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In This Issue
Why Each of Us Needs a Care Partner
Research on Care Partners
Healthcare News
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Issue: #028                        January 2014 



Dear ,

Happy New Year and welcome to 2014!

Recently, I attended a lecture by my colleague and friend, Janet Simpson Benvenuti of Circle of Life Partners, during which she used the phrase "Care Partner." Since then, not only have I adopted the phrase, I've begun a one-person lobbying effort, encouraging everyone to identify a Care Partner.

In my ideal world, this would be a topic raised by our physicians; the name of our respective Care Partners would be noted in our medical records; and we would be encouraged to bring our Care Partner to all future physician appointments.

In today's newsletter, we'll discuss the concept of a Care Partner, describe how it differs from a caregiver and consider examples of how Care Partners can be helpful in two common healthcare settings.
Dianne signature
Dianne Savastano, BSN, MBA
President, Healthassist

Why Each of Us Needs a Care Partner

In my work with clients, and in addition to the person whose health is being administered to, I often interact with a spouse, sibling or adult child. Each of these people, in these situations, is acting as a "Care Partner."

Simply put, a Care Partner is someone who helps another individual:
  • Adjust to a new diagnosis such as dementia or cancer
  • Communicate with his/her healthcare providers
  • Manage crises such as an acute illness or injury that requires hospitalization
  • Live with a chronic condition that requires seeking care from a variety of physicians
  • Stay healthy by partnering with him/her to implement the behavioral change necessary to promote good health
Note that this role differs from the caregiver who, while also often a family member (or paid professional), regularly looks after a sick or disabled person. The caregiver provides:
  • Hands-on care assisting an individual with activities of daily living such as bathing, dressing, toileting and eating
  • Medication management
  • Household help with cleaning, laundry, meal preparation, bill paying, etc.

How a Care Partner Can Assist in the Hospital

Over the holidays, one of my clients experienced a fall, an emergency room admission, surgery and a transition to short term rehabilitation - all within a four-day span. Fortunately, he had a Care Partner and the two of us were able to assist my client in moving through the hospital's (often frustrating!) medical and administrative system.

If you, as a Care Partner, find yourself in such a situation, here are a few suggestions:
  • Be physically present, whenever possible, so that you may have direct conversations with the multitude of team members involved. Make pro-active phone calls when you can't be there in person.
  • Be sure to ask each team member his/her name and title, as well as the specific responsibilities he/she has in your loved one's care.
  • Identify and communicate with the assigned case manager immediately upon admission, to initiate preparations for discharge.
  • If you are not satisfied with the communication, move up the chain of command (physician and/or nursing) until your needs are met. You can also access hospital-based patient advocacy services to assist with problem solving. Remember, your loved one is vulnerable and needs you to act on his/her behalf.

How a Care Partner Can Assist in an Outpatient Setting

Another experience I had over the holidays was a call from a distraught Care Partner, someone whose mother had attended a follow-up surgical appointment alone. The surgeon had performed a biopsy and told the mother that she had cancer. The Care Partner was anxious and fearful and although these feelings were to be expected, they were exacerbated by her lack of information.

Things could have been done differently on many levels. I recommend the following:
  • No one should ever attend a follow-up appointment for diagnostic test results alone. Studies have shown that we retain about 60% of the information shared during physician appointments - that percentage is much lower when upsetting information is delivered.
  • Physicians should pro-actively request that patients bring a Care Partner with them to follow-up appointments. (I know of physician's offices that do this; it is not unheard of.)
  • Any diagnosis of cancer should include a copy of the pathology report from the physician so that research can begin using accurate data. Like it or not, families are going to turn to online information - the more facts they have the more accurate their research will be.
  • All physician appointments should include a precise understanding of the next steps on the journey and what to expect from each. In the case of my client, and while the physician may have done a fabulous job explaining the situation to her, she remembered no specifics regarding the nature of her cancer or of the plan going forward.
Please don't misunderstand me - I know many, many wonderful healthcare professionals who do a fabulous job of caring for those with whom they come into contact. But these are busy people, working within what are often overly bureaucratic, complicated systems.

A dedicated Care Partner - someone in each of our lives who is aware of and supports our healthcare goals - is a critical member of the team and must be included as well.

Research on Care Partners

As I've mentioned previously, I am a member of a Patient Family Advisory Council, organized by a large physician group of which my primary care physician is a member. My fellow participants and I represent the patient/customer perspective as the physician practice continues its (phenomenal) work applying lean principles to healthcare.

I've discussed the concept of a Care Partner with the team and was thrilled to run across the work of another Patient Family Advisory Council at Yale New Haven Hospital in Connecticut. Their work resulted in a discussion of Care Partners on the visitor section of the hospital web site. (Read the full page here.)

Wow! As a professional who coaches family members about how to advocate for their loved one in an inpatient setting, who sometimes has to directly execute these functions for clients, and who may meet resistance in inpatient settings, I was thrilled to read this inclusive language.

You can be sure I will be pointing this out to my own council!

Healthcare News

In my work with older adult clients and especially with those who have a diagnosis of dementia, I have uncovered many layers of neglect and exploitation. This article addresses financial exploitation aimed at an aging population.

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The subject of overcapacity of inpatient care as we move to new models of healthcare delivery is discussed in this thought-provoking article.

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Healthassist offers expert help in demystifying healthcare and medical insurance. Healthassist can help you achieve a 360-degree view of your healthcare issue with information, education, advocacy and other services. Healthassist puts the client at the center of every interaction with the healthcare and insurance system. With years of experience on both the direct patient care side and business side of healthcare, Principal Dianne Savastano has the skills to offer consulting, coaching, information and assistance to help empower you to make the best decisions regarding your family's healthcare.

At Healthassist we are committed to maintaining client privacy and will never, under any circumstances, discuss your diagnosis or care with anyone without your permission. Nor do we sell or make available our client list to anyone at any time.