Monday Memo

News for the week of October 29, 2012  

Contents
National News
Arizona News
Help Raising Special Kids
Featured Resources
Events and Activities
Free Training and Workshops

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Christopher TiffanyRaising Special Kids is pleased to announce the appointment of Christopher Tiffany, Director of Family Support and Education, to Arizona's Special Education Advisory Panel. This is a state-level commission with members appointed through the Governor's Office.  Under IDEA, each state has an advisory panel for the purpose of providing policy guidance in special education and related services for children with disabilities. More information on the panel. 

 
National News

 

Medicaid Spending and Enrollment Growth Slowed in 2012

Amid Signs of Economic Recovery and States' Efforts To Curb Costs

Growth in total Medicaid spending and enrollment slowed substantially in state fiscal year 2012 as the economy began to improve and states continued to work to control costs. Read release from Kaiser Family Foundation.

 

 

Self-Advocacy, Mentors Key For College Students with Disabilities

Disability Scoop

A new study offers insight on what separates individuals with special needs who are ultimately successful in higher education from those who are not.

 

 

Study Says Plan Would Cut over 30 Million People from Medicaid and Cut Spending 38%

Analysis of the House Budget Plan passed in 2012 finds that repealing the Affordable Care Act (ACA) and converting Medicaid to a block grant program would save the federal government $1.7 trillion and result in 31 million to 38 million fewer people getting Medicaid coverage in 2022. View the state-by-state data and learn more about the study from the Kaiser Health News.

 

 

An iPod Touch Can Revolutionize Daily Living For the Severely Disabled

Specialedpost.com

A case study published in the Journal of Vocational Rehabilitation describes how a 21-year-old with autism required the near-constant supervision of a job coach to prompt him to rotate between his different duties and to help him remember the steps. An iPod Touch programmed by an occupational therapist was then introduced to guide him through the day, and the coach was able to step back.

 

 

Senators Want ABA Therapy Deemed 'Essential'

Disability Scoop

Members of the U.S. Senate are pressuring the Obama administration to do more to require health insurers across the country to cover autism treatment.

 

 

New Position on Special Education Teacher Evaluation

PolicyInsider.org

The Council for Exceptional Children provides a set of guiding principles for states and districts to consider as they design and implement Special Education Teacher Evaluation.

 

 

National Institutes of Health Establishes Down Syndrome Patient Registry

A new Down syndrome patient registry will facilitate contacts and information sharing among families, patients, researchers and parent groups.

 

 

Arizona News

 

Maricopa County Gets $58 Million to Improve Schools

The Republic | azcentral.com

Maricopa County's education agency has received a $57.8 million federal grant to help evaluate and train teachers and principals in 45 Valley schools serving large concentrations of impoverished or troubled students.

 

 

Grant to Expand Telemedicine Program in Arizona

KTAR.com

A $1.3 million federal grant will allow a University of Arizona center to expand a regional program helping hospitals and health care providers get into or make better use of telemedicine. Read more.

 

 

Proposition 204 Articles/Editorials/Reports

Features on aspects of Proposition 204 can be found in a variety of Arizona media sources. Here is a list of links to features in some of the publications or programs serving larger audiences around the state:

Yuma Sun

The Republic/azcentral.com

Arizona Daily Star/azstarnet.com

Arizona Daily Sun/azdailysun.com

Arizona Horizon - Channel 8

Morrison Institute - Arizona State University

 

 

Helping Raising Special Kids Make a Difference

Please - let us know what you think of Monday Memo 

It takes just a minute to click on this survey link  and answer five questions.

 

We'd appreciate your time and input. Thank you!

 

 

Gabby and Josh 

When Josh was 11, Gabby and her family moved from California leaving behind their support networks. While they were getting settled in Arizona, Gabby learned about a support group for parents of children with disabilities.

 

Many of the parents in the group knew Raising Special Kids and introduced Gabby to the organization. 

 

"One of the best things I found is the Parent to Parent support, said Gabby.

It's awesome! At one point I was having some issues with my son. Even though I could advocate strongly for others, when it came to my own situation, I would tend to freeze up. It was wonderful to get another person's perspective, and it helped me through some problems. There is nothing like hearing someone else's story to make you feel better. I realized: if she is okay, I am going to be okay too!"

 

Gabby found valuable assistance through the trainings and workshops. "When Josh was approaching 18 years old, I was so scared - I didn't know what was going to happen or what options were available." The workshop on guardianship helped answer a lot of questions for Gabby and her family. "I learned to take it step by step. Now he is in a great program and has plans for community college."

 

Raising Special Kids needs your help to serve more families like Gabby's. Please make your donation today through our secure online system. Thank you.

   

 

Featured Resources 

 

NICU Manual for Parents

A NICU Parent Resource Manual for families of newborns is available at no cost to parents of babies who have been in neonatal intensive care units. The resource guide is designed to help families deal with the emotions of having a child with special health care needs, and provide information on how to partner with doctors and others on their child's health care team in order to be an effective advocate for their child.

The book can be customized for each family's needs. In addition to advice and information, it provides parents with tools to organize medical records, keep notes, track contact information on providers and community resources, and log important dates and the child's development.

The manual is available to download and print for free in English and Spanish on Raising Special Kids' website at http://raisingspecialkids.org/ifyourchildisage/ifyourchildis0-3.aspx.

 

Raising Special Kids developed the manual with funding from the U.S Department of Health and Human Services, Maternal and Child Health Bureau, and the Smooth Way Home project with Dignity Health.

 

 

Rethinking Discipline  

2nd installment of Education Week series

Discussion of Positive Behavior Interventions and Supports - PBIS values teaching all students appropriate behavior as much as teaching an academic subject. It's the opposite of what many school rules say: everything students shouldn't do... "Schools search for alternatives to zero-tolerance discipline policies, which have been linked to high numbers of suspensions-especially among African-American students, Latinos, boys, and students with disabilities."

 

 

Voting Information for People with Disabilities

Federal law guarantees you the right to vote in an accessible way.

 

 

RecruitDisability.org

A job posting website for people with disabilities.

 

 

Events and Activities

 

 

2012 Voting Accessibility Questionnaire

The National Council on Disability is seeking input via a questionnaire to learn how people with disabilities fare in this election. To take or share the questionnaire, please go to http://www.surveygizmo.com/s3/1053447/Voting

If you have any questions, please call 202.408.9514, ext 130. For more information, visit their website.

 

 

Webinar - Community Service and Employment

On Wednesday, October 31 at 3 pm EDT, the Social Security Administration will host a free Webinar "Exploring Community Service as a Pathway to Employment: A Webinar for Social Security Disability Beneficiaries". Get insight on a variety of community service opportunities and benefits. Register online.

 

 

Empowerment Scholarship Account Presentation

Arizona Department of Education will be providing information regarding the Empowerment Scholarship Account Program open to children with disabilities. Parents and/or guardians are invited to attend. 

DATE:  Wednesday November 14, 2012.

TIME:  6:30 pm - 7:30 pm.

LOCATION: Disability Empowerment Center 5025 E Washington St., Phoenix AZ 85034.

RSVP:  To Michele.Fiorenza@yahoo.com  (with ESA in the subject line. In addition please provide your name, # of attendees, and phone #) by Friday November 9th 3pm. Space is limited to first 50 attendees.

 

 

2012 Ballot Proposition Presentation

Monday October 29, 2012

5:30 pm - 7:00 pm

Disability Empowerment Center, Nina Mason Pulliam Conference Center, 5025 E. Washington Street, Phoenix, AZ 85034

Learn about the various statewide Propositions on the 2012 Ballot. Hear pros and cons and make up your own mind.

More information and details here.

 

 

Childhood Obesity Symposium: Prevention, Complications and Cost

The CARE Program at Phoenix Children's will be hosting the inaugural Childhood Obesity Symposium on November 14, from 5:30 p.m. to 7:30 p.m. in the Melvin L. Cohen Conference Center on the main campus of Phoenix Children's Hospital. The symposium is for those involved in the fight to prevent and treat childhood obesity.

 

 

Got Transition Quarterly Webinar

"I am more than a diagnosis!" - The Impact of Personal Identity on Health Care Transitions for Young Adults with Special Health Care Needs

Date: November 7, 2012

Time: 12:00 noon - 1:00 pm (Arizona Time)

In this Got Transition quarterly webinar, Susan Waisbren, Ph.D. will review research on identity development and its impact on health promoting behaviors and positive mental health. A panel of young adults with various health care needs will respond and share their current strategies coping with challenges as they move toward adulthood.

Space is limited. Register here.

 

 

Written and Skills Testing for Trainers of Direct Care Workers

Registration deadline extended through Monday, October 29th

November 1-2, 2012

Tucson, Arizona

The training is not mandatory by DES or AHCCCS.  The workshop is designed to help an Approved Program prepare for the new Direct Care Worker training and testing requirements.

Registration form.

For questions, contact Mary Chapman  hr@athomesol.com

 

 

Previously Listed in Monday Memo:

Survey on Advocacy and Resilience

For parents of children with special needs

Parents' participation is requested in an online, anonymous survey about advocacy and resilience in parents of children with special needs. The survey is expected to take about 20 minutes. The research is being conducted by Dr. Sarah Taylor at California State University, East Bay, and Dr. Amy Conley Wright at San Francisco State University.

To participate, please go to http://www.surveymonkey.com/s/spclneedsadvocacy. If you have questions about this research, contact Dr.Taylor at sarah.taylor@csueastbay.edu, Dr. Amy Conley Wright at acw@sfsu.edu or the CSU East Bay Institutional Review Board at 510-885-4212.

 

 

Normal Pressure Hydrocephalus (NPH) Support Group Meeting

Tuesday, October 30, 2012

4:00 pm - 6:00 pm

Sonntag Academic Pavilion, Barrow Neurological Institute

350 W. Thomas Road, Phoenix, AZ 85013

Parking: Park in the 3rd Avenue Garage & cross 3rd Avenue at crosswalk. Once across the street, continue straight into building marked Sonntag Academic Pavilion

Guest Speaker: Jeannine Morrone-Strupinski, PhD

Topic: Managing cognitive and emotional changes associated with NPH

Please RSVP to Maggie Bobrowitz by e-mail: info@hydroassoc.org                          

 

 
Positive Behavior Supports to Prevent Restraint and Seclusion in Schools

Free training for parents and teachers on practical information that leads to the reduction of the use of restraint and seclusion and/or removal of a student with challenging behavior from the education environment.

 

1)     Thursday, November 8, 2012

9:00 am - 4:30 pm

Disability Empowerment Center, 5025 East Washington Street, Phoenix, AZ 85034

To register online go to http://ressecphxnov82012.eventbrite.com

To register via phone or email, please contact the Center at (602) 274-6287 (voice/TTY) 1-800-927-2260 (toll free) or e-mail kvanhorne@azdisabilitylaw.org.

 

2)     Friday, November 9, 2012

9:00 am - 4:30 pm

Viscount Suite Hotel, 4855 East Broadway, Tucson, AZ 85711

To register online for this Tucson training, go to Eventbrite: http://ressectucnov92012.eventbrite.com

To register via phone or email, please contact the Center at (602) 274-6287 (voice/TTY) 1-800-927-2260 (toll free) or e-mail kvanhorne@azdisabilitylaw.org.

 

Presented by Arizona Center for Disability Law & Institute for Human Development - Northern Arizona University

Visit the following websites for more information. www.azdisabilitylaw.org , IHD to www.nau.edu/ihd and ADDPC to www.azdes.gov/ADDPC/Home .

 

 

Free Webinar on Telehealth Delivery

November 13, 2012 12:00 noon (AZ Time)

Telehealth: A New Delivery System to Improve Health Care for Patients with Serious Mental Illness

Presented By: Sarah Pratt, Ph.D., Assistant Professor, Department of Psychiatry, Geisel School of Medicine, Dartmouth University

Executive Webinar Overview

This presentation and discussion will focus on the experience and results of Dartmouth's Center for Aging Research pilot study using the Bosch Healthcare Health Buddy System for remote patient monitoring intervention of people with SMI and physical co-morbidities.

Attendees will leave with an understanding of:

1. Telehealth for the SMI population with physical co-morbidities

2. Acceptance among this population

3. The promise of telehealth in improving quality of care and reducing utilization for this population

 

 

Baseball in Southwest Valley - Challenger League

Goodyear Little League Challenger division is part of a nationwide program for youth with mental and physical disabilities. Youth ages 4-18 can enjoy the full benefits of Little League participation in an athletic environment structured to their abilities including those using wheel-chairs. Teams are set up according to abilities, rather than age, and can include up to 20 players.

 

Any interested participants who live in the southwest areas of the Valley including Goodyear, Surprise, Buckeye, Avondale, Litchfield Park, Verrado, and others may register. Open registration is December 3rd through January 31st.

For more information please contact Goodyear Little League goodyearlittleleague@gmail.com.  

 

 

 

Free Training and Workshops 

 

For workshops and training in Spanish, please visit our online calendar.

 

 

Quote of the Week 

"Thank you again for allowing me to tell my story. It was very cathartic. I can tell that finding Raising Special Kids is an answer to my prayer."

 

Raising Special Kids works to improve the lives of children with disabilities and special health needs by providing parents with information, training and support.