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E-nnouncement from the National Bone Marrow Transplant Link -  June 2014
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Voices of Hope & Healing

 

Resource Guide   

 Caregivers' Guide 

 

 Survivorship Guide

 

Online Resources

Understanding & Coping with cGVHD Podcast 

 

Coping with cGVHD Webcast

 

BMT Spouse Webcast 


The Medical Aspects & Management of cGVHD in Children Webcast    

 Families Coping with cGVHD in Children Webcast 

 

The New Normal Video   

 

Support Services

Celebrate Your Transplant 

 

Request Peer Support 

 

NMDP ExploreBMT 
nbmtLINK has partnered with other patient-focused organizations to create ExploreBMT, an easy-to-search online tool that provides direct access to information about blood & marrow transplantation.
Hematopoietic Stem Cell Transplant Clinical Trials at National Institutes of Health
NCI Center for Research    

The NCI Center for Cancer Research (CCR) conducts more than 150 cancer clinical trials at the National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland. The Experimental Transplantation and Immunology Branch conducts clinical trials of stem cell transplant-based treatments for several types of cancer, including lymphoma, leukemia, and multiple myeloma, as well as for immune deficiency conditions that may become cancer. For more information, call 301-435-1623 between 9:00 am and 5:00 pm, Eastern time. A branch member will obtain relevant information by phone, may request medical records, and will discuss open trials for which the patient may be eligible. A screening visit is scheduled if eligibility criteria are met. 

 

There is no charge for medical care received at the NIH Clinical Center. You are responsible for travel costs for your initial screening visit. 

 

For more information about CCR Clinical Trials at NIH, click on the Explore the NIH Clinical Center link on the left-hand side of the website.  Click Here.

 

Health Professionals: Your patients can view The New Normal in their hospital room.

 

New Normal DVD  

A number of BMT hospitals currently access the nbmtLINK's film, The New Normal, on their closed-circuit television network. This Emmy Award-winning film tells the story of six transplant suvivors and their families. You can preview a segment by clicking here. This link will take you to our YouTube site. Please contact the nbmtLINK at 800-546-5268 to find out more and to order a DVD of the film.  

New Bone Marrow Transplant Tutorial Module on  the AAMDS Online Learning Center

The new Bone Marrow Transplant Tutorial Module on the Aplastic Anemia & MDS International Foundation website provides visual animation, questions and feedback, to enhance participant understanding of bone marrow transplantation as a treatment option. Available in English and Spanish, this new module is also helpful to family members so they can better understand bone marrow transplantation and provide support for their loved one. Click Here.

 

 

 

Sponsorship Opportunities for New GVHD Booklet!

 

   

 

The nbmtLINK is offering corporate sponsorships of the new Graft Versus Host Disease: Living with the After Effects of Bone Marrow/Stem Cell Transplant booklet. The LINK is publishing this new booklet (due out later this year) in response to patients' and families' expressed need for additional guidance and support in dealing with the after effects of bone marrow/stem cell transplants.

 

For additional information on the sponsorship opportunities with accompanying donor benefits, including your organization's name and logo appearing in the booklet, please contact Myra Jacobs by email at [email protected]  or call 800-546-5268. 

 Be The Match Patient Services
  
Be the Match Patient Services has a team dedicated to helping you find answers. You can turn to them to learn about marrow and cord blood transplant as a treatment option, the overall transplant process, and what to expect after transplant. They are there for you every step of the way, from diagnosis through survivorship. Call Be The Match at 1 (888) 999-6743 or email [email protected] 
  
Be The Match 2013     
We thank our Distinguished LINK Partners who Generously Support the Work of the nbmtLINK! If your BMT Center is not a LINK Partner, Please contact [email protected] (Note: All LINK Partners will be recognized in the new publication with their names and logos!)

 

Barbara Ann Karmanos Cancer Institute � City of Hope � Dana-Farber/Brigham and Women's Cancer Center � Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program � Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance � Froedtert Hospital and the Medical College of Wisconsin � Henry Ford Transplant Institute � Loyola University Medical Center � Mayo Clinic Cancer Center � Memorial Sloan-Kettering Cancer Center � The Blood and Marrow Transplant Program at Northside Hospital � Oregon Health & Science University � Roswell Park Cancer Institute � Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center  University Hospitals Seidman Cancer Center University of Michigan Comprehensive Cancer Center  University of Minnesota Medical Center, Fairview � The University of Nebraska Medical Center and The Nebraska Medical Center  Vanderbilt Ingram Cancer Center  American Society for Blood and Marrow Transplantation  Be the Match  The General Motors Foundation  The Leukemia & Lymphoma Society  Meredith A. Cowden Foundation � Sinai Medical Staff Foundation � WellPoint, Inc �

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