Today is a good day to renew your membership or join Kokua Mau as an individual member.  Details below and thank you for your support. 




Happy May everyone.  I hope to see you on May 17 at Palliative Pupus and on May 25 at the next Kokua Mau meeting where we will be having a presentation on providing care and services to LGBT seniors. 

We also ask for your help in completing a short survey on how your agency does Advance Care Planning (ACP) and please check out the new POLST resources. 
 
Thank you to everyone who has joined or renewed your membership in Kōkua Mau for 2017.  Your membership is crucial to keeping our programs going so thank you!  And if you haven't joined or renewed yet, there is still time!  You will see below that we now have an easy, fee-free option using PayPal Giving Fund. 
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Wed. May 17 Palliative Pupus

Join us for Palliative Pupus on Wednesday May 17. Come participate in an interactive interdisciplinary story from the cutting edge of hospice and palliative care and mingle with colleagues.
 
Wed. May 17
5:15 to 7:00 PM
The Queens Conference Center (QCC) Room 200
510 S. Beretania Street, Honolulu, HI 96813

If you are unable to attend and would like to call in, please contact us for details. We are so glad that our neighbor island colleagues can join us virtually!
Calling in?  Call 808-691-5114.

Please bring some pupus to share and invite your colleagues. This is a great chance for people who wonder what palliative and hospice care really looks like as we describe and discuss a real person and their journey.

Please note Palliative Pupus participants: There is FREE parking after 4 PM in the municipal lot on South Beretania, just Diamond Head of Queen's. See our website for a map.
National POLST Updates

1.
On April 17, 2017, the National POLST Paradigm Task Force approved a policy regarding the appropriate use of POLST Paradigm Forms. This resource may be used to help clarify for whom, and under what circumstances a POLST Paradigm Form is appropriate, answering many frequently asked questions. New National POLST Paradigm Appropriate Use Policy is available online as PDF files.

2.
The American College of Emergency Physicians issued an official Policy Statement: Guidelines for Emergency Physicians on the Interpretation of Physician Orders for Life-Sustaining Therapy (POLST). Useful for both EDs and EMS, this documents clarifies who should have POLST Forms, what to do in the case of conflicts in orders, and the legal status of POLST. more

3.
Free full online issue: Reforming Advanced Illness and End-of-Life Care. The American Society on Aging (ASA)'s Spring issue of Generations is dedicated to "ensuring all Americans with advanced illness receive comprehensive, high-quality, and person- and family-centered care consistent with their goals and values." Included in this issue is an article by National POLST leaders Judy Thomas, JD, and Charlie Sabatino, JD, who discuss POLST, MOLST, DNR, and living wills, and the forms and conversations related to advance care planning over the last few decades. ASA is granting free online access to this special issue! View Spring 2017 issue of Generations

We need your help to complete an ACP Questionnaire

We need a few minutes of your time! Kokua Mau is part of large local initiative to learn more about Advance Care Planning in our community and we need your expertise.  Please complete the short questionnaire on-line and help our Coalition gather baseline data that will help us develop strategies to address gaps.

Our goal: All agencies can provide patient-centered programs and have quality conversations on Advance Care Planning.

We are asking for one survey per agency, facility, practice or group on Oahu to start the process . Please check with your colleagues if a survey has already been submitted. (Thank you if you already did!) This survey was developed by the Honolulu Community Partners and the initial request was sent on April 20 to the coalition partners. 

Please submit the complete the survey available in the link below by May 12, 2017. https://goo.gl/forms/4m8Lw9M2M8fChG6I3 

If you work in different programs that both provide Advance Care Planning, please complete a separate survey for each program.

Thank you for taking the time to complete this survey. We are very glad that there is increasing interest in Advance Care Planning in our community and look forward to more collaborations to make these conversations the norm. 

Feel free to contact Jeannette Koijane at info@kokuamau.org  if you have questions or additional comments.

Thur. 5/25 Kokua Mau Meeting

Please join us on May 25 for our monthly meeting, to learn, laugh, mingle and network. Our speaker Marlene Young, will be presenting about providing services and advocacy to LGBT (Lesbian, Gay, Bi-sexual and Transgender) Seniors.  She is an ambassador with the National Resource Center on LGBT Aging and we are very pleased to have her present on this relevant but often overlooked topic.

Thur. May 25, 2017  
3pm-5pm
Conference Room 224  
Weinberg Building  
St. Francis Healthcare System of Hawai'i  
2226 Liliha Street in Honolulu

Parking is validated and click here for a map and further details. Please RSVP to Jeannette for a basic headcount.  (You can certainly come even if you didn't RSVP.)

NEW: We have set up a conference call for those who are unable to participate in person.  Conference Dial-in Number (712) 775-7100; Participant Access Code 1079885#.

For people who cannot join us in person, please send Jeannette an email to get the handouts.  Hope to see you all there! 

Preview:
June 22 (note not the last Thursday of the month) Kate DeBartolo, The Conversation Project giving us updates from her national perspective.
July- no meeting
 
Family Camp June 9-11

Each year, Hospice Hawaii hosts a family camp for children and teens ages 7-17 and their family members who have lost a loved one through death.  This is available to anyone in our community. 

June 9 - June 11
Queen Liliuokalani Children's Center
Hauula

Campers have the opportunity to share and connect with others who have experienced grief. Arts and crafts balanced with big energy activities, provide families their space to reflect and heal.
 
This year's theme is "Pohaku Ola," which means "healing stone." More

Applications Due: May 11, 2017. Camp is $50 per family (limited scholarships are available). Please call 791-8093 or email familycamp@HospiceHawaii.org for more information.
Oncology on Canvas Art Exhibit Honolulu Hale

The paintings created during Oncology on Canvas will be displayed at Honolulu Hale June 19 to July 7. Honolulu Hale is only open Monday through Fridays during the day hours.

Pat Nishimoto, Oncology Nurse Specialist at Tripler and Kokua Mau member invites us: "To come and see the amazing art work done by our patients, their families and the staff on their cancer journeys".

Workshop series for Dementia Caregivers at East and West Oahu locations

The workshops Positive Approach to Dementia Care will be held from April to October, 2017.

This series is especially valuable for family caregivers and friends of someone with memory loss who do the day to day care and want to learn many effective and beneficial tools and tips for improving communication, helping with challenging behaviors, dining, how dementia progresses, what is normal and not normal aging, and providing care in the final stages of dementia.

These Positive Approach to Care™ seminars or workshops were developed by dementia advocate and occupational therapist Teepa Snow and provide essential information for families and care partners on how to have a positive and meaningful relationship with loved ones with Alzheimer's disease and other forms of dementia throughout their journey. Dorothy Colby is a mentor for Teepa Snow training and co-trains with her on the Mainland.   

Each series has six workshops on different topics - one for Oahu East Side series at Kahala Nui, and one for Oahu's West Side at The Plaza at Pearl City.

See list of topics, dates and times on the EventBrite Registration site:
Space is limited so register early! If you have questions or would like to be added to ECHO's mailing list, please contact Jody Mishan
National POLST Paradigm Toolkit Webinar Series

The National POLST Paradigm is hosting a webinar series to present a new POLST toolkit they've been developing, "Using the POLST Paradigm to Honor Patient Wishes Across the Care Continuum".

This toolkit is intended to give facilities a reference of what the POLST Paradigm is, and will provide resources (FAQs, sample policies and practices, etc.) to help implement quality procedures that support the treatment wishes of patients using the POLST Paradigm.

This Spring 2017 webinar series (which began April 6 but is being recorded) includes 6 webinars, an Overview, plus 5 webinars that correspond to various care settings in which POLST is important:
  1. EMS - May 3
  2. In-patient Hospital - May 11
  3. Nursing Homes - June 8
  4. Hospice - June 13
You may register for the free webinars, hear recordings and learn more at http://polst.org/toolkit/
 
FREE Advance Care Planning Events - O'ahu

Advance Care Planning is the process of thinking about, talking about, writing down and sharing your own health care wishes. It is the greatest gift we  can give to our loved ones. Please bring your family and loved ones with you to discuss these important topics together.
  • Have you completed your advance directives?
  • Who is your health care power of attorney?
  • What is Provider Orders for Life-Sustaining Treatment (POLST)
OPTION 1 Ewa: Speakers: Dr. Emese Somogyi and fellow guest speakers

Thur May. 25 2017, 
12:30 to 3:00 p.m.:
Pali  Momi  Medical Center
Ewa Conference Room
Validated Parking: Pali Momi Medical Center Parking
98-1079 Moanalua Rd, Aiea HI 96701

Refreshments will be provided. Attendees and their health care power of attorney or loved one are encouraged to participate. Seating is limited. Call 485-4593 or email nancy.valeron@palimomi.org to register today.

OPTION 2 - Downtown Honolulu Speakers: Dawn Minaai, MD, and fellow guest speakers

Fri Jun. 23 2017
8:30 to 11:00 a.m.
First Insurance Center
1100 Ward Ave.,  Honolulu 9th Floor, Room 980
Validated Parking: 1100 Ward Ave. Honolulu HI 96814

Refreshments will be provided. Attendees and their health care power of attorney or loved one are encouraged to participate. Seating is limited. Call 808-532-6380 or email kerry.kam@straub.net to register today.

A notary will be available to those who want to complete their Advance Health Care Directive after the class. This event is sponsored by Straub Medical Center

Visit  kokuamau.org to obtain and review a copy of the Hawai'i Advance Health Care Directive prior  to attending the event.
 
Additional Webinars focusing on Hospice and Home Care

Kōkua Mau partners with the Essential Education Webinar Network to offer you these high quality webinars focusing on Hospice and Home Care.  They have just added three new webinars to the 2017 Hospice & Home Care lineup with Gloria Turner, Turner Healthcare Consulting. (Register using the link above.)
  • 7/11/2017 Project Management for Starting a Palliative Care Program
  • 9/21/2017 Serving the Under-Served in Your Community
  • 12/7/2017 Honoring Veteran Program Partnerships
Renew your 2017 Membership or Join Kōkua Mau now!

Now is a good time to put an easy New Year's resolution into practice (and get one thing accomplished already in the first weeks): join us or renew your Kōkua Mau membership for 2017 now. Your financial support is very important.

We've found a simple, fee-free way for you to pay your Kōkua Mau membership electronically with just 3 quick clicks: PayPal Giving Fund.

If you have a PayPal account, you can donate to Kōkua Mau through the PayPal Giving Fund and 100% of your donation goes to Kōkua Mau. Please use this link to make your donation. The PayPal Giving Fund has a set template and you may have to enter the membership level you want to join manually. The rest is 3 easy clicks and you are done. An email confirming your donation should follow shortly thereafter. (If you do not have a PayPal account you cannot use this fee-free service.)

Please note: This is not the same as using a PayPal account with a "donate' button on a website.  Once you enter your account via the PayPal Giving Fund there is no fee, even if you pay with the credit card on file liked to your PayPal account. Only donations through the PayPal Giving Fund link are transaction fee free. Please send us your feedback about your experience with this free service.

Benefits of Joining Kōkua Mau?

Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (Kōkau Mau is not a state agency!) 

Expanding networking and education for professionals. 
Kōkua Mau continues to provide professionals an opportunity for education and networking through:
  • Kōkua Mau e-newsletter providing updates on local and national events, resources and research
  • Kōkua Mau website is well visited and constantly updated with free materials for the community
  • Monthly Kokua Mau meetings, which usually include a speaker, local updates and networking opportunities
  • Palliative Pupus - our cutting-edge, clinical case discussion
  • Coming soon: Key documents in 10 languages
For over 17 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities.

Making a tax-deductible donation is easy. You have 3 options:
  1. Go online and donate with a credit card
     
  2. If you have a PayPal Account use the PayPal Giving Fund and 100% of your 3 click donation comes to us fee free.
     
  3. A check in the good ol' US postal mail is still the best way to have no fees on either end (and you may use you canceled check for the IRS)
    3 steps:
      1. Write a check payable to 'Kōkua Mau' and put 'membership' in the memo field
      2. Get an envelope and address it to:
        Kōkua Mau
        PO Box 62155
        Honolulu HI 96839
      3. Stick on a stamp and put in the mailbox
Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (We are not a state agency or state funded!)

Your generous tax-deductible membership gift will allow us to have a real impact on improving quality of life for those with serious illness and their loved ones. (And yes, due to the beauty of the web the virtual mug is still available for the taking)

For over 17 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities.

We ask for your financial support and invite you to get involved.

Thank you for your support for Kōkua Mau!

 
Aloha United Way Campaign & Kokua Mau

It is that time of the year: The Aloha United Way Campaign started, which supports important organizations in our community. 

For the second year we are honored to be part of it.  You can make a contribution specifically to Kōkua Mau by using our designation number 80410 on the Donor Designation Form (or the online version).  

Please tell your colleagues, friends and loved ones who might be part of an AUW campaign as well. The coconut wireless is still the best way to spread the word about this wonderful opportunity to support Kōkua Mau.

Please share your updates with us, 


Jeannette Koijane, MPH
Executive Director
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