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Patient News 

 

Annual Patient Workshop

 

Save the date:

Sunday

 February 17, 2013

 

Hilton Dallas-Fort Worth Lakes Executive Conference Center 

 

 

Therapy Tip

 

A change in the need

for thyroid hormone supplement can occur quickly when patients are on Inflammation Therapy. It's important to regularly monitor thyroid function with TSH, Free T4 and Free T3 so appropriate supplement adjustments can be made; in order to avoid symptoms of hypothyroidism or hyperthyroidism.

  

 

Recovery Reports

 

We are contacted daily by people with chronic illnesses who are looking for an effective treatment. Many ask us to provide evidence of efficacy in the form of statistics or stories. If you have recovered your health or had significant symptom improvement with Inflammation Therapy (or a similar treatment), please help us 'pay it forward' by telling your story. We will post it in the public section of our website to encourage others. Any report, short or long, with or without objective data (e.g., lab results, imaging reports) would be helpful. Please

send your story to

our email .

Thank you!  

To see the latest recovery reports,

click here. 

 

CIR Library Access

 

Access to our free, extensive, easy-to-read Library of Information

 (see this sample page)

and Physicians' Reference Library is available to anyone, without enrollment in our counseling program. If you're interested in using this resource, please send a request to our email

 address along with your doctor's name and fax number (in the US or Canada) or his/her email address, so we can notify your doctor that you have access to this information.

A list of the articles in our libraries is available at this link.

 Physicians may use CIR libraries even if they don't have a patient enrolled in our counseling program. Interested medical practitioners should contact CIR and ask to register.

 

Survey

 

Volunteers who have a diagnosis of autoimmune or inflammatory disease or are chronically ill but who are not being treated with Inflammation Therapy, the Marshall Protocol or the Stillpoint Protocol are needed to be in the control group of our long-term clinical study. If you meet these criteria and would like to take part in this project (which will only take a few minutes

each month), please 

contact us at our  

email address.  

 

 CIR is an IRS-recognized 501(c)3 non-profit charitable organization. 

Donate to CIR

 in support of our educational and research efforts. 

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Contact Us
you may phone us toll free from anywhere in the US and Canada
1-888-846-2474
Skype
Chronic.Illness.Recovery
 
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Have you enjoyed this newsletter?

  

Gray 

 

 

  

HONcode 

  

The Internet has become an important communication tool but it isn't always easy to tell which information is reliable. When it comes to your health, it's important to be sure you're accessing a credible source. Health On the Net Foundation has certified that the Chronic Illness Recovery website and forum conform to the principles of the HONcode for the dissemination of trustworthy health information for patients and professionals. The HON seal on our website is your assurance that we're providing medical information

you can trust.

Click here

 for details.

 

 

Issue: 36
November 2012
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Greetings!

    

We have entered what is always a busy time of year, with lots of projects to complete and added activities on the calendar, like friends and family to visit and good times and food to enjoy. Trying to "do it all" can be mind-boggling, so remember to commit to do only the most important things first. Recovering patients must keep caring for themselves at the top of that list and go at their own pace.

 

We at CIR recognize that the most important work we do is caring for patients. Thank you for trusting us. Thank you for your encouragement in our volunteer work, and thank you for your financial support.  CIR appreciates your financial gifts that help us fulfill our mission and fund many aspects of our services. You can contribute using PayPal or through our online payment page.

 

May we all be thankful for the love and support that surrounds us every day.

 

 

signature            Belinda 

 
 
Patient Workshop Program

  

 7:30  - 8:30 Breakfast Buffet

 8:30  - 8:45 Welcome - Belinda Fenter

 8:45  - 9:15 Bacterial Etiology of Chronic Inflammation - Kelly Fincher

 9:15  - 9:45 Introduction to Inflammation Therapy - Meg Mangin R.N.

 9:45 - 10:00 Break

10:00 -10:30 Recovery from Sarcoidosis - Belinda Fenter

10:30 -11:00 Recovery from PCOS - Dr. Barry Rodgers

11:00 -11:30 Recovery from Pemphigoid - Clarence Creacy

11:30 -12:00 Clinicians' Q & A panel - Dr. Barry Rodgers,

                   Dr.Charles Malis, Dr. Neil Hirschenbein

12:00 - 1:30 Lunch

 1:30  - 2:00 Recovery from Hypothyroidism - Debbie Yeager R.N.

 2:00  - 2:30 Recovery from Chronic Lyme Disease - Kelly Fincher

 2:30  - 3:00 Recovery from Cardiovascular Disease - James Graves

 3:00  - 3:15 Break

 3:15  - 3:45 Recovery from Fibromyalgia and Diabetes II

                   Rebecca Sinha

 3:45  - 4:30 Round Table discussions:

                   Family Support & Methods of Coping

 4:30 -  5:00 Adjourn and Evaluations

 

See this website page for details about registration.

      

About Inflammation Therapy 

 

This study of 25-hydroxyvitamin-D (25-D), published August 2012 in the Journal of Endocrinology Metabolism, found "if blood contains less than 2.5 ng/mL of 25-D (6.24 nmol/L), mortality is 2.31 times higher. However, if the blood contains more than 56 ng/mL of 25-D (139.7 nmol/L), mortality is higher by a factor of 1.42. Both values were compared to 20 ng/mL of 25-D (49.9 nmol/L), where the scientists saw the lowest mortality rate."

A reverse J-shaped association of all-cause mortality with serum 25-hydroxyvitamin D in general practice: the CopD study.

  

On Oct. 24, 2012 the journal PLOS ONE published new guidelines regarding vitamin D supplementation from the Institute of Medicine, based on this study by Loyola University Chicago Stritch School of Medicine researchers.

Mortality Rates Across 25-Hydroxyvitamin D (25[OH]D) Levels among Adults with and without Estimated Glomerular Filtration Rate <60 ml/min/1.73 m2: The Third National Health and Nutrition Examination Survey.

 

The new guidelines advise that almost all people get sufficient vitamin D when their blood levels are at or above 20 nanograms per milliliter (ng/ml). Older guidelines said people needed vitamin D levels above 30 ng/ml.

 

This is not much higher than our recommended range of 8-15ng/ml which we believe is adequate to ensure production of enough 1,25-D (the active metabolite) that is essential for many metabolic functions. We advise 25-D not go too high because that encourages elevation of 1,25-D in people with chronic inflammation and dysregulated vitamin D metabolism, which may increase inflammatory symptoms. The symptom relief some experience with higher levels of 25-D likely happens because 25-D increases production of 1,25-D which can suppress immune system function and reduce inflammatory symptoms related to the immune system's efforts to eliminate intracellular pathogens.

 

If your doctor wants to see your 25-D higher than the IT recommendation, it's fine to increase it to 20ng/ml. There is NO evidence that 25-D suppresses the immune system, but a higher level than that could increase inflammatory symptoms.

 

The Mayo Clinic has published a long list of side effects of vitamin D supplementation. 

 

If needed, it's best to increase 25-D by increasing your intake of foods naturally high in vitamin D, rather than supplementation or sunlight exposure. Then recheck your 25-D level in a couple months to make sure it's not too high or too low.

 

 Scientific Articles

  

In this exciting study recently published in Modern Pathology, Japanese scientists tested the hypothesis that Propionibacterium acnes is an etiologic agent of sarcoidosis. They found greater than 50% reactivity: 57% in lung tissue and 88% in lymph node. They also found bodies that might be intact forms of intracellular bacteria, because they lacked a cell wall structure.

 

The P. acnes trigger-factor protein induced pulmonary granulomas only in mice with latent P. acnes infection in their lungs. Eradication of P. acnes by antibiotics in these mice prevented granulomas, which might explain the recently reported effectiveness of tetracyclines for treating sarcoidosis.

Localization of Propionibacterium acnes in granulomas supports a possible etiologic link between sarcoidosis and the bacterium.

 

This study concluded that sarcoidosis may arise from an imbalance of Th1/Th17 immune responses against viable P. acnes, but not M. tuberculosis complex.
Th1 and Th17 immune responses to viable Propionibacterium acnes in patients with sarcoidosis.

 

About Chronic Illness Recovery

  

As many of you may know, CIR is conducting a long-term survey. This is an important endeavor to provide proof to the medical community and the chronically ill that Inflammation Therapy is a valuable treatment option that improves patients symptoms and their quality of life. One day we hope to see Inflammation Therapy as an accepted and standard form of medical treatment for inflammatory diseases across the globe. This will only happen with proof provided by using proper scientific rigor. CIRīs monthly survey is our effort to help make this happen.

 

We greatly appreciate the people who take 20 minutes of their valuable time to fill out the survey every month. This is a long term project that requires several years. We estimate a commitment of 3 to 5 years for each person who is kind enough to participate. Thank you so much to all our wonderful volunteers and we look forward to your continuing support.

 

Patients enrolled in the CIR counseling program are invited to participate in the survey. If you are a patient with a chronic inflammatory disease undergoing standard medical care and would like to be in our control group please contact CIR to become a part of our survey volunteers.

 

Thank you from all the CIR Staff. 

Rebecca Sinha, Research Director

 

Quotes 

 

"The fact that I don't feel that fatigue and exhausted like the way I felt before the IT give me so much hope and encouragment. I know some other symptoms will take more time to heal. Thank you so much." Ivy

 

"The terrible sinusitis that I used to get and the awful almost constant headaches that is a part of it have all but disappeared. I get funny buzzing noises in my ears that I just thought everyone had, but now realize that that is not the case and it is a condition that has a name; tinnitus. It has improved a lot. I was always at the doctors with silly stupid annoying problems (e.g. coughing) to the point of vomiting every day. That has almost completely stopped. I used to get respiratory infections from colds and flu every year and would be sick for weeks at a time. I never get that sick now." Sunshine

 

 

 

 

 

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