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Understanding the New Directions Waiver
ARCHway's website explains Maryland's New Directions Waiver. It gives examples of services and a checklist for choosing a residential service provider. This is a must read for families of transitioning youth. Visit the website here.
ARCHway is project of the Foundation for Autism Support and Training (FAST). It is a roadmap for lifelong person-centered planning for adults with Autism Spectrum Disorders (ASD).
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Wrightslaw Offers Videos
Pete and Pam Wright are offering free videos on specific special education law topics on their YouTube channel. The latest one is on the US Dept of Ed revised IDEA 2004 access to Medicaid benefits provision of the special education regulations.
 | | Wrightslaw IDEA Reg Revised |
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New Staff at PPMD
We welcome two new staff member at the Parents' Place.
Pattie Archuleta joins us as the new Family-to-Family Health Information Center Coordinator. Pattie provides support and training to families of children and youth with disabilities and special health care needs. She also provides services to the professionals who work with these families. You can reach Pattie at pattie@ppmd.org.
Val Englert joins us as the Communications Coordinator. Val will be responsible for PPMD events, social media, and the website redesign. She wants your feedback and ideas for how to improve our Facebook postings and our web site. You can reach Val at val@ppmd.org.
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Family Perspectives on Health Care Transition
Have questions about health care transition? The Exceptional Children's Assistance Center in North Carolina offers a video series (5 videos) that provide information about key topics related to health care transition.
 | | Part 1 of 5 Family Perspectives on Health Care Transition |
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Register Today: Free Healthcare Transition Conferences
Join The Parents' Place of Maryland and DHMH's Office for Genetics and People with Special Health Care Needs for a full day, FREE conference for parents and youth! Teens with special needs between the ages of 13-18 are invited to attend with a parent. Providers are also invited to attend.
These conferences offer information, ready-to-use planning tools and resources for youth, families, and providers to make the health care transition process easier and less overwhelming. Light breakfast and lunch are included. Topics will include social security benefits, health insurance, guardianship, healthcare transition in the IEP, and self management skills for transitioning youth.
Two conferences are sheduled. All are 9:00am - 4:00pm.
APRIL 13, 2013 Southern Maryland Higher Education Center
The conferences are free, but you must pre-register. Visit the www.ppmd2.org for more information and to register.
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Pathways to Financial Hardship for Families

The infographic above outlines the pathways to financial hardship for families of children with special health care needs. The information is from The Catalyst Center's publication Breaking the Link Between Children's Special Health Care Need and Financial Hardship which describes the three distinct "links" between children with special health care needs and family financial hardship. This publication provides policymakers and advocates with examples of proven strategies and policy solutions that can reduce the impact of medical debt and underinsurance.
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Stop Bullying Website Now In Spanish
The U.S. Department of Education has launched a Spanish-language website providing resources to teachers, parents, and community leaders to prevent bullying. The website is http://espanol.stopbullying.gov and is similar in content to its English-language counterpart, www.stopbullying.gov. This website is an important reminder of the intersection between challenges school districts face in addressing bullying and challenges they face in communicating effectively with Limited English Proficient (LEP) students and parents about important issues. Schools with large populations of parents and students with LEP should take steps to address bullying and provide bullying prevention education resources in relevant languages as well as in English.
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Special Topics Workshop
Maryland's Connections Beyond Sight and Sound and the District of Columbia's Deaf-Blind Project present:
Sensory Integration and Feeding Challenges for Children with Complex Needs
April 10 & 11, 2013
Double Tree/BWI
890 Elkridge Landing Road
Linthicum Heights, MD 21090
Speakers:
Marsha Dunn-Klein, MEd, OTR/L
Mealtime Connections
Tucson, Arizona
and
David Brown
Educational Specialist
California Deaf-blind Project
Registration Fee: $35 per day/$70 for both days
No registration fee for families.
Deadline to register: March 29, 2013
For more information or to register, download the brochure here.
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Save These Dates!
March 10, 2013
Workshops: Life After High School Panning in the IEP & Special Education What Parents Need to Know
10:00am - 12:00pm
Owings Mills, MD
March 10, 2013
12:00pm - 3:00pm
Timonium, MD
March 16, 2013
Citywide Forum for Students with Learning Disabilities Planning to Attend College
9:00am - 1:30pm
Baltimore, MD
March 23, 2013
Caring for People with Special Needs
9:00am - 4:30pm
Bel Air, MD
April 20, 2013
Around the World of Special Education
8:30am - 3:30pm
LaVale, MD
April 20, 2013
8:00am - 3:15pm
Seat Pleasant, MD
There are a lot of new workshops and training events on our calendar! Be sure to check the PPMD online calendar for time, location, and registration information for these and many other training opportunities. www.calendarwiz.com/ppmd
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St. Mary's County Accepting Nominations for Disability Awards
The function of the awards program is to promote awareness and the outstanding efforts of individuals and organizations that improve the quality of life for persons with
disabilities in St. Mary's County. Six awards will be issued annually, in July in celebration of the signing of the Americans with Disabilities Act. The deadline is June 1st each calendar year for submission of candidates.
Anyone from St. Mary's County is eligible. Visit the Commission for Persons with Disabilities website for more information.
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Affordable Care Act Resource
The Arc of the United States has put together a 16 page brochure explaining the Affordable Care Act and what it means for people with disabilities and their families.
Numerous ACA provisions related to both acute care and long term services and supports hold great promise for improving the health and well being of people with disabilities. This issue of National Policy Matters provides information about the major provisions and the status of their implementation. You can access the entire document here.
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The MOST Network
The Maryland Out of School Time Network is comprised of community members and groups campaigning for expanded funding, more effective policies, and increased program quality to ensure all young people in Maryland have access to activities in the out of school hours that enable them to achieve in all stages of their development. The network provides a place to exchange information, test out new ideas, share best practice information, and develop and implement a movement that successfully convinces policy makers to make the network's goals a reality.
The network defines "Out of School Time" opportunities as the activities provided at all times when school is not in session. These activities will serve youth ages 5-19 year old (in school and out of school). The activities provide safe places, encourage academic success, develop youth leadership, and nurture talents and interests so that young people can achieve in their own unique ways. |
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