|
|
|
Introducing PEGS 2nd Edition, new P4C Webinar and DCD Physician Module UK version!
|
|
|
Greetings!
Welcome to the September edition of CanChild Today! In recognition of World CP Day (October 7), we are excited to share cerebral palsy resources, events and news with you.
This marks the last edition of CanChild Today! before we reveal our new look and a brand new website. Stay tuned!
Please feel free to share CanChild resources and this newsletter with family, friends and colleagues. They can subscribe to the CanChild Today e-Newsletter for free by registering here. Our past issues are archived on the CanChild website, and can be accessed here!
|
Fast, Intuitive & Responsive - A New CanChild Website is Coming!
We are thrilled to announce that a newly designed website and a fresh look for
CanChild is coming soon.
Featuring a responsive design, simplified navigation and an enhanced search function, our new site has been crafted to make accessing credible, evidence-supported information easier than ever.
We look forward to sharing the new CanChild site with you on October 5th!
|
|
October 7 is World CP Day!
|
|
2nd Annual CP-NET Science & Family Day
Celebrate World CP Day with a day of learning about the
newest CP-NET research and community resources!
|
|
October 7th, 2015 | 9:30am - 4pm
Holland Bloorview Kids Rehabilitation Hospital
Space is limited. Register by October 2nd!
$25 client / caregiver / family-member
$40 clinician / not-for-profit rep / other
|
|
CP-NET Science & Family Day Photo Contest
The CP-NET Science & Family Day Photo Contest is intended to showcase what children and youth with cerebral palsy can do! Vote for your favourite photos by clicking on the "like" button. Prizes will be awarded to the top two photo submissions, as selected by CP-NET site users.
Winners will be announced at CP-NET Science and Family Day (October 7, World Cerebral Palsy Day), which will also feature an on-site exhibition of top photos!
Voting closes September 28th at 11:59 pm.
|
|
Get Involved in Research!
|
|
MyStory Project
Most brain research for people with CP focuses on early brain development. Less is known about how the brain changes through the teenage years and into adulthood. The MyStory Project will study physical health (fatigue and pain), mental health (anxiety and depression), chronic stress and overall well-being in adolescents and young adults with CP between the ages of 16-30.
|
|
Featured CanChild CP Resources!
|
|
Sleep Issues Among Children with Cerebral Palsy
This "Keeping Current" provides readers with research-supported information regarding occurrence, assessment and intervention for sleep issues in the context of children with CP. Read more.
Adolescents with cerebral palsy: Transition to high school
The transition from elementary to high school can be a time of new beginnings, new challenges and new friendships; however, this transition needs to be managed carefully. These helpful flyers can be used as tools during the transition to high school process:
Tips for parents of children and youth with cerebral palsy, from parents
Research exploring experiences of parents raising children with CP has uncovered advice and tips for new parents of children with CP to help them on their way through this experience. Read more.
Use of the Gross Motor Function Classification System to Optimize Rehabilitation Management of Children with CP
The Gross Motor Function Classification System (GMFCS) has been developed as a reliable method of classifying children with CP into categories that many people believe assists with management decisions. Importantly, the GMFCS is structured around a child's ability to function, rather than on severity, type, or distribution of motor involvement. As such, it has inherent meaning for parents, therapists, and physicians. Read more.
|
| Recent Publications by CanChild Members |
Gastronomy tubes (G-Tubes) are a frequently used technology for children with neurologic impairment. This study explored the impact of G-tubes from the family's perspective. The study found that their experiences are diverse, affecting the lives of children, parents, and the family unit in both positive and negative ways. Relevance for families: Previous studies have shown that families feel they receive inadequate information during the decision-making process. Clinicians may use this study to inform conversations about family values, experiences, and expectations before and after G-Tube placement. Authors: Nelson KE, Lacombe-Duncan A, Cohen E, Nicholas DB, Rosella LC, Guttmann A, Mahant S.; Pediatrics. 2015 Jul;136(1):e140-51. doi: 10.1542/peds.2014-4162.
Participation in leisure activities is a key component in physical and emotional health for all youth, including those with CP. In this study, school-aged children (6-12 years) with CP were recruited for a study on participation and reassessed for a second study after they had reached adolescence (12 - 19 years). Results suggest that both participation in, and enjoyment of, leisure activities declined in youth with CP over time, despite the finding that their desire to participate persists. Relevance for families: Adolescents report that participating in activities of their choice contributes to their quality of life; therefore, it is important for families and clinicians to explore strategies to enable their participation. Authors: Majnemer A, Shikako-Thomas K, Schmitz N, Shevell M, Lach L. Res Dev Disabil. 2015 Sep 2;47:73-79. doi: 10.1016/j.ridd.2015.08.009. [Epub ahead of print]
|
Canadian Anti-Spam Legislation
You are a member of the CanChild Today electronic newsletter generated by CanChild Centre for Childhood Disability Research at McMaster University. If you believe that you should not be a recipient, you may withdraw your consent to receive these messages at any time, in accordance with Canadian Anti-Spam Legislation (CASL) and subject to McMaster University policy, by contacting the sender of this message, or by clicking on the 'SafeUnsubscribe' link at the bottom of this newsletter.
|
|
|
|
|
|
|
Support
CanChild |
If you find the CanChild resources useful, please help us to continue sharing the most current information with families and service providers by donating to CanChild. You can do this online by clicking here. Donating online is now much easier and provides an immediate electronic receipt.
| | Contact Us: if you have any questions or comments, please contact us at canchild@mcmaster.ca. |
|
|
