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E-nnouncement from the National Bone Marrow Transplant Link -  January 2013
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Voices of Hope & Healing

 

Resource Guide 
 

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Online Resources

Understanding & Coping with cGVHD Podcast 

 

Coping with cGVHD Webcast

 

BMT Spouse Webcast 


The Medical Aspects & Management of cGVHD in Children Webcast  
 

 Families Coping with cGVHD in Children Webcast 

 

The New Normal Video   

 

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Explore BMT

NMDP ExploreBMT

nmtLINK has partnered with other patient-focused organizations to create ExploreBMT™, an easy-to-search online tool that provides direct access to information about blood and marrow transplantation.

 

Start your search today at ExploreBMT.org

 

   

 

 

 

 

 

 

 

  

 

 

 

 

 

 

 

 

 

 

 






 

The National Bone Marrow Transplant Link (nbmtLINK) is pleased to inform you about the following programs, services, and publications. For your convenience, we've placed a number of helpful links on the left-hand sidebar.

Hear Voices of Hope and Healing with New Online Audio!

 

It makes a difference to patients and their families to hear firsthand how transplants have affected the lives of others and how survivors make it through the many challenges to create a rich, rewarding, post-transplant life. Special thanks to Char DeWolf, Sue Markx, and Stewart Francke, who generously donated their time and talent to this project! Pulled from our popular Voices of Hope and healing booklet, the audio may be accessed on our website or by clicking here.   

National Bone Marrow Transplant Link to Exhibit at the 2013 BMT Tandem Meetings
 

The combined annual meetings of the American Society for Blood and Marrow Transplantation (ASBMT) and the Center for International Blood & Marrow Transplant Research (CIBMTR) will be held February 13-17 at the Salt Palace Convention Center in Salt Lake City, UT.  For those of you who are professionals, whether working in Adult or Pediatric BMT, Physicians, Nurses, advanced practice professionals, Pharmacists, Administrators, Coordinators, and Investigators, please be sure to visit nbmtLINK's exhibit at booth #319. Myra Jacobs, Founding Director, will be there to greet you!

New CML Tracker from The Leukemia & Lymphoma Society
  
Treatment adherence is key to managing CML. My CML Tracker from The Leukemia & Lymphoma Society can help.
My CML Tracker is available for PCs, smart phones and tablets. It gives CML patients the option to set up daily email and/or text medication reminders. Visit www.CMLTrackerLLS.org to learn more (click on My Medications and Add a Medication or Edit Entry).

 

CML patients can also download the free CML Tracker Recorder app to access questions saved in their Tracker and then record and playback healthcare providers' responses. For more information about CML or other LLS programs and services, contact an LLS Information Specialist at (800) 955-4572 or infocenter@LLS.org.

 

Thank you so much to those who have contributed to our annual fund drive!

 

When you are making a tax-deductible contribution to the nbmtLINK, please consider a tribute gift to honor a loved one or recognize a special event -- a special birthday or transplant anniversary. A personalized acknowledgment will be sent to the individual or family specified by you.  To make your tax-deductible gift online, please click here  

  

For the nbmtLINK's 2012 Year-End News Update, please click here.

For the 2012 Annual Appeal letter, please click here.

Keep Up To Date on nbmtLINK Programs & Publications!

Please keep your staff and patients and families informed about nbmtLINK's programs and latest publications by distributing copies of our agency brochure.  Please click here for a copy of the brochure or contact Cindy Goldman at cindygoldman@nbmtlink.org if you need further information.

 

Are you an adult who has had an allogeneic transplant, or are you the caregiver of someone who has undergone this treatment?

  

Researchers at the University of North Carolina at Chapel Hill are preparing to develop resources to help adult allogeneic stem cell transplant recipients and their caregivers. Their goal is to make post-transplant recovery easier and less stressful, and to help people get back to normal after transplant. They have developed a brief survey that asks transplant recipients and caregivers to provide feedback on the biggest challenges to having a healthy recovery after hospital discharge. They also want to know what kinds of resources would make recovery easier and less stressful. If you would be willing to provide feedback on these issues, please click on the link below. It will take you to the survey, which will take 10-15 minutes to complete. Your responses will be completely anonymous. If you have any questions, please contact Christine Rini at 919-843-6580 or christine.rini@unc.edu.

 

Go to Your Anonymous Survey Link here. 

Join our List of Distinguished LINK Partners who Generously Support the Work of the nbmtLINK!

 

 

Barbara Ann Karmanos Cancer Institute · City of Hope · Dana-Farber/Brigham and Women's Cancer Center · Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program · Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance · Froedtert Hospital and the Medical College of Wisconsin · Henry Ford Transplant Institute · Loyola University Medical Center · Mayo Clinic Cancer Center · Memorial Sloan-Kettering Cancer Center · The Blood and Marrow Transplant Program at Northside Hospital · Oregon Health & Science University · Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center· University Hospitals Seidman Cancer Center · University of Michigan Comprehensive Cancer Center · University of Minnesota Medical Center, Fairview · The University of Nebraska Medical Center and The Nebraska Medical Center · Vanderbilt Ingram Cancer Center · American Society for Blood and Marrow Transplantation · Be the Match · The General Motors Foundation · The Leukemia & Lymphoma Society · Meredith A. Cowden Foundation · Roswell Park Cancer Institute 

 

For additional information about becoming a LINK Partner, please contact Myra Jacobs at 800-546-5268 or myrajacobs@nbmtlink.org.

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