Fight CRC
August 2013
I Should Feel Happy...   
 
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Kansas City advocates Julie Somora Thomas and Ginny Goddard

Many of us face that moment. We finally reach the end of treatment or our loved one gets released from the hospital. Hopes of joyful celebrations are soon overshadowed by one thing:  fear.

 

From the fright of losing the "treatment security blanket" to the agony of dealing with cancer's overwhelming emotions, it's not uncommon to be down throughout the cancer journey.

 

"Is it normal that I'm sad although my treatment ended?" and "Where can I find support?" are just two of the many questions we get at our Answer Line, topics we blog about and reasons we do what we do at Fight Colorectal Cancer.

 

We're not only here to offer resources, information and advocacy opportunities. We're here to let you know that yes, you're normal. This disease is hard. And that there are those of us out there working every day to make it better. 

 

Enjoy this update from your team at Fight Colorectal Cancer. 

 

     fight-crc-policy-update

In July, Fight Colorectal Cancer advocates took to the Hill again to advocate for medical research funding as part of One Voice Against Cancer.

 

Four advocates from our team joined our policy expert Camille Bonta and participants from 19 other organizations who met with elected officials totalling 142 meetings at the end of the day. 

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Advocates (from left to right) Rochelle, Josh, Belle and Dan
Our advocates met with representatives and asked for an end to sequestration, a stop in the cuts to cancer research funding and increased funding for the fight against cancer.
 
>> Click here for an advocacy update detailing specifics about:
 
- Meeting with Kathleen Sebelius, HHS Secretary, regarding Affordable Care Act
 
- OUR ASK for new clinical trials coverages
 
- An overview of The Future of Cancer Screening:  Public Health Approaches, a meeting hosted by the Centers for Disease Control and Prevention.
 
- An update on H.R. 1070 co-sponsors & WHO WE NEED to help us.
 
- Senate appropriators restore medical research funding!
 
- The house protects an important program we ADVOCATE FOR - the Peer Reviewed Cancer Research Program (CPCRP)
 
fight-crc-research-update

 

Are you intimidated by research? Think that only scientists can give input to the world's top researchers and attend conferences by the American Society of Clinical Oncology?

 

Think again.

 

Read about Florence - or "Flo" as we like to call her - and see how a survivor and advocate got involved in the research process... without getting a chemistry degree!

 

Read Flo's story!

flo-head-shot
Florence, advocate and RATS member
 

>> Donate to the Lisa Fund, a research fund that gives 100% of its contributions to late-stage colorectal cancer research. 

fight-crc-community

Meet Robert - a father, captain, researcher and support group developer! Robert shared his story with us on our Power of One Million Strong blog.

 

survivor-robert  

 

"Being able to fight colorectal cancer has required a change in my basic philosophy. The old me that handled all problems internally was just not working. For me to survive this long I had to build support groups starting at the core with my family."
- Robert Webster
 
>> Join One Million Strong 
to publicly raise awareness about colorectal cancer!
Read more stories of strength 
 

 

 

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In This Issue
Upcoming Webinar
Pathways and Targets
Why some drugs work and others don't ... and the difference between targeted therapies and chemotherapy.
 
Wed., Sept. 18, 2013 
8 - 9:30 PM EDT

Where's The Fight?

Atlanta
Aug. 17-20
Fight Colorectal Cancer will be exhibiting at the Bronner Brothers international hair show, the largest show of its kind in the cosmetology industry. Our booth will feature Colondar models, information about CRC and blue hair extensions.
 
Dallas-area
Sept. 6-7
The annual Steve Mayberry Memorial Cookoff in Carrollton, TX is a finger-licking good time ... and all for a good cause! Learn more about this fundraiser that donates all proceeds to Fight Colorectal Cancer.
 
 
Washington, DC
September 17-18
We're joining other advocates at the Rally for Medical Research, hosted by the American Association for Cancer Research (AACR).  Interested in attending? Contact Emily.  
  
New York City
September 28
We'll be at the OMG2013 east/nyc Stupid Cancer event in New York City meeting other young survivors and representing colorectal cancer. 
  
Kansas City
Oct. 6-7
We're headed to the Midwest for another photo shoot this year and to pilot our Town Hall Meeting - a program that's training grassroots advocates in their hometowns. Keep your eyes open for information about our Casting Call. Live near the KC area? Contact Emily about attending our first Town Hall Meeting!
 
Miami
Oct. 11-12
The Colon Cancer Alliance's annual national conference is sure to have all things BLUE. Our friend Rodrick Samuels is the keynote speaker!

DID YOU KNOW...

$300,000
 
The average cost per case, per year, to treat advanced colorectal cancer.

SURVIVORS NEEDED...

We Need 50 more Stage II and Stage III Colon Cancer Survivors

We still need help from 50 colon cancer survivors! We've already had 100 help out!

Fight Colorectal Cancer is recruiting to help the NCI improve their informed consent document.

Participants are needed to provide feedback. This is NOT a clinical trial. There is NO medical treatment involved.

You will be compensated $40 for your time.

Head to our website to learn more, see if you meet eligibility requirements and sign up for the NCI study. 


Was Your Cancer Caused by Smoking?

The CDC is looking for survivors and caregivers to be featured in a new anti-smoking campaign. If you:

- Are age 40-65 who had colorectal cancer that was linked to cigarette smoking.

- Are someone who lost a family member before age 55 due to smoking.

You might be chosen to be featured!

If you meet the criteria and are interested, please contact Danielle.

WOO HOO!!

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THANK YOU for helping us hit 9,000 Facebook Fans in July!

NOW LET'S DOUBLE IT! 
 One Million Strong Sale!
oms-tshirt-sale

Don't forget One Million Strong t-shirts in your back-to-school shopping!

Get $8 off One Million Strong t-shirts through August. The discount is not just limited to one shirt!

Enter promo code SUMMERSALE when you checkout in the Fight CRC store.

Your purchase allows us to continue raising awareness of colorectal cancer!

 


Can't get enough of Fight Colorectal Cancer? Make sure to sign up for all of our newsletters and follow us on social media! Check out the news archives if you've missed any news!

Thank you,

Carlea Bauman
President of Fight Colorectal Cancer

Fight Colorectal Cancer demands a cure for colon and rectal cancer. We educate and support patients and caregivers, push for changes in policy that will increase and improve research, and empower survivors to raise their voices against the status quo.
Fight Colorectal Cancer | 1414 Prince Street, Suite 204, Alexandria, VA 22314  | 703-548-1225
info@FightColorectalCancer.org | Website

Copyright 2013 Colorectal Cancer Coalition, Inc. All Rights Reserved.