Fight CRC
October 2013
Seven Years...   
 
Carlea with her family ringing the NASDAQ bell in March 2013
Carlea and family ringing the NASDAQ bell 
in March 2013

August 2006 seems so long ago sometimes.

 

 

But other times, it feels like it was just the other day.

 

It was in 2006 that Carlea Bauman began leading the Fight Colorectal Cancer team as its first executive director. With a passion and vision, she led the organization to accomplish amazing things like:

  • Led the revenue growth from $340,000 in 2006 to $1.3 million in 2013.
  • Grew Call-on Congress from 36 advocates in 2007 to 89 advocates in 2013.
  • Strategically grew the database to 30,000 contacts interested in colorectal cancer.
  • Set the course of legislative direction to unify our voice on the Hill.
  • Successfully re-branded the look and feel of the organization to reflect our advocates' desire to fight for a cure.
The way she's impacted this organization is beyond measure. And as she put it to our staff, donors and advocates this week, "We've become family."
 
To learn more about Carlea's transition, please read her blog post and the official press release.
 
We will miss her and wish her the very best but know that she'll always be behind a cure with us.

 

     fight-crc-policy-update

NEXT WEEK:

 

The Healthcare Marketplace Opens Oct. 1

 

Here is the number to call to enroll:

1-800-318-2596

 

Here is the website for more information:

healthcare.gov

 

Here is our Answer Line if you need to be pointed in the right direction:

1-877-427-2111

Email the Answer Line

 

On Oct. 1, the new Healthcare Marketplace will open. Americans eligible for coverage through the new health exchanges will have the opportunity to enroll in a health plan. Open enrollment will run from Oct. 1 through March 31, coverage through the new plans will be effective Jan. 1, 2014.

 

 

As with any new rollout, we anticipate many questions, calls and feedback. Fight Colorectal Cancer is a Champion for Coverage and can put you in touch with the right avenues so you can find out how the new healthcare exchanges work and how they apply to you. Please contact our Answer Line for one-on-one assistance.

fight-crc-research-update

 

Xeloda goes Generic

 

The FDA recently approved a generic form of the oral chemotherapy pill Xeloda, a drug often used to treat late-stage colorectal cancer that has metastasized. 

  

Read more about Generic Xeloda on our blog. 

  

Virtual Colonoscopy

 

We submitted comments to the Food & Drug Administration (FDA) earlier this month regarding virtual colonoscopy (CTC.) We're thankful for the opportunity to offer the patient voice and the FDA's interest in this topic. 

  

Read more about our thoughts on Virtual Colonoscopy on our blog.

 

 

Learn About Targeted Therapy

 

Our webinar "Pathways & Targets" by Dr. Gail Eckhardt gave patients a GREAT overview of some of the ground-breaking research happening to treat colorectal cancer. Dr. Eckhardt encouraged patients with information like:

  • Types of clinical trials being conducted
  • What has and has NOT worked in clinical trials
  • An overview of biomarkers 
  • An explanation of KRAS testing
  • Encouragement to patients on working with medical teams to determine treatment plans
  • Ideas for finding clinical trials
  • Advice on partnering with physicians and asking questions about alternative treatments, diets, vitamins and more.
Miss the Webinar? No worries.
Review the slides and watch a recording of the presentation. 

 

 

fight-crc-community

Have we mentioned that our advocates will climb mountains for colorectal cancer? 

 

Check out the shots that Lameck Odero sent us - he's taken One Million Strong to new heights. We're talking MOUNT KILIMANJARO heights! Thanks to Lameck for spreading awareness around the WORLD! 

 

Lameck-kili  

 

 

OMSinKenya  

Lameck-climb  
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In This Issue
UPCOMING WEBINAR
Peripheral Neuropathy
What happens when patients experience peripheral neuropathy and tips on managing this often uncomfortable side effect of chemotherapy. 

 
Wed., Oct. 16, 2013 
8 - 9:30 PM EDT

WHERE'S THE FIGHT?

New York City
Sept. 28
We'll be at the OMG2013 east/nyc Stupid Cancer event in New York City meeting other young survivors and representing colorectal cancer. Stop by and look for advocate Kim Hall-Jackson! 
  
Kansas City
Oct. 6-7
We're headed to the Midwest for the 2014 One Million Strong photo shoot this year and to pilot our Town Hall Meeting. If you'd like to join us for the Town Hall Meeting on Mon., Oct. 7 at Gilda's Club Kansas City at 6:30 p.m. please email Emily

 

Miami
Oct. 11-12
Fight Colorectal Cancer's Nancy Roach and several advocates will be attending the CCA National Conference this year. Plus, our friend Rodrick Samuels is speaking! Look for our team and materials when you're out and about!
 
Kansas City
Oct. 13
The Andrew J. Somora Foundation, one of our Town Hall Meeting sponsors, will be hosting a 5K in the North Kansas City area. Learn more and register! 
 
 
New Jersey
Nov. 9
Join advocates Eric and Rose Hausmann at the annual "Friends of Rose" Co-ed Softball Tournament, a fundraiser for Fight Colorectal Cancer. Learn more!

 

Washington, D.C.
Nov. 22
Fight Colorectal Cancer staff will be among others within the colorectal cancer community at the National Colorectal Cancer Roundtable (NCCRT) event where we'll represent advocate voices and build unity among all groups working to find a cure for colorectal cancer.
QUOTE OF THE MONTH
When Mrs. Lisa Niemi Swayze (widow of actor Patrick Swayze) spoke on the impediment sequestration has on medical research at the Sept. 17 Rally for Medical Research, she thought about how her Texan husband would have addressed the topic and in a slight drawl simply said:
 
"Sequestration is like castration."

PLAN AHEAD...

save-the-date-conc2014  

 

Go ahead and plan NOW to attend the 2014 Call-on Congress.
 
Ask for a trip to Washington, D.C. for the holidays.
 
Put it on your bucket list!
 
Plan to come NOW! 
 
2014 Call-on Congress
Washington, D.C.
March 16-18, 2014

ADVOCATES ON FACEBOOK

change-policy
GET REAL-TIME ADVOCACY UPDATES, NEWS, PHOTOS AND MORE.   

GETTING BLUE ON ESTY...

 
Advocate Casey Dalton recognized that life is short, sweet and full of moments worth dancing to. That's why she recently opened up Blue Ribbon Dresses - an ETSY boutique selling everyday princess dresses for little girls.
 
There wasn't a better way for Casey to remember her mom, who taught her how to sew, and raise funds in her memory for colorectal cancer.
 
snow-white-princess-dress
 
Stop by Casey's ETSY store, Blue Ribbon Dresses, and see the magical creations she's whipping up. 
 
Part of the proceeds will be donated to Fight Colorectal Cancer!

COMING SOON...



red-curtain

new Fight Colorectal Cancer website will be making its big debut in October!

Be watching Facebook and Twitter for the big reveal! 



Can't get enough of Fight Colorectal Cancer? Make sure to sign up for all of our newsletters and follow us on social media! Check out the archives if you've missed any news!

Thank you,

Carlea Bauman
President of Fight Colorectal Cancer

Fight Colorectal Cancer demands a cure for colon and rectal cancer. We educate and support patients and caregivers, push for changes in policy that will increase and improve research, and empower survivors to raise their voices against the status quo.
Fight Colorectal Cancer | 1414 Prince Street, Suite 204, Alexandria, VA 22314  | 703-548-1225
info@FightColorectalCancer.org | Website

Copyright 2013 Colorectal Cancer Coalition, Inc. All Rights Reserved.