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Greetings!
We are delighted to distribute our CanChild e-newsletter featuring more resources on the CanChild website, as well as recently published articles that may be of interest to you! In this issue, we have highlighted publications by CanChild scientists, research associates, and international collaborators. As well, we have provided links to new resources on the CanChild website (www.canchild.ca). Please feel free to share CanChild resources and this newsletter with family, friends and colleagues. They can subscribe to CanChild Today for free by registering here.
Check our 'What's New' page for new postings and announcements on our website.
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Accelerometry is a Good Way to Measure Daily Physical Activity
This In Brief by Dr. Gorter and Stephen Noorduyn describes the Stay-FIT pilot study. The purpose of this study was to test the ability of an accelerometer to measure physical activity in youth with cerebral palsy (CP) at all GMFCS levels, and their levels of activity. The study team was particularly interested in the amount of time youth do moderate to vigorous physical activity. The study confirmed that most young people with CP have less than 60 minutes per day of moderate to vigorous physical activity. Tips and guidelines to reduce sedentary behaviour in young people are provided. Click here to view In Brief.
NEW Concussion guidelines for children are now available on our website!
Mild traumatic brain injury or concussion is a common pediatric problem of increasing incidence. Children and youth are at greater risk for additional injury and prolonged symptoms if they return to activity too soon. Return to Activity and Return to School brochures were developed as part of a knowledge translation project Education is the Key to Protecting Children's Brains. These evidence based materials are being disseminated to physicians, allied health and school personnel to help consistently manage the care of children with mild traumatic brain injury. Click here to read more.
Focus on the Outcomes of Communication Under Six (FOCUS)
The FOCUSİ is a measurement tool designed to measure change for preschool children receiving speech and language therapy. It links speech and language treatment to the child's ability to communicate and participate in their world. The FOCUSİ was created at the Holland Bloorview Kids Rehabilitation Hospital. The development team included researchers from the Holland Bloorview Kids Rehabilitation Centre, CanChild, and Laurentian University. The FOCUSİ is a valid, reliable responsive treatment outcome measure that consists of 50 items and takes 10 minutes to complete. There are two versions of the measure, one designed for parents and one designed for speech-language pathologists. To read more about the FOCUSİ, click here.
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Recent Publications by CanChild Scientists, Research Associates, & International Collaborators
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Immunization uptake in younger siblings of children with autism spectrum disorder
The objective of this study published in Autism by Canadian researchers was to compare immunization uptake by parents for their younger child relative to their older child with autism spectrum disorder (ASD), compared to controls. The sample consisted of parents of 98 younger siblings of children with ASD, 98 older siblings with ASD, and 65 'low risk controls'. Results: Parents of children with ASD in the sample have delayed or reduced the overall immunization rates in their younger children, compared to the general population and to their older children with ASD. Authors: GA Kuwaik, W Roberts, L Zwaigenbaum, S Bryson, IM Smith, P Szatmari, BM Mackinnon, N Tanet, J Brian. Abstract.
Caregiving, single parents and cumulative stresses when caring for a child with cancer
The aims of this study were to explore how single parents of children with cancer describe their caregiving experiences and to understand their related life stressors. Qualitative interviews with 29 single parents of children with cancer who were at least 6 months post-diagnosis were recruited from four hospitals across Canada. Single parents caring for children with cancer were found to experience several stressors that build on each other, in addition to the strain of caring for a child with cancer. Published in Child: Care, Health & Development. Authors: L Granek, ZR Rosenberg-Yunger, D Dix, RJ Klassen, L Sung, J Cairney, AF Klassen. Abstract.
Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration
The outcomes of community-based complex care clinics integrated with a tertiary care center for children with special healthcare needs were evaluated in this study published in BMC Health Services Research. Clinics at two community hospitals were staffed by local community pediatricians with the tertiary care center nurse practitioner and linked with primary care providers. The investigators concluded that complex care can be provided in community-based settings with less direct tertiary care involvement through an integrated clinic resulting, in improvements in health care utilization and family-centeredness. Authors: E Cohen, A Lacombe-Duncan, K Spalding, J Macinnis, D Nicholas, UB Narayanan, M Gordon, I Margolis, JN Friedman. Full Access!
Parents' actions, challenges, and needs while enabling participation of children with a physical disability: A scoping review
The aim of this study was to provide an overview of the actions, challenges, and needs of parents in enabling participation of their child with a physical disability. The investigators conducted a scoping review and a thematic analysis to synthesize the results. The findings indicate that parents apply a broad range of strategies to support participation of their children. This review also shows that little is known about if and to what extent parents wish to be supported in enabling their child's participation in daily life. Published in BMC Pediatrics. Authors: B Piskur, AJ Beurskens, MJ Jongmans, M Ketelaar, M Norton, CA Frings, H Hemmingsson, RJ Smeets. Full Access!
An international comparison of patterns of participation in leisure activities for children with and without disabilities in Sweden, Norway and the Netherlands
The authors of this article published in Developmental Neurorehabilitation investigated whether there were differences in participation in leisure activities between children with and without disabilities in Sweden, Norway and the Netherlands and how much personal and environmental factors explained leisure performance. To do this, the Children's Assessment of Participation and Enjoyment (CAPE) was administered to 278 children with disabilities and 599 children without disabilities, ages 6-17 years. They concluded that differences in school and support systems between the countries seem to influence patterns of participation, affecting children with disabilities most. Authors: A Ullenhag, MK Bult, A Nyquist, M Ketelaar, R Jahnsen, L Krumlinde-Sundholm, L Almqvist, M Granlund. Abstract.
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