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E-nnouncement from the National Bone Marrow Transplant Link -  October 2014
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Voices of Hope & Healing

 

Resource Guide   

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Online Resources

Understanding & Coping with cGVHD Podcast 

 

Coping with cGVHD Webcast

 

BMT Spouse Webcast 


The Medical Aspects & Management of cGVHD in Children Webcast    

 Families Coping with cGVHD in Children Webcast 

 

The New Normal Video   

 

Support Services

Celebrate Your Transplant 

 

Request Peer Support 

 

NMDP ExploreBMT 
nbmtLINK has partnered with other patient-focused organizations to create ExploreBMT, an easy-to-search online tool that provides direct access to information about blood & marrow transplantation.

Two Free Apps Help Manage Cancer Symptoms and Coordinate Care


  

Self-Care During Cancer Treatment
Self-Care During Cancer Treatment is an app provided by Empowerment and Action for Cancer Care, an alliance between WellPoint and Genentech. This app provides strategies for managing symptoms of cancer treatment. The app's content is derived from the Michigan State University Symptom Management Guide and Automated Telephone Symptom Management intervention tool.

My Care Plan
My Care Plan is an app version of the Journey ForwardŽ program developed through a collaboration including the National Coalition for Cancer Survivorship, UCLA Cancer Survivorship Center, the Oncology Nursing Society, WellPoint and Genentech. This app provides survivors with a tool to build a survivorship care plan they can share with their providers. The app helps survivors know what to expect or look for when active treatment has ended, including the late- and long-term effects or symptoms and side effects of cancer treatment, and it provides a wellness plan to help survivors remain healthy.

 

Available in the Apple App or GooglePlay Store

Chronic Myeloid Leukemia (CML) The Role of PCR Testing New Video Available Now
LLS Logo

 

The Leukemia & Lymphoma Society (LLS) invites you to learn more about the role of PCR testing and ongoing monitoring for CML. To view the video, click here.

 

If you have any questions, please contact an LLS Information Specialist at phone number (800) 955-4572 (M-F, 9 a.m. to 9 p.m. EST).

Los Angeles, California GVHD Group Meeting at City of Hope 

 

City of Hope patients are invited to attend a GVHD group meeting the next few Tuesdays on fifth floor Helford Activities Room at 11:00 am for one hour. Register by calling Yolanda Patton at (626) 256-4673 ext 68402. Yolanda is a nurse practitioner with much experience of post-transplant issues.

 

CancerCare Upcoming Connect Education Workshops
    

CancerCare invites you to participate in their upcoming Connect Education Workshops™. These workshops are free - no phone charges apply. You can listen to leading experts in oncology provide the most up-to-date information on the telephone or via live streaming. Please feel free to forward to your colleagues or anyone affected by cancer. For more information and to register, please visit the CancerCare  website or call 1-800-813-HOPE (4673). 


11/5      Progress in the Treatment of Myeloproliferative Neoplasms  

11/6      Update on Mantle Cell Lymphoma  

11/11    Highlights of the Affordable Care Act 

11/12    Finding the Resources You Need to Manage the Costs of Living              with MPN

11/14    For Caregivers: Practical Tips to Cope 

11/19    The Role of Exercise, Meditation and Nutrition with MPN

12/16    Overview of Myelofibrosis, Current Treatment Options and                    Quality of Life Concerns

12/17    Update on Lymphoma from the 2014 American Society of                      Hematology Meeting

1/14      Coping with the Stress of Caregiving When Your Loved One                  Has Myelofibrosis

 

Missed a Connect Education Workshop? Listen to past workshops as podcasts through CancerCare's website.

National Bone Marrow Transplant Link is the featured Organization on ExploreBMT!

nbmtLINK is the featured partner organization on ExploreBMT. Check out this online tool for direct access to a variety of transplant resources from many patient-focused organizations.  www.ExploreBMT.org 
NMDP ExploreBMT     
We thank our Distinguished LINK Partners who Generously Support the Work of the nbmtLINK! If your BMT Center is not a LINK Partner, Please contact myrajacobs@nbmtlink.org (Note: All LINK Partners will be recognized in the new GVHD publication with their names and logos!)

 

Barbara Ann Karmanos Cancer Institute ˇ City of Hope ˇ Dana-Farber/Brigham and Women's Cancer Center ˇ Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program ˇ Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance ˇ Froedtert Hospital and the Medical College of Wisconsin ˇ Henry Ford Transplant Institute ˇ Loyola University Medical Center ˇ Mayo Clinic Cancer Center ˇ Memorial Sloan-Kettering Cancer Center ˇ The Blood and Marrow Transplant Program at Northside Hospital ˇ Oregon Health & Science University ˇ Roswell Park Cancer Institute ˇ Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center ˇ University Hospitals Seidman Cancer Center ˇ University of Michigan Comprehensive Cancer Center ˇ University of Minnesota Medical Center, Fairview ˇ The University of Nebraska Medical Center and The Nebraska Medical Center ˇ Vanderbilt Ingram Cancer Center ˇ American Society for Blood and Marrow Transplantation ˇ Be the Match ˇ The General Motors Foundation ˇ The Leukemia & Lymphoma Society ˇ Meredith A. Cowden Foundation ˇ Sinai Medical Staff Foundation ˇ WellPoint, Inc ˇ
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