November, 2012
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Story Sparks 

"Stories are the sparks that light our ancestor's lives, the embers we blow on to illuminate our own"

 

 

 

Greetings!  

 

 

"For each new morning with its light,

For rest and shelter of the night,

For health and food,

for love and friends,

For everything

Thy goodness sends."

Thanksgiving by Ralph Waldo Emerson

  

A friend sent this perfect prayer to me. Perfect because of the sentiment and perfect because Dorothea Dix, subject of my historical novel coming out in April, lived not far from Ralph Waldo Emerson and I think she would have agreed with what he wrote being the compassionate crusader that she was. I do. And it's perfect for the season with Emerson titling it Thanksgiving.

 

In my caregiver support group I've been attending since Jerry's stroke and heart attack a year ago, we're encouraged to keep a kind of Thanksgiving or gratitude journal. I don't but I do spend a few minutes each morning being grateful for at least five things noted from the day before: new windshield wipers put on before the big storm; no power outages in our neighborhood; identifying the latest infection for Jerry and his getting shots for it; finding the acupuncturist's office without difficulty; sleeping nine hours as Jerry was able to sleep through the night so the dogs and I did too. Small, seemingly insignificant things, details that speak to the quality of life. People often say that the devil is in the details but I'm of the opinion that God gets there first.

 

Jerry sneezed on October 12, such a small, involuntary thing. Then his back went into spasms followed by his digestive system going on strike perhaps in response to the medications reducing the spasms. His bladder refused to cross the picket line and suddenly we were in the swirl of MRIs, CT scans, X-rays, bone scans, ultrasounds and emergency room visits (why do the complications peak on the weekends!) trying to find the causes and appropriate treatments. Three hospitalizations, one back brace, a kyphoplasty (procedure to inflate and place a gel inside a broken vertebrae), massive amounts of antibiotics meant to get his digestive system working and catheters, walkers, and nearly six weeks later, Jerry is home from the hospital and now fighting a bladder infection but we're hopeful. A good night's sleep does wonders.

 

In the interim we've had prayers and healing thoughts sent our way by the dozens. Once I let go of the guilt of canceling events I found I wasn't such a nurse Ratched after all and maybe I could channel Florence Nightingale (except for the shot parts; I still can't do those). Friends from church and beyond have brought us food; neighbors watched dogs while I spent hours in the hospital; Jerry's daughter arrived from Florida for 10 days and she not only likes to cook but plans meals ahead! Imagine that! Jerry always said he was the cook in our family as a matter of self-preservation. Our friend Sandy has come twice to stay, walk the dogs, encourage healing so we can travel together once again next year.   My caregiver support group kept right on supporting even when I couldn't attend. Just knowing they were there was a help.

 

Each day I found the gratitude exercise to be both comforting and rich with hope: The hose didn't freeze when I forgot to take it off the outside bib; I remembered to get dog food before we ran out; the people at DMV were patient and helpful about a lost title I was trying to retrieve; we lived close to a superb hospital, exceptional physicians and extraordinary nurses and therapists; Jerry ate a good dinner (he's lost 15 pounds); we didn't have to go through any of this during a hurricane.

 

So in this season of Thanksgiving Jerry and I find ourselves grateful for too many things to recount. We've sent prayers and funds to those recovering from hurricane Sandy and we pray that you will recognize the treasures in your lives this season and extend your own mental health by being generous to those in need. And as Emerson noted, be grateful for "everything Thy goodness sends."

In This Issue
Jane's Schedule
Word Whisperings: The Revised Fundamentals of Caregiving

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Be sure to check the website for cancellations. Decisions are made one day at a time based on Jerry's health. Hopefully by March and Beachside Writers we'll be back in sync. The dates for that writer's workshop/inspirational weekend are March 1-3 in Yachats, OR. It would make a great Christmas present for the writer in your life!

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For all event information and updates, please visit Jane's website and click on News and Events. Thanks! 

 


Word Whisperings

 

 The Revised Fundamentals of Caregiving, A Novel by Jonathan Evison. (Algonquin of Chapel Hills Press, 2012).

 

A favorite writer of mine, Wendell Berry once wrote that "parenting is a vexed privilege and a blessed trial." I've only been a step-parent but I can relate to that. This latest book by Jonathan Evison (West of Here) is truly a remarkable story of parenting and caregiving and all the privileges and blessings as well as the vexations and terrible, terrible trials that can arrive in the lives of families. This book is full of joy and sorrow. It involves a guy - Ben Benjamin - who trains as a caregiver and is hired to assist Trev, a twenty-five year old man with Muscular Dystrophy. The detail of that care intermixed with the relationship of our narrator with the young man's mother and distant father, with Ben's friend, Forrest, who is having his own troubles with his wife, and Ben's own wife who is suing him for a divorce, and flashbacks to adventures on road trips with Ben's kids, unpeels a story that made me laugh and cry, often. I have to say that few books make me do both. Rarely as much and with such grace as this book. With exceptional skill we discover as readers a terrible tragedy has occurred in Ben's life. A great tragedy and with Ben we take the journey toward forgiveness and healing that all must take if one is to live again after an unspeakable disaster.

 

I heard Jonathan speak about this book. Well, really, he wrote an essay we could read because he said talking about the circumstances of what inspired this story just made him cry. In his essay, he wrote of a time when his 16 year old sister asked to go on a road trip with some friends. Her mom said no. Her dad said he thought she had a good head and could be trusted. Dad prevailed. She went -- and was killed in a freak car accident. The parents divorced and the pain of that time stayed with him, the sibling who survived.

 

This book is so full of hope, so rich with unique characters and yet ones we recognize as neighbors. It captures the frustrations of parenting and being a spouse and handling all the everyday things required as a caregiver while still taking care of ourselves. His metaphors and similes are fresh and focused. He is a fine, fine writer.

 

Maybe this book carried more weight with me because I read it while I was struggling with being a good caregiver -and still am. Maybe this book touched me because it wrapped up my experiences as someone involved with the disabilities field and admiring over and over again the great work of parents and foster parents who give so much to their children with special needs. Maybe it's because our family faced the terrible tragedy of a child's death. But mostly I think I love this book because it captures the essence of love and redemption written in ways that heal the soul.

 

Another favorite writer of mine, Parker Palmer, wrote that if one is involved in "parenting, healing or teaching" then one is doing good work for the world. Jonathon Evison in The Revised Fundamentals of Caregiving does all three and does it with class. I so hope you will read this book.

 

While I seem to be on a caregiving theme in this issue here's a reminder that my own devotional for caregivers will be out in February. Promises of Hope for Difficult Times was written before this latest series of health challenges for Jerry and I admit...I re-read some of what I'd written to give myself encouragement! The book is composed of short, scripture based thoughts about taking care of others and ourselves. I hope when it's released you'll find it an encouraging resource as you care for people in your own lives. Meanwhile, I hope you had a blessed Thanksgiving and thank you all for the caring you've done throughout the year for me and mine. You are gifts indeed.

 

 

 

 

Warmly,

 

Jane Kirkpatrick