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    Fall 2012

In This Issue

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SU2C Telethon 

September 7 at 8pm ET/PT, 7pm CT on ABC, CBS, FOX, NBC, HBO, and other networks. Join the entertainment industry, as it raises funds to accelerate groundbreaking cancer research. 


ASCO Breast Cancer Symposium 

September 13-15, 2012

San Francisco, CA


Annie Appleseed Project Conference on Evidence-based Complementary and Alternative Therapies 

September 14-15, 2012

San Francisco, CA


Living Beyond Breast Cancer Fall Conference 

September 29, 2012

Philadelphia, PA


Metastatic Breast Cancer Network Annual Educational Conference  

October 13, 2012

Chicago, IL


FORCE Annual Conference   

October 18-20, 2012

Orlando, FL


Free Teleconferences  


"Beyond Treatment: Understanding Your New Normal" 

Living Beyond Breast Cancer

Tuesday, September 11, 2012

12:00 - 1:00 pm EST


"Progress in the Treatment for Metastatic Breast Cancer, Part I: Living with Metastatic Breast Cancer" 


Thursday, October 11, 2012

1:30 - 2:30 pm EST


"Living with Metastatic Breast Cancer: Emotional Impact" 

Living Beyond Breast Cancer            

Monday, October 22, 2012

12:00 - 1:00 p.m EST


"Managing the Challenging Side Effects of Metastatic Breast Cancer, Part II: Living with Metastatic Breast"


Thursday, October 25, 2012

1:30 - 2:30 pm EST

New to BreastCancerTrials.org?

We welcome patients, post-treatment survivors, or those at risk to consider clinical trials as a routine option for care. Explore our Matching Tool and QuickView Browser to find a trial that's right for you.

DFrom the BCT Team:    


This month we are launching our Connect With Us on Facebook campaign with a goal of adding 500 "Likes"! On our Facebook page, you can now read the latest news about breast cancer research and keep track of newly listed trials on BCT.  


    Like us on Facebook  


Help us spread the word about BreastCancerTrials.org!


We hope you enjoy our Fall feature story on Complementary and Alternative Medicine. Sue Rochman describes cancer patients' growing interest in CAM therapies, such as yoga, exercise, acupuncture, vitamin and supplements, and the clinical trials that researchers are conducting with the goal of making CAM as evidence-based as other areas of cancer care.

PComplementary & Alternative Medicine Clinical Trials Influence Breast Cancer Care



Is low-level laser therapy an effective lymphedema treatment? Can acupressure reduce cancer related fatigue? Might green tea reduce breast cancer risk? These are among the more than 50 research questions now being studied in complementary and alternative medicine (CAM) breast cancer trials throughout the United States.  


But it wasn't always this way. Throughout the 1980s and early 1990s, most doctors, oncologists included, paid little attention to what were then thought of as "unconventional" therapies. But as public interest grew in alternative treatments such as vitamins and supplements, traditional Chinese medicine treatments like acupuncture, and mind-body therapies like yoga and progressive muscle relaxation, the mainstream medical field began to take notice.  


The real wake-up call came in January 1993, when a research group from Beth Israel Medical Center in Boston published an article in the New England Journal of Medicine showing that a third of the roughly 1500 adults surveyed reported using at least one "unconventional" therapy in the past year, and that a third of these adults saw "unconventional" providers. With each visit costing about $30.00, this suggested that Americans were currently spending about $13.7 billion a year on these treatments.


 AQ & A with Ann Fonfa 

  ann fonfa use  

Ann Fonfa is the founder and president of The Annie Appleseed Project, which provides evidence-based information for cancer patients about complementary and alternative medicine (CAM). The organization's first-ever west coast conference will take place September 14-15 at The Event Center at St. Mary's Cathedral in San Francisco.  


Ann became interested in complementary and alternative therapies after she was diagnosed with breast cancer in 1993 at age 44. Ann recently spoke with BCT about her efforts to draw attention to and increase evidence-based research on CAM.


Q: Why is it important to have evidence-based CAM research?

A: One reason is that doctors won't be convinced unless they see level 1 evidence that comes from a randomized trial. There are more studies being done, but some doctors still consider some of the outcomes not acceptable because there is no level 1 evidence.


Q: Would you encourage someone to get involved in a CAM clinical trial?

A. Yes, and we try to list them on our website. I think the most important thing is that everyone make informed decisions about their treatment. ... I also think integrative medicine (which combines mainstream treatments with CAM) should be offered to everyone.

Q: What do you expect will be some of the highlights of the conference?

A: Michael Lerner, the co-founder of Commonweal will be there, along with Donald Abrams, the director of clinical programs at the University of California San Francisco Osher Center for Integrative Medicine. We will have a patient panel, because the patient voice is so important as well as sessions on Qigong, pilates, and yogic breathing.


We have scholarships available for local cancer patients. The information is available on the Annie Appleseed website.


Editor/Writer: Sue Rochman
Design: Claudia Fung