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Tips for Traveling
By Lauren Muhlheim, PsyD.and Therese Waterhous, Ph.D./L.D.
Families often ask whether they should proceed with a previously scheduled trip or take a well-deserved "break" during the treatment process. We advise that travel during Phase 1 of Maudsley Family-Based Treatment be avoided if at all possible. We know several families who have vacationed with a child well along in treatment and found they resorted to eating disordered behavior over the course of a week, erasing months of progress. Children and young adults with eating disorders often have difficulty with change; if a child is having difficulty completing meals in the home or refraining from other disordered behavior, it is unlikely that they will be able to do so on vacation, where they will be in an unfamiliar setting in the presence of non-family members.
During vacation, parents may be tempted to give in more easily to the eating disordered thinking and behaviors because they do not want to upset other diners in a restaurant or because they "don't want to ruin" the vacation after they've invested a lot of money in getting there. The food may be different than that available at home, or it may be difficult to get the types of foods on which the family has been relying. Children and young adults with anorexia may be inflexible or easily stressed; if the food is different than that to which they are accustomed, anorexics may refuse to eat at all and those with bulimia may purge to reduce stress associated with traveling. Sightseeing often involves a lot of walking, which can burn a lot more calories and require even greater caloric intake to offset. Many vacations occur in warm climates, where health problems related to malnourishment or dehydration may be magnified. If families do travel during Phase 1 or Phase 2, they should be cautioned that it may cause a setback and prolong the recovery process.
If due to family emergency or some other reason travel cannot be avoided, then parents and caregivers need to have confidence they can feed the way they have been feeding (similar foods, meals timed in the same manner, supervision of the child for the duration of each meal, not allowing for any slip-ups such as skipping a snack), can provide oversight after meals to prevent purging and be able to limit exercise. There must be a plan in place for contacting the treatment team, if needed. Following are some ideas for preparing for travel.
Many parents ask about dangling out the promise of a trip as a reward. It is better to tie consequences to behaviors (e.g., 100% meal completion, no purging, etc.) versus outcome (pounds gained). Also, those consequences need to be ones experienced exclusively by the person diagnosed with an eating disorder, not everyone in the family. It is unfair to set up a child in recovery to be responsible for the loss of a vacation perhaps at the expense of other children. The journey toward health is not fully in a person's control. If they are perceived by other family members as "being responsible" for the loss of a vacation, they will undoubtedly feel bad and this will not contribute to their success in becoming healthy. It is better to postpone the trip entirely until the child is healthier
Travel may be attempted late in Phase 2 or preferably not until Phase 3.
Signs that your child or young adult is ready for travel:
- Eats most meals and snacks willingly on a predictable schedule
- Eats a wide variety of foods and does not get upset when there are changes or new foods are presented.
- Can handle eating at restaurants in public and can eat "fast food"
- Has handled a shorter overnight trip away successfully
- Comfortable eating in front of others
- Comfortable having others comment to them about how "well they are doing" and has discussed their reaction to this situation with their therapist.
- Not bothered by seeing others eat, or seeing what foods others choose in social situations (being around a lot of people choosing foods with which they are uncomfortable can be a trigger)
- Purging is under control and occurring infrequently
- Parents feel empowered to step back in if there is a regression during travel
How to prepare for travel:
- Set expectations appropriately - expect that even a dormant eating disorder may reemerge in an unfamiliar setting
- The family and treatment team should discuss ahead of time what could happen, when it could happen, and the appropriate response. Consider writing a contract about expected behaviors and consequences if behaviors cannot be maintained
- Discuss in advance about how to ask others to treat an eating disordered child, and be aware that you will have to coach well-meaning friends and relatives in how to talk with the child. This can feel very awkward and even cause friction with relatives, so if the family is not confident they can handle this they should reconsider whether the risk of the trip is justified
- Talk with the child: how do they feel about travel, being in front of other friends or family, going to restaurants? Discuss the child's concerns with the treatment team. This is a great opportunity to expose other fears, faulty thinking, and worries - and to create plans to combat them.
- Talk to others who will be part of the trip to make sure they understand the plan and can help in handling a difficult situation.
- Before embarking on a long trip, observe how the child copes with a practice mini-vacation (an overnight to a nearby destination, allowing an easy retreat to home if things are not going well)
- Research the cuisine and get menus ahead of time -the treatment team can help adapt the current meal plan to the cuisine at the destination, if this seems necessary
- Before the trip begins, have the child practice eating the type of the cuisine that will be available at the destination
- If travel will involve long car trips, plan out the rest stops and meal locations beforehand. Pack a cooler with the family's regular foods for the trip.
- Plan airplane and airport meals ahead of time and pack extra snacks in case of delays (remember that liquids are not normally allowed through security)
- If dealing with time changes, discuss with the treatment team how to arrange for this. It is recommended to maintain consistency in the intervals between meals and snacks despite any changes in time zone
- Set consequences for uneaten meals and/or purging: finishing food back in the room with a parent, restriction of activities until all food is eaten, more supervision and so on. The family should discuss a plan with the treatment team and feel confident that they will be able to follow through on the plan. They must not be intimidated by the eating disorder, even if it means making a scene in front of others.
- Buffets may be especially overwhelming to a child with an eating disorder - parents should consider either eating at restaurants with a menu option or making their child's plate if a buffet is unavoidable.
How to feed on vacation:
- Maintain as consistently as possible the feeding routine established at home. Keep a regular structure of meals and snacks. This is the number one priority
- Provide the same supervision during and aftermeals as at home
- Follow through on any consequences that have been established, even if it means "ruining the vacation"
Try to remember that putting your child's recovery first and putting off all nonessential travel until your child is weight restored will go a long way to improving their chances for a full and faster recovery. Once they are well, you will be able to better enjoy your vacations. Much further on in recovery, travel can be a great opportunity to expose him/her to new foods, new routines and increased flexibility.
About the authors:
Lauren Muhlheim is a clinical psychologist who specializes in evidence-based cognitive behavioral psychotherapy and family-based therapy (FBT) in the Los Angeles area. Therese Waterhous is a licensed dietician who also is a F.E.A.S.T. advisor. Both have trained at the Train2Treat4ED Institue and specialize in FBT as private practitioners.
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"Our victory today is that my daughter ate ice cream for the first time in 2 years! She said the girls at school were getting some and, "well mom I had a dollar so I bought some too!". This is a huge victory over the rigidity of ED....and a beautiful example of her new found freedom to be spontaneous!!" - Mom4ever
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F.E.A.S.T. News
New on the Website
The F.E.A.S.T. website's exclusive articles now includes the article, "Dangers of Dieting a Body Adapted to Famine" by Shan Guisinger, PhD, Clinical Psychologist. "Genetic studies have found that weight is as heritable as height, yet many people wake up every day hating their weight and scorning those who are fatter. Although tallness and thinness are both valued, there isn't widespread contempt of short people; height is seen as beyond the individual's control. If a short person woke up every day hating her height we would question her sanity and values."
Lauren Muhlheim, Psy.D., CEDS provides practical advice for middle/high schools and international schools in ways to support students with eating disorders.
F.E.A.S.T. Family Featured in News Article
F.E.A.S.T. members in Australia were featured in an article,
Family Ties Helping Teenager Rise above Eating Disorders, in The Age newspaper discussing Family-Based Maudsley Treatment. The article spotlights important progress in eating disorder treatment and the hard work clinicians and families are doing to successfully treat patients. According to the article,
"At the Royal Children's Hospital, admission rates have dropped by 56 per cent since the treatment started in 2008. Of the 83 per cent who complete the six-month program, 97 per cent fully recover."
F.E.A.S.T. Translated into Italian
Thanks to new member, Giada Zichittella from
www.labicidirosalina.com, we can now offer translation of
F.E.A.S.T.' s mission statement and principles
in Italian. Thank you, Giada! |
"We had dinner together last night as a family. Not a meal plan dinner. Not a dinner designed around calories. A regular dinner with regular food. We cooked
real food, served on real plates, with regular portions - and conversation that didn't revolve around eating disorders. I was wondering if this would ever happen again in my lifetime." - jangled
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 UK Task Force News
Several members of the UK task force attended the Eating Disorders International Conference in London. The task force is working hard to plan a joint conference with Professor Treasure in Nottingham in November, 2012. Plans for this are still quite tentative but they hope to include, by popular demand, a talk by Professor Treasure herself, plus one from Gill Todd from the Maudsley team and something addressing the needs of siblings.
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Australian Task Force News

Planning is progressing for a two day conference for families and carers of people with eating disorders to be held in Brisbane, Queensland on the 24 and 25th of May 2013. The conference will be a collaboration between four eating disorder organizations including F.E.A.S.T, EDOS (Queensland Government Eating Disorders Outreach Service), Butterfly and ANZAED (Australia and New Zealand Academy of Eating Disorders). Janet Treasure and Daniel Le Grange will be key note speakers.
FEAST members are continuing to providing feedback on the quality and functionality of a pilot National Eating Disorder Collaboration website and other products.
Task force member June Alexander will be co-authoring a book called TwistED intended to unravel the language of eating disorders. She is also working on a text book on Binge Eating Disorder and two new book concepts with Janet Treasure. Another member, Bridget, has presented two talks at training session for clinicians who are working with families affected by eating disorders.
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Medical Task Force News
Task force member, Marybeth, represented F.E.A.S.T. at the Academy for Eating Disorders table at the American Academy of Pediatrics Conference. F.E.A.S.T. resources and materials were well received by conference attendees. The new AED booklets on eating disorders have been so popular among physicians that F.E.A.S.T. is financially assisting in printing more copies for circulation. To obtain booklets for distribution in your area, contact Annie Cox at acox@aedweb.org with "AED Guide" in the subject line and indicate how many copies you need along with the shipping address.
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Mom, It's Not Your Fault
By Jenni Schafer
I am sitting here eating a piece of cake my mom made for my birthday. I am enjoying it. Zero guilt. Why is eating cake a matter of discussion? Because eating --- for me --- used to be a matter of life or death. For much of my life, I was afraid to eat cake and everything else. I struggled with anorexia and bulimia.
For those of you wondering --- and I have heard it many times before --- my eating disorder was not caused by my mother. My mom was not overly controlling or absent from the home. She was not abusive in any way --- no, not even a little. My mom did not put pressure on me to be a perfect student. I did that to myself. My mother is loving, nurturing, and supportive. She is the kind of mom who encouraged me to believe in myself and chase after my dreams; the kind of mom who supported my decision to pursue music in Nashville. She is a mom who will drop everything to celebrate her child's birthday.
However, my mom and I are different in many ways, and she encouraged that too. Like most mothers, she wanted her daughter to find her own voice even if that voice opposed her personal view. As a result, I am not much of a birthday cake maker, and she would never write an article to make a point, this point: Historically, mothers have been falsely blamed for eating disorders. This must stop.
Remember when we thought that autism and schizophrenia were caused by moms? We were wrong to blame mothers then, and we are wrong to blame them now. My mom did not cause my eating disorder, but she did a whole lot to help me get better.
Eating disorders are complex, biopsychosocial illnesses. Leading researchers agree "Genetics loads the gun, and the environment pulls the trigger." Researchers don't believe that there is a specific eating disorder gene but that people inherit a latent vulnerability in the form of traits like anxiety, compulsivity, and perfectionism that can lead to the development of an eating disorder. I definitely have all of those traits, and I believe the environment that pulled the trigger for me was a Western culture that glamorizes thinness. To answer other common questions: No, my mom never dieted, never owned a scale, and never talked about her weight. She has always been a normal weight and had a healthy body image.
Of course, there are other aspects to the "environment" that doctors reference --- life experiences, peer relationships, and yes, even familial components. But this does not mean that families (moms included) cause eating disorders. In my work as a speaker and writer about recovery, I have met individuals with the illness who came from dysfunctional families and suffered unspeakable abuse. But the majority of people --- and I have connected with thousands across the globe --- have loving families who did their absolute best with the information they had at the time.
To fully recover from my eating disorder I found professional help. My mom and dad supported me emotionally and financially. I changed my way of thinking in almost every aspect of my life. I learned to love my body in a culture that doesn't. I learned the value of rest and relaxation in a workaholic's world. I learned that food is just food and does not have a moral value like "good" or "bad." And, my mom's cake tastes very good.
Let's all do less blaming and more thanking. To the moms (and dads) out there, thank you.
Find a video representing this article.
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From the Executive Director's Desk
Laura Collins, F.E.A.S.T
What has over 200 pages, the collected wisdom of an international community, and a new design? The F.E.A.S.T. website.
I want to express gratitude and give credit to our volunteer, Leah D., who took on the task of re-organizing and designing feast-ed.org over this winter. Among the improvements are improved navigation, organization, and graphics.
Already, the rave reviews from parents are coming in, like this one: "It is so well organized and easy to navigate for any new parent and us old timers too!!" Yet the parents who will benefit most are those who have not yet found F.E.A.S.T., and may not yet know their loved one has an eating disorder. Having those mothers and fathers find information to help them seek and participate with treatment is our mission. We are always sorry that parents have to find help, but proud to help them once they do.
The new look and ease of use for the website is really just another example of what we do at F.E.A.S.T. Volunteers, like myself, work from their homes - often while still in the midst of caring for child with an eating disorder - gathering information to share with other families facing the same illness. In addition, our Advisory Panel and other professionals often offer their own expertise by writing or helping to edit content for the site.
Most of our content has been written to answer a question by one of our users. We know if one family has a question then others do too, so we ask our users to help us find the questions AND the answers, and share them with the community.
The questions that parents need answers for often aren't the same as the ones for professionals or the general public. Parents seek practical, problem-solving information and ideas. The answers F.E.A.S.T. parents are looking for are special, too: they want evidence-based information and they want to know the sources. Parents ask us not to talk down to them, and not to shy away from difficult issues.
F.E.A.S.T. is a community of thousands around the world, and growing. Our website is a living document, and we welcome your help keeping it a vital resource. See a page you think needs updating? Don't just let us know: help us do it. Have a question you don't see answered? Don't just suggest it: let us know what you learn on the topic and send it on so we can include it. Corrections, translations, additions: we welcome and depend on them!
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Tentative dates for F.E.A.S.T. Symposia Announced
Mark your Calendar
November 16-17, 2012
UK F.E.A.S.T. Symposium
Nottingham, UK
November 30-December 1, 2012
F.E.A.S.T. Symposium
Alexandria, Virginia US
May 23-25, 2013
Australian Eating Disorders Conference for Families and Carers
Brisbane, Australia
VOLUNTEER FOR A CONFERENCE PLANNING COMMITTEE!
Be a part of a fun, efficient team of wonderful volunteers, time committment is flexible: info@feast-ed.org
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Dear F.E.A.S.T. Member:
Thank you! You are receiving this newsletter because you are one of our 1601 members: families, clinicians, patients, and organizations from 27 countries. We depend on you and appreciate your continuing support and interest in F.E.A.S.T. (Families Empowered and Supporting Treatment of Eating Disorders).
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Upcoming Events
Academy for Eating Disorders International Conference
May 3-5, 2012
Austin, Texas, US
** F.E.A.S.T. Executive Director is Plenary panelist and giving a workshop with b-eat's Susan Ringwood.
MEDA's 17th National Conference
May 18-19, 2012 Needham, Massachusetts, US
National Eating Disorders Association Annual Conference
October 11-13, 2012
St. Petersberg, Florida, US
Eating Disorders Alpbach 2012
The 20th International Conference on Anorexia and Bulimia Nervosa, Binge Eating Disorder and Obesity.
October 18-20, 2012
Alpbach, Tyrol, Austria
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F.E.A.S.T. Advisor News
Stephanie B. Milstein, Ph.D participated in a family based treatment event hosted by the Hough Center for Eating Disorders at Beaumont Hospital on the Monday of Eating Disorder Awareness and Prevention Week. She expressed that they were very proud of the brave adolescents and their parents who spoke of their recovery experiences using FBT. Participants provided live testimonials that recovery is possible and happen with team work, family involvement and a lot of perseverance! Stephanie also is meeting up with other advisory members and Executive Director Laura Collins at the upcoming AED conference in Austin, Texas this May and rejoining committee members to work on planning for the upcoming U.S. FEAST conference.
Cynthia Bulik, Ph.D. received notice that she and Don Baucom will be funded to do the next clinical trial of UCAN, Uniting Couples in the treatment of Anorexia Nervosa. They will be funded for five years to compare multimodal treatment with a UCAN component to treatment delivered entirely on an individual basis and are excited about the next phase of extending family treatment to partners and spouses of adult patients.
Dr. Walter Kaye reported that the Intensive Family Therapy for Adolescents with Anorexia Nervosa program at UCSD in San Diego recently published a paper in the European Eating Disorder Review regarding outcomes for the first 20 families to participate in this program. This paper is available on our web site, http://eatingdisorders.ucsd.edu/. The study shows substantial success in terms of weight restoration and maintenance at an average of 9 months post-treatment. This approach provides improved understanding, communication and capacity for growth and change for families and their loved ones.
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F.E.A.S.T. Symposium Videos Now Available
By The Alexandria 2011 Planning Committee
Thanks to talented and generous volunteers from American University, videos taken at the F.E.A.S.T. Symposium held in Alexandria, Virginia in November 2011 are now available online for viewing for MEMBERS ONLY (please do not share). View a playlist of all videos, Dr. Insel's talk and winning Posters and Powerpoints .
Here at F.E.A.S.T. we're all still talking about the dream team of speakers, the families we met, the science, and the emotional impact of the gathering. In fact, the event was such a success that we've already started work on conferences in the US, the UK, and Australia in 2012 and 2013.
Thank you again, everyone, for your participation and your role in making this event a meaningful and lasting success.
Enjoy!
VOLUNTEER FOR A CONFERENCE PLANNING COMMITTEE: Be a part of a fun, efficient team of wonderful volunteers, time commitment flexible: info@feast-ed.org
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"When it began to sink in that my son had "severe restrictive anorexia nervosa" I began to weep for all of the young women and their mothers I had read about who had been blamed and judged. I myself believed that if someone could just reason with them they would eat. My son would have died before he ate -that was clear. It was like a veil being lifted and a completely new understanding was happening. I remember before RA thinking how much I understood about life and how smart I was - then my son was stricken. Now I have a new awareness and an openness to things I don't understand. I have compassion and a real hesitation to judge others." - trusttheprocess
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