It is difficult to predict anyone's reaction to the death of someone close to them, and individuals on the autism spectrum will be no different. Each person's reaction will be unique to him or her. For people on the autism spectrum, it can be difficult to express feelings of grief after experiencing the loss of a family member, friend, or pet. These reactions can be difficult for families and caregivers to understand. It is important that family members and caregivers be able to support the person with autism spectrum disorder and help them work through their feelings of grief.
People with autism often depend on routine, predictability and structure to move through their daily routines. When there is a loss, those routines are disrupted. People around them are upset and daily activities may not happen as usual. When it is possible, it is helpful to prepare the person with autism spectrum disorder in advance for what is happening. For example, if someone in the family is ill it is helpful to explain the illness, need for doctor's appointments, and the possibility of death to the person with ASD. This can help to reduce anxiety both surrounding the illness and if the person dies.
It is important to use direct language and avoid euphamisms regarding death. Since individuals with ASD can interpret language literally, say, "the person died," rather than, "the person passed away." Religious beliefs and routines surrounding death, such as a funeral, can also be explained to the individual.
Sudden death is upsetting to everyone, people with ASD are not an exception. It can be helpful to reduce anxiety by assuring them that what happened to their loved one is not going to happen to them. It can also be helpful to make books or visual materials to help them process what has happened.
Reducing confusion surrounding grief, death, and dying will help to reduce the anxiety and challenging behaviors that a person with ASD may experience.
Book of the Week: Grief is like a snowflake / by Julia Cook ; illustrated by Anita DuFalla. Grief is like a snowflake : activity and idea book : supplementary teacher's guide / by Julia Cook ; contributing editory, Cathy Fox ; illustrated by Anita DuFalla. National Center for Youth Issues, 2011.
Description: "The purpose of this book is to offer grief facilitators, educators, and parents hands on activities that explore the grieving process. Participants will gain a better understanding of what grief is, how to personalize it, and how to endure it. The activities are practical, easy to implement, and meaningful."--Back cover.
This book is in the SESA Library. You may search the library catalog via the SESA website (http://www.sesa.org), or contact Anne directly by email at afreitag@sesa.org or by phone at 907-334-1301.
