CP-NET Webinar Series Starting January!

Starting in January 2015, CP-NET will be hosting a monthly webinar series. Our first webinar is scheduled for Friday January 9th, 2015 at 12:00 p.m. (EST)

Presenter: Dr. Peter Rosenbaum

Topic: Complementary and Alternative Therapies for Children with CP!

To find out more about this webinar or to register, please click here!

• A recent publication by CanChild's international collaborators at PenCRU brings together information about how disabled children have been 'involved' in health-related research. Being 'involved' in this sense means being part of the research team, not someone having research done 'on', 'to' or 'for' them. The review includes real examples, as well as papers describing researchers' reflections. The paper provides helpful practical tips to guide researchers who want to involve disabled children & young people in research. You can find a summary of the paper on the Child: Care, Health and Development website here. An accessible plain language summary of the paper is also available here. Authors: S. Bailey, K. Boddy, S. Briscoe and C. Morris
  
   
• Development and implementation of a paediatric rehabilitation care path for hard-to-reach families: A case report Published in Child: Care, Health and Development, this case report describes the development of a care path to promote engagement with "hard-to-reach families" (defined as families who are eligible for service, but are difficult for service providers to engage). The care path (called MATCH: Making Alternative Therapy Choices Happen) was developed and implemented at a children's rehabilitation centre using clinician input. The MATCH care path illustrates a practical application of the principles of best-practice for engaging hard-to-reach families. Continued evaluation is planned to determine the effectiveness of MATCH implementation in reducing missed appointments and promoting family engagement. Authors: M Phoenix, P Rosenbaum. Abstract.
  
   
• Development of a Conservative Protocol to Return Children and Youth to Activity Following Concussive Injury. The purpose of this knowledge translation research published in Clinical Pediatrics was to develop evidence-based materials to inform physicians about pediatric concussion. Three main themes emerged after conducting a scoping review on current guidelines for Return to Activity (RTA) and Return to School (RTS) for children with concussion. These themes include: 1) existing consensus based adult protocols are not appropriate for children; 2) more conservative protocols were needed for children; and 3) protocols for children must include return to all activity including sport and school. A RTA protocol was developed based on these themes and stakeholder opinion. This new protocol is grounded in our current understanding of concussion recovery, which requires graduated return to all activity. This protocol provides a foundation for making clinical decisions on a case-by-case basis for children and youth who have both rapid and prolonged recovery from concussion. Similarly, a protocol for Return to School (awaiting publication in Clinical Pediatrics) has been developed to compliment these Return to Activity guidelines, as a balance of cognitive rest and timely return to school must also be considered. Authors: C. DeMatteo, K. Stazyk, S. Singh, L. Giglia, R. Hollenberg, C. Malcolmson, W. Mahoney, J. Harper, C. Missiuna, M. Law, D. McCauley
    

CanChild Research Associate  Dr. Olaf Kraus de Camargo and Dr. Patricia Saleeby will be chairing a special exploration topic on the International Classification of Functioning, Disability and Health (ICF) at the Pacific Rim International Conference on Disability and Diversity (May 18/19, 2015). They are seeking proposals that demonstrate how the ICF can be used to positively impact the overall health and well-being of individuals around the globe. To find out more about the conference and how to submit an abstract click here!

Happy Holidays and All the Best in 2015!