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October 2012

This month we share a cautionary tale and personal stories related to Hepatitis C.  The virus, often an additional burden for those with HIV/AIDS, is also shared by millions of others, completely unaware.

 

But first, as always, many thanks to everyone who helps sustain the work of The Wright House Wellness Center, including our most recent supporters:

boon

Thanks to the The Boon

Group and IOU BBQ for a tasty BBQ with all the trimmings to benefit The Wright House!

iou bbq

 

LOOK WHAT YOU MISSED!

A performance by the newly minted One Ounce Opera was met with rousing cheers at a recent benefit for The Wright House.  Fabulous, crowd-pleasing performances-beloved favorites, some naughty interpretive translations, solo arias and ensemble selections-this group can do it all.  We are so fortunate to have had them make the night a special one for all!opera

rustysThanks to Rusty's, Rob Faubion, Brian Alford, all the generous Helpers, Hosts, Entertainers, Silent Auction Donors and Buyers ant the 2nd Annual Violet Crown Cotillion benefiting The Wright House!    

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ANNOUNCEMENT

Vincetta Green Vincetta Green of will speak at the 2012 Texas HIV/STD Conference (October 28-31, 2012 in Austin, Texas). The topic is Methods and Strategies to Successfully Integrate HIV Testing and Prevention in an African American Faith-based Environment.  Speaking with Vincetta will be Christina Camacho, LMSW; Vincetta Green; and Gretchen Hinkle.

HEPATITIS C VIRUS (HCV) - JUST THE FACTS

A contagious blood borne liver disease - No vaccine - No early warning signs - Causes cirrhosis and 

hcv

liver cancer - Can take decades to cause serious liver damage - 4 million are affected by HCV in its chronic form of whom 70% will develop liver disease  - million have HCV and do not know and about 300,000 of those people are Texans - HCV is transmitted primarily through infected blood, organ transplant, sharing infected needles, much less so by sexual contact - More people die from Hepatitis C now than from HIV, 8-10,000 annually, expected to triple in 10-20 years - Hepatitis C is the major reason for U.S. liver transplants - Some treatments work for some people, but a more certain cure has yet to be developed.  Read on for some personal success stories. 

love that liver
 
Your liver is your body's internal alchemis
t, changing the nutrients in food to muscle, energy, manufacturing hormones, blood clotting and protective immune factors.
boomers beware
Seriously.  The Centers for Disease Control recently recommended All Baby Boomers
(born 1946-1965) be tested for Hepatitis C. Almost three-quarters of HCV-related deaths 1999-2007 occurred in the 45-64 year-old age group.  Hear and read the NPR story

ARE YOU FORWARD THINKING? 

What if we all forwarded the newsletter to 5 people?  How many could we reach?

 

HOUSING HELP                                       

...individuals with Hepatitis C having housing issues are invited to call about our Best Single

Source Plus (BSS+) program to see if they qualify for assistance. Specific eligibility requirements apply. 

DID YOU KNOW?

Hepatitis C Virus has overtaken HIV as a cause of death in the US (Annals of Internal Medicine, February 21, 2012, 156(4), pp. 271-8).

 

CHECK INTO A TRIAL

ctcr

Our good friends at Central Texas Clinical Research run compensated HIV-related and other trials.  Check out current opportunities, including upcoming Hepatitis C studies.

Connect on 

WE ARE HERE FOR OUR CLIENTS.  ARE YOU HERE FOR THEM?

BIASeal4


Please donate to benefit our clients, support the work of The Wright House Wellness Center and to help us strengthen and grow our organization so we can serve more than the 4,000 individuals we did in 2011.  Click on the seal to the right to donate.

stuck

Don't use drugs.  Seek help. Don't share needles or paraphernalia. Be cautious about body piercing/tattooing.  Find a reputable shop. Ask how the equipment is cleaned. Make sure sterile needles are used. If you don't get answers, find another shop! Practice safer sex if you choose to have sex. Don't have unprotected sex with multiple partners or with any partner whose health status is uncertain.   

A MOM'S CAUTIONARY TALE

 

mom I'm sure you have noticed that people of all ages are sporting body art, with designs ranging from a single piece to a full "sleeve," where tattoos completely cover one's arm. A 2010 Pew Research Center report tells us that 38 percent of Americans ages 18-29 have tattoos. Studies also show that people with tattoos were almost three times as likely to have hepatitis C as those without tattoos, which doesn't suggest that "inking" is the cause of the virus but does indicate a strong association between the two.

 

Imagine the shock when my son showed me the amateur tattoo a friend had made on his inner forearm. It was poorly done and superficial, and it brought me to tears when I saw the design: the word "mom" enclosed in a heart. He assured me that the ink and needle were taken out of the package while he watched. This was more than a lapse of judgment that could possibly infect him with hepatitis C. This tattoo could actually cause him to be reinfected, since he had cleared the virus in 2006 after I infected him. It's not determined exactly when a mother passes the virus on to her child; it could happen in utero, during birth, while nursing or some other blood to blood contact.                                         MORE

 
HAVE YOUR TATTOO AND STAY SAFE, TOO - JUST IN TIME FOR HALLOWEEN!
chanel

Initially popularized as inserts in bubble gum, temporary tattoos are another  way to have some low cost/no risk fun 

sleeve

with tattoos.  Even Chanel, the fashion house, has offered them (see Ebay).  Or you can sport a faux pull-on  nylons mesh tattoo sleeve with printed design as seen at Party City. 

emily1FREE AND CLEAR

Emily, former client/volunteer/staff

  

"I don't know how I would have gotten through this without The Wright House." 

 

After a tough time getting sober and leaving long term IV drug use behind, Emily first came to The Wright House in 2007.  Diagnosed with HCV (Hepatitis C Virus) on getting sober, she qualified to receive acupuncture at the only agency in Austin that did anything for people with Hep C at the time.  She found that treatment helped with liver support; with a significant viral load, she had still escaped without significant liver damage.   

 

But Emily had as much to offer us as we could provide for her! She became a volunteer, working tirelessly as an administrative assistant, but says she eventually talked us into giving her a job.  And not without good reason.  She brought a Master's Degree in Latin American Studies from UT, completed after getting sober.  She spoke Spanish and had experience with Hispanic transgender sex workers; we needed someone who understood transgender issues and had experience working in this area and was concerned people with HIV and high risk behaviors.  She says we took a chance on her.  See what you think....                           MORE

 

watch party
About Us

The philosophy of The Wright House Wellness Center is to help people living with or at-risk for HIV/AIDS and/or hepatitis C make healthier life-style choices, employ complementary/holistic health therapies to delay illness, and contribute back to the community.

 

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ELDERLY LOVED ONE WITH DIABETES COULD BE AT RISK FOR HCV  

Likely your long term care facility or glucose testing center follows procedures to avoid transmission of viral hepatitis.  But the CDC (Centers for Disease Control) has found outbreaks in long term care facilities.  Advocate for your loved one's care and monitor the handling of glucose testing and insulin delivery.  Ask questions.  Testing equipment and insulin pens shared between individuals creates risk of sharing viral hepatitis.  More Info

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TATTOO A CAUTIONARY TALE continued

The treatment regimen wreaked havoc on our health (I cleared the virus in 2005) and on our family. The guilt of having caused my son to go through it made it harder for me to heal. The thought that my son might have to suffer through this again is devastating. While we await his annual blood work results to assure he hasn't been reinfected, my hope is that others will learn how to prevent the chance that this could happen to them.

 

Hepatitis C Reinfection

If you become infected with hepatitis C infection and then clear the virus, it is still possible for you to become infected again. The chance of another infection with hepatitis C (reinfection) is much, much less than the chance of a first-time infection, but it is not impossible. Having had hepatitis C once does not make you "immune" from getting hepatitis C again. Research is ongoing, but for now, preventing re-exposure to the hepatitis C virus is the only sure way of avoiding infection and reinfection with hepatitis C.

 

Safe Tattooing Guidelines

Never get a tattoo anywhere except in a clean, reputable tattoo shop. Remember, the amateur tattoo is not only permanent, so is the hepatitis C you may contract from dirty equipment. A clean shop should have several sanitary measures in place to ensure a safe procedure. For example, artists should be gloved and needles should be new and taken out of a sealed package right in front of the client. Inks and any other equipment should also be new. All needles should be run through an autoclave, an equipment cleaning machine which utilizes steam and pressure to sterilize equipment. The work area will likely be separated from the shop and should be sanitized after every use.

 

Some questions to ask include:

  • Does the artist wash his or her hands?Though artists should always wear gloves, they must also wash their hands before putting gloves on and after taking them off. Make sure they do not re-use the gloves.
  • Is the equipment sterilized? Sterilized is different from being clean. By wiping over something with a towel, the instrument will look clean, but it could still be infectious. Sterilization involves applying chemicals or heat, killing bacteria and viruses.
  • Are work surfaces clean? Make sure the work area is cleaned and sterilized. You don't want your clean tattoo needle to be exposed to germs from the table surface or other equipment.

Prevention Practices

Because the risk of tattoos causing hepatitis C is so prevalent, infection-control guidelines for tattoo artists and clients, and enforcement through inspections, reporting of adverse events and record keeping are vitally important. Prevention programs should focus on young people who are most likely to get tattoos as well as prison inmates, who live in environments with a higher prevalence of hepatitis C. 

 

For now, my son's tattoo is here to stay. I once thought that the hepatitis C virus I gave him through birth might be permanent, and never thought he might have to repeat the treatment that cleared the virus in 2006.  Now I realize the dangers associated with tattoos and the possibility of reinfection, especially when you're dealing with the teen-aged mindset. To avoid first or subsequent infection from amateur, unsanitary tattoo practices; make sure the teens and young adults in your life are aware of the risks and to always follow safe tattooing guidelines.

 
For information about the Hepatitis C virus, click HERE.

 

Back to Top  

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emilyFREE AND CLEAR continued

Hired to work with Spanish-speaking clients part-time, Emily quickly acquired a full portfolio and

began working full time.  Through self-study on her own time, she also developed HCV resources and became a fantastic internal reference on the disease and treatment.  Researching for others, she found and entered a drug study, getting the one treatment that can help rid the body of HCV.  As it is a long term and difficult process, not always successful, Emily counts herself "lucky to have been working at The Wright House.  Everyone was so supportive; Leah Graham [Executive Director] and Michael Laster [her Case Manager and supervisor] were completely understanding, never judgmental. It was wonderful, therapeutic to be able to work with clients at the same time."

 

Working with Casey Nelson of Austin Travis County Integral Care - CARE Program at the time,
Emily co-founded a still ongoing interagency Support Group for those with HCV.  Casey had social work/public health experience and degrees, while Emily facilitated the Group, developing relevant activities at the time she herself was undergoing her interferon regimen. "It was great to be able to get others to talk about their concerns and fears, especially around treatment; to tell them--I am doing it and you can too."

 

It was "kind of rough" but now Emily is hardly detectable.  She still tests annually.  Feeling healthy enough to pursue her dream of law school, she left The Wright House in 2011 to study at Northeastern in Boston, a top-ranked public interest law school.  And she is eyeing a dual degree in public health at Tufts.   

 

Emily left The Wright House Wellness Center much-enriched in its ability to assist those with Hepatitis C and we are grateful.

 

EMILY'S PREQUEL

A long term IV drug user, Emily tells us her mother had bailed her out a number of times-many times-before finding a center in Pennsylvania and convincing Emily to go for help.  While she wanted to leave prior to completing finishing treatment, she was convinced to stay.  And this time it worked.  She made a commitment to sobriety and began to deal with her issues.  That brought her to The Wright House.

 

EMILY'S SEQUEL

She still goes to regular meetings and has a sponsor. She admits she has a problem and knows she must continue to do this to see continued success in her life. She repeats the steps, using the tools she learned. Emily both has a sponsor and is a sponsor, finding it a "matter of survival," but in truth, she is thriving.

 

She is planning to take part in a National Court Competition focused on gender and sexuality at UCLA and hopes to edit a documentary on AIDS prevention and education for a nonprofit in Providence, Rhode Island for young Spanish-speaking sex workers there. 

 

Emily feels strongly that "very good people can do very bad things" and she "believes in second, third, ninth, twelfth chances."  She seeks a project humanizing young people who engage in behavior that makes others consider them less than deserving of another chance for change. 

She got that chance and wants others to have it too.