Monday Memo

News for the week of December 3, 2012  

Contents
National News
Arizona News
Help Raising Special Kids
Featured Resources
Events and Activities
Free Training and Workshops
Quote of the Week

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Today, December 3, is the International Day of Persons with Disabilities. The theme for 2012 is "Removing barriers to create an inclusive and accessible society for all." You can read more about this important day and events taking place around the world by visiting United Nations Enable.

National News

Report: Impact on States of Medicaid Expansion 

A report released by the Kaiser Family Foundation shows modest state costs for implementing the Medicaid expansion under the Affordable Care Act, allowing some states to see net budget savings even as millions of low-income uninsured Americans gain health coverage.

Another article on this topic is available at governing.com.  

Related information: 30 Year Agency Report to Arizona Legislature

Ongoing updates can be found on this AHCCCS webpage

 

 

Report on Supplemental Security Income for Children with Disabilities
This week, the National Academy of Social Insurance (NASI) released a new brief on Supplemental Security Income (SSI). The brief, entitled "Supplemental Security Income for Children with Disabilities," examines the importance of SSI for families of children with disabilities.

 

 

Changing Face of Health Care - Doctors Who Take Only Cash

New York Times

What pushes a doctor to go this route, often called concierge medicine? And how hard is it to make a living?

As to why doctors decide to switch to a concierge practice, the answer is almost always frustration. Read article.

 

 

College-Readiness Definition

Definitions of college readiness have been drafted--important, because they will shape the design of the tests that nearly all students in the country will take in mathematics and English/language arts and define what students should know how to do at key points in their education. Read article in Education Week.

 

 

61 Finalists Announced for Race to the Top District Competition

The Department of Education announced that 61 applications have been selected as finalists for the $400 million Race to the Top-District (RTT-D) competition. Two Arizona school districts are finalists for Race to the Top grants. Read more in this article in The Republic.

 

Arizona News

Effort Under Way to Curb Fraud in School Voucher Program

Arizona Capitol Times

Legislation to tighten fraud controls for a rapidly expanding voucher-style program that could serve up to 200,000 more students next year is being drafted by the state Department of Education and Goldwater Institute. Read article (permission granted to reprint from Arizona Capitol Times).

 

Governor Chooses Federally Run Health Exchange

Arizona consumers and businesses will shop for health insurance in two years in a new Internet marketplace designed by the federal government instead of by Arizona policy makers. See article in The Republic.

See an interactive map of the states for information on state choices in health care reform.

 

                                                           

Early Intervention Services Converting to Team-Based Model

Families are receiving letters regarding the upcoming changes to Arizona Early Intervention Program (AzEIP) services. The AzEIP website has been updated to include information about the Key Principles of Early Intervention with videos that include examples of what the principles look like in practice. Contracts with providers operating under the new model are effective on February 1, 2013.   See the letter to families in Spanish or English.

 

What will change?

The professionals who are currently involved with your family, and the ways they interact may change. Families will have a team of professionals, such as a speech therapist and physical therapist, who meet regularly and are flexible in meeting your families' needs.

 

What will not change?

Children who are eligible for early intervention will continue to be eligible. ASDB and DDD will continue to provide services with the support of the new AzEIP teams.


How are early intervention services paid for?

See the Family Guide to Funding Early Intervention Services

  

One Family's Story-Understanding the Journey

  Jaime and Emma

 

Nine years ago Emma was born healthy and had a happy infancy until the day she was rushed to the hospital with a life threatening head injury. She wasn't expected to survive. 

 

She needed emergency neurosurgery and was hospitalized for two months. "My beautiful, healthy, and happy baby lost her ability to smile, to sit up, to eat, to swallow, to make eye contact-things a baby should do at 11 months," said Jaime. Emma celebrated her first birthday in the hospital. 

 

"As a single mother, I had many concerns:  home, food, and money, and on top of that, a baby girl who needed a lot of care. When it came time to bring her home, I was terrified," Jaime recalled. "I cried non-stop."

 

Jaime remembers each day seemed like an uphill battle. But she moved forward by focusing on her daughter's health first. Assistance and resources from Raising Special Kids helped her navigate systems of care, and she learned about medical diagnoses, therapies, finding new treatments, and special education.

 

"It's been so overwhelming at times. When I returned to working full time, it was the most liberating moment-I felt we could finally begin to live our lives. I have been able to look at Emma and stop seeing what's 'wrong' with her and wondering about 'what could have been.' I focus now on what is right with her and what we have today."  

 

For information about how to help families like Jaime, click on this link to our secure online system.

  

If you itemize on your taxes, here is a special tax credit you should know about. 

 

Featured Resources 

 

School Health Index

The School Health Index (SHI): Self-Assessment & Planning Guide 2012 is an online self-assessment and planning tool that schools can use to improve their health and safety policies and programs.

 

 

Safe Sleep Environments for Infants

FREE, online course that educates child care providers about safe sleep environments that reduce the risk of Sudden Infant Death Syndrome (SIDS) is now available in Spanish.

Spanish

English

Note: to participate for free, you must use the promo code: SIDSCCP

 

 

Pre-existing Condition Insurance Plan
One of the healthcare coverage options for low income and sick patients in Arizona is the Pre-existing Condition Insurance Plan (PCIP) created by the Affordable Care Act.  PCIP coverage is intended to serve as a bridge until 2014 when the health insurance exchanges become operational and the regulation ensuring people can no longer be denied coverage based on their health status is in place.

 

Events and Activities

 

Caring Santa

December 9, 2012.  

9am - 11am

Arizona Mills Mall

Please enter the mall using Entrance 4. The event will be held during private mall hours so as to provide a calmer sensory-friendly environment.

Caring Santa is a special event designed for children and young adults with special needs and their families to have an opportunity to have their photo taken with Santa. Arizona Mills has partnered with AbilityPath.org, a national online resource hub and special needs social network to make necessary adjustments to the environment that supports the sensory, physical and other developmental needs of kids with all abilities.

RSVP at www.abilitypath.org. The event is free and professional photo packages will be available for purchase. If you have questions, call Crystal at 480-491-7300 or e-mail cheuft@simon.com.  

 

 

Winter Camp Zoo

The Phoenix Zoo offers two days of specialty camps for children with visual impairments and with orthopedic impairments.

 

Sense of Wonder Camp for children with visual impairments

Thursday, January 3, from 8:00am - 12:30pm

Phoenix Zoo members: $50     Non-members: $55

Scholarships are available.

 

Wild Hearts Camp for children with orthopedic impairments

Friday, January 4, from 8:00am - 12:30pm

Phoenix Zoo members: $50     Non-members: $55
Scholarships are available!

 

Please feel free to contact the Camp Zoo Supervisor (602.273.1341 x 7355) to discuss your child's needs and ensure that Camp Zoo will be a good match.


 

Winter Adaptive Recreation Horse Camp

Hunkapi Programs, 12051 N 96th St Scottsdale, AZ 85260

For all abilities, age 7+

4-day program 12/31/2012 - 1/4/2013

8am - 4pm*   *12/31 will be a half-day, no camp 1/1/2013

Daily riding lessons, adaptive recreation, Equipment usage, professional staffing, end-of-camp certificate

www.hunkapi.org (a nonprofit organization)

 


Sharing Down Syndrome Party

Breakfast with Santa (Westside Holiday Party)

Saturday December 8, 2012

10am - 12pm

First Christian Church, 6242 N 59th Avenue, Glendale AZ  
RSVP or for questions - contact Jamie Boyett, Westside Chapter Leader at jamie@sharingds.org

 

 

9th Annual Inclusive Practices Institute

A Conference for Parents and Professionals Supporting Children with Disabilities

January 18-19, 2013

Deer Valley District Office, 20402 N 15th Avenue, Phoenix, AZ 85027

Sparkle Effect - an innovative student run program that helps students across the country create cheerleading and dance teams that include students with disabilities.                    

  • iPad Apps - and other technologies for supporting children and adults with disabilities
  • Common Core - adapting the general education curriculum for students with disabilities
  • I AM NORM- A youth forum on promoting inclusion
  • Literacy Strategies For Students With Autism, Universal Design For Learning, Para educators And General Education Modifications, Positive Behavioral Supports, Post-High School Options For Teens With Disabilities, International Treaty On Disability, Best Practices In Supporting Self-Advocates...and more

For conference pricing and to register go to http://www.regonline.com/9thannualinclusivepracticesinstitute

For more information please contact:

Sherry Mulholland - mulhollandmatsutakeout@yahoo.com or 520-603-4010 or                                          

Andrea O'Brien - andreamobrien@cox.net or 602-717-8106

 

 

Annual Dance Production of A Joyous Christmas

Included in this concert is the Movement E-Motion (MEM) program for young adults with Different Abilities. 

Two locations:

  • Saturday, December 1st at Cactus Shadows Fine Arts Center in Carefree
  • Sunday, December 2nd at Paradise Valley Community College Center for Performing Arts in Phoenix.

Both concerts are at 2pm and tickets are available at the door or online.

Information can be found at www.azdance.org. (AZDance is a non-profit organization.)

 

 

Applied Behavior Analysis/Natural Environment Teaching

December 18, 2012  

9am - 4pm

Touchstone Behavioral Health

15648 N 35th Ave, Phoenix, AZ 85053

The cost is $50 for professionals and $30 for parents/guardians. 

Register by calling 602-732-4967 before December 10, 2012.  

The ABA portion of the training will be conducted by Joseph A. Gentry, PhD, BCBA-D from 9am - 12pm, and the NET portion will be conducted by Carey Burgess, M.A., BCBA from 1pm - 4pm. 

 

 

Financial Planning Seminar

Saturday, December 8th at 10am

Disability Empowerment Center, 5025 E Washington St, Phoenix, AZ 85034

"The ABC's of Special Needs Planning Made Easy"

  • Informative & educational for parents, professionals & care givers
  • Relevant for all ages and types of developmental disabilities
  • Subjects include: Special Needs Trusts, Wills, Guardianship, Trustees, Lifestyle, Budget Planning, Estate Planning, Government Benefits, Medicaid, Medicare and the Letter of Intent

For Information or to RSVP call or email Nathan Buckles at 480-264-0211 or Nathan.Buckles@silvertreefinancial.com Speaker: Bart Stevens, SrChLAP, AzCLDP

 

 

Previously Listed in Monday Memo:

 

Webcast on Bullying

Moving from Awareness to Action in Bullying Prevention: Training Resources for the Field

Wednesday, December 05, 2012 | 1pm - 2pm Arizona Time

This presentation from the Federal Partners in Bullying Prevention Webinar Series will explore how local communities can activate partnerships to create positive change in bullying prevention.

 

 

Free Dental Clinic Event

The Central Arizona Dental Society will be hosting its first Mission of Mercy event December 6-9, 2012 at the Arizona State Fairgrounds. Mission of Mercy is a dental clinic with portable dental stations set up in a large public arena. Dental screenings and services are provided on a first-come, first-served basis, at no charge to those who attend.

  • Clinic doors open at 4am.
  • Treatment will be performed from 6am - 6pm on both days.
  • No appointments will be taken or are necessary.
  • Patients are seen on a first come - first serve basis.
  • The number of patients seen will be limited by clinic capacity.

 

"Sensitive Santa" for Children with Sensory Sensitivities

Families will have the opportunity to have their child's picture taken with Santa in a calm, less-intimidating environment than the mall setting. This event is free and is for children who have sensory sensitivities, and who otherwise may not be able to have a picture taken with Santa at the mall.

Touchstone Behavioral Health locations

  • Mesa: 2150 S Country Club Dr, Suite #36, Mesa AZ 85210
    December 10, 2012 from 10am - 2pm
  • Phoenix: 15648 N 35th Ave. Phoenix, AZ 85053
     
    December 12, 2012 from 10am - 2pm
    December 15, 2012 from 10am - 3pm

For details call Traci or Elizabeth 602-732-4967.

 

 

Christmas Party / Respite Time

December 8, 2pm - 5pm

Highlands Church - 9050 E Pinnacle Peak Rd, Scottsdale, AZ 85255

The Highlands Church Special Needs Ministry is hosting a free community Christmas Party and respite time for children

and adults with special needs. They will play games, make crafts, have pictures taken with Santa, and enjoy snacks and sing songs. Please RSVP to Missy Farrington, 602-820-3345, missyf@highlandschurch.org

 

 

Workshop: Tips for Applying for SSI, SSDI and AHCCCS Freedom to Work

December 17

10:30am - 12pm

ABIL, 5025 E Washington St #200, Phoenix, AZ 85034

This workshop will provide tips for a successful application for persons with physical conditions as well as those with less obvious emotional or mental disabilities. We will also discuss how to appeal any denied applications.

Facilitator: David Cardinali is a retired Social Security Claims Representative and Public Affairs Specialist with 33 years of experience, and has provided benefits and work incentive counseling for the last 3 1/2 years at DIRECT Center for Independence.

Register: http://tipsapplyforbenefits.eventbrite.com/

 

 

Provider Fair

Saturday, January 26, 2013

10am - 2pm

Steele Indian School Park, Phoenix

For families and individuals seeking services through the Division of Developmental Disabilities. This fair provides opportunities to connect face to face with providers from the Valley.

 

 

Free Training and Workshops

To register, call 602-242-4366 or click on the link to register online.

Unless otherwise indicated, workshops are located at our office in the Disability Empowerment Center (DEC).

Please do not wear fragrances in the DEC facilities.

Raising Special Kids

5025 E. Washington St., Suite 204

Phoenix, AZ 85034

 

Understanding 504

December 04, 2012

6:00 PM - 8:00 PM

Learn about the rules and regulations of a 504 Plan and how it differs from the IEP (IDEA).

 

High School Transition

December 05, 2012

10:00 AM - 12:00 PM

Learn how the transition plan in a student's IEP in high school can prepare for higher education, employment and life in the community.  Resources discussed.

 

Preschool to Kindergarten Transition

December 05, 2012

1:00 PM - 3:00 PM

Learn eligibility differences and strategies for an effective transition into school-age services.

 

Bully-Free Environments

December 06, 2012

10:00 AM - 12:00 PM

Learn how to recognize bullying, effectively respond and build positive solutions. 

 

IEP Basics

December 06, 2012

1:00 PM - 3:00 PM

Learn about the purpose of IEP's, parents' role in the process, and how to prepare for meetings. 

 

Positive Behavior Support

December 10, 2012

10:00 AM - 12:00 PM

Training on effective techniques for behavior management. 

 

Advanced IEP Training

December 10, 2012

1:00 PM - 3:00 PM

Receive an in-depth view of the IEP and strategies to help maximize the potential of each student. (Recommended: First attend IEP Basics)

 

 

For workshops and training in Spanish, please visit our online calendar.

 

Quote of the Week 

 

"This is the one e-newsletter that I actually read each week!  I love the variety of information." 

Raising Special Kids works to improve the lives of children with disabilities and special health needs by providing parents with information, training and support.