Coping with Chronic Graft Versus Host Disease: Telephone Education and Support Group
Registration is currently open for a free 4-week Telephone Education and Support Group. (Group fills up fast, so register early!)
Coping with Chronic Graft vs. Host Disease (cGvHD) for the BMT Patient/Survivor & Caregiver is facilitated by Sandra Mitchell, PhD, CRNP, AOCN and Mike Krumlauf, RN, BSN from the National Institutes of Health. The program will take place 4 consecutive Tuesday evenings starting April 2, 2013 through April 23, 2013 from 7:00 - 8:15 pm (EST) for 10-12 survivors and caregivers living and coping with the late effects of cGvHD.
The following topics will be discussed:
- Overview of chronic Graft versus Host Disease
- Understanding and Living with chronic Graft versus Host Disease
- Exploring Options for Improving Health and Well-Being
- Facing Forward: Developing Your Personal Plan for Managing chronic Graft versus Host Disease and Living Well
For additional information about the group or to register, contact Cindy Goldman at cindygoldman@nbmtlink.org or (800) 546-5268. This program is supported by educational grants provided by Amgen, the Leukemia & Lymphoma Society and The Meredith A. Cowden Foundation.
It is important to note that these groups are not designed to substitute for medical advice or counseling. They are meant to promote discussion with other transplant survivors and caregivers to enhance positive coping.
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Celebrate Your Second Birthday!
Bone marrow/stem cell transplant survivors celebrate two birthdays each year, the day they were born and the day of their transplant. nbmtLINK would like to help you celebrate what we call your "second birthday" by sending you a colorful card to commemorate the day. If you or your loved one would like to be recognized, please click here to fill out the online enrollment form or call Cindy Goldman at 800-546-5268. Comments from survivors include:
What a wonderful idea to be able to share with others the happiness that only a survivor can feel!
My family has celebrated my 2nd birthday every year - great idea!
My FOURTH (2nd Birthday) is coming up on May 8th. Whoopeee! You can recognize me all you want!
I appreciate opportunities to see new resources and information. Thank you for your work. |
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nbmtLINK Online Updates
1) Lose track of an E-nnouncement? They're archived!
Access previous nbmtLINK E-nnouncements here.
2) "Like" us on Facebook!
Find us on Facebook (www.facebook.com) by searching for "National Bone Marrow Transplant Link".
3) Share this E-nnouncement.
Utilize the convenient "Forward email" link below to share this ennouncement with colleagues, friends, and family. |
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Is your Transplant Center or Organization listed below? Consider Joining our List of Distinguished LINK Partners who Generously Support the Work of the nbmtLINK!
Barbara Ann Karmanos Cancer Institute · City of Hope · Dana-Farber/Brigham and Women's Cancer Center · Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program · Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance · Froedtert Hospital and the Medical College of Wisconsin · Henry Ford Transplant Institute · Loyola University Medical Center · Mayo Clinic Cancer Center · Memorial Sloan-Kettering Cancer Center · The Blood and Marrow Transplant Program at Northside Hospital · Oregon Health & Science University · Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center· University Hospitals Seidman Cancer Center · University of Michigan Comprehensive Cancer Center · University of Minnesota Medical Center, Fairview · The University of Nebraska Medical Center and The Nebraska Medical Center · Vanderbilt Ingram Cancer Center · American Society for Blood and Marrow Transplantation · Be the Match · The General Motors Foundation · The Leukemia & Lymphoma Society · Meredith A. Cowden Foundation · Roswell Park Cancer Institute · WellPoint Foundation
For additional information about becoming a LINK Partner, please contact Myra Jacobs at 800-546-5268 or myrajacobs@nbmtlink.org. |
