & Lymphoma Society's Online Chats are free two-hour live sessions moderated by oncology social workers. The moderator's role is determined by the wants and needs of the participants.


 

To register for one of the chats below, or for more information, please visit www.LLS.org/chat


Living with NHL
 
Monday & Wednesday from 8:00PM-10:00PM Eastern Time

Caregivers
 
Tuesday from 8:00PM-10:00PM Eastern Time

Living with Myeloma
 
Tuesday from 8:00PM-10:00PM Eastern Time

Living with CML
 
Tuesday & Thursday from 8:00PM-10:00PM Eastern Time

Living with Acute Leukemia (New!)
 
Thursday from 8:00PM-10:00PM Eastern Time

Young Adults Living with Leukemia, Lymphoma & Myeloma
 
Tuesday from 8:30PM-10:30PM Eastern Time  

LLS Logo
National Bone Marrow Transplant Link is the featured Organization on ExploreBMT!

nbmtLINK is the featured partner organization on ExploreBMT. Check out this online tool for direct access to a variety of transplant resources from many patient-focused organizations.  www.ExploreBMT.org 
NMDP ExploreBMT     
We thank our Distinguished LINK Partners who Generously Support the Work of the nbmtLINK! If your BMT Center is not a LINK Partner, Please contact myrajacobs@nbmtlink.org (Note: All LINK Partners will be recognized in the new GVHD publication with their names and logos!)

 

Barbara Ann Karmanos Cancer Institute City of Hope Dana-Farber/Brigham and Women's Cancer Center Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance Froedtert Hospital and the Medical College of Wisconsin Henry Ford Transplant Institute Loyola University Medical Center Mayo Clinic Cancer Center Memorial Sloan-Kettering Cancer Center The Blood and Marrow Transplant Program at Northside Hospital Oregon Health & Science University  Roswell Park Cancer Institute  Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center  University Hospitals Seidman Cancer Center University of Michigan Comprehensive Cancer Center  University of Minnesota Medical Center, Fairview  The University of Nebraska Medical Center and The Nebraska Medical Center  Vanderbilt Ingram Cancer Center  American Society for Blood and Marrow Transplantation  Be the Match  The General Motors Foundation  The Leukemia & Lymphoma Society  Meredith A. Cowden Foundation Sinai Medical Staff Foundation  WellPoint, Inc 

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