Today is a good day to renew your membership or join Kokua Mau as an individual member.  Details below and thank you for your support. 



 
November is National Hospice and Palliative Care Month. This month we have many events and trainings in Hawaii we list by date below.

Please note that we will not have our bi-monthly Palliative Pupus in November, because of the Queen's pain and palliative care conference and Thanksgiving.

Registration for The Queen's Medical System's Annual "The Fine Art and Science of Pain and Palliative Care 2016" November 17 is still open.  This is the foremost conference on palliative care in Hawaii and I hope to see you all there.  Please note that it is NOT on Veteran's Day this year. 
Early Bird
registration ends Nov. 3
Aloha United Way Campaign & Kokua Mau

It is that time of the year: The Aloha United Way Campaign started, which supports important organizations in our community. 

For the second year we are honored to be part of it.  You can make a contribution specifically to Kōkua Mau by using our designation number 80410 on the Donor Designation Form (or the online version).  

Please tell your colleagues, friends and loved ones who might be part of an AUW campaign as well. The coconut wireless is still the best way to spread the word about this wonderful opportunity to support Kōkua Mau.

Fri. 11/4 A Free Advance Care Planning Event

Advance Care Planning is the process of thinking about, talking about, writing down and sharing your own health care wishes. It is the greatest gift we  can give to our loved ones. Have you completed your Advance Directive? Who is your health care power of attorney? What is Provider Orders for  Life-Sustaining Treatment (POLST). Please bring your family and loved ones with you to discuss these important topics together.

Nov.  4, 2016 
8:30 to 11:00 a.m.
First Insurance Center
1100 Ward Ave.,  9th Floor, Room 980
Validated parking at 1100 Ward Ave. Honolulu HI 96814

Speakers: Dawn Minaai, MD, and fellow guest speakers.

A notary will be available to those who want to complete their Advance Health Care Directive after the class.

Refreshments will be provided. Attendees and their health care power of attorney or loved one are encouraged to participate. Seating is limited. Call 522-3199 or email chantel.leong@straub.net to register today.

Please download and review the Hawaii Advance Health Care Directive prior to attending the event.

Sat. 11/12 Survivorship: Communication and Coordination of Survivorship Care

Saturday, November 12
8:00 am - 4:00 pm
The Kahala Hotel & Resort
Honolulu, HI

This free conference is an opportunity to learn about the latest updates on survivorship research in Hawaii, surveillance for recurrence, and creative solutions to help your practice implement a survivorship program that will meet your patients' needs. Sponsored by the Hawaii Society of Clinical Oncologists. 

Download the flyer with program and register here

11/14, 15 (&16) "Dementia Capable Care of Adults with ID and Dementia" Workshops at QCC

Announcing a special 3-day training event for November 14-16, "Dementia Capable Care of Adults with ID (Intellectual Disabilities) and Dementia.

Nov. 14 & 15, 2016: 2-Day Basic Workshop. Fee $200
Nov. 16: 3-day with the Train the Trainer Course. Fee $400
Queen's Conference Center
1301 Punchbowl Street
Honolulu, Hawaii 96813

Registration and more details (website): www.regonline.com/builder/site/Default.aspx?EventID=1888421. Download the flyer here

Target Audience: The workshop is appropriate for any staff with direct or ancillary care responsibilities of older adults with intellectual and developmental disabilitiesin both disability-related, health care, and aging-related agencies.

This training is being conducted by experts from the National Task Group on Intellectual Disabilities and Dementia Practices. For more information about their coalition, please check their website.

From their website: "The 'NTG' is a coalition charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer's disease and related dementias - as well as their families and friends - are taken into account as part of the National Plan to Address Alzheimer's Disease."

More than 75% of those with Down syndrome age 65 and older have Alzheimer's disease, almost 6 times more than people of the same age without Down syndrome. Specialized cognitive screening is required for this population.

This event is being sponsored by the Hawaii Alzheimer's Disease Initiative at UH Center on Aging, a grant given by the Administration for Community Living - and the Hawaii Department of Health's Developmental Disabilities Division.

12 Social Work and Nurse CEs will be available, pending approval.

Wed. 11/16 ACP and POLST Facilitator Training - Free Training for Professionals

Advance Care Planning (ACP) and Provider Orders for Life-Sustaining Treatment (POLST) Facilitator Training. Goal: Communication Skills to Improve ACP Discussions and POLST Conversations.

Wed. Nov 16
8:00 am -4:30 PM
Learning Resource Center, Room 101
793 S. Hotel Street
(Next to Straub Clinic & Hospital)

Contact Hours: Hawai'i Pacific Health designates this live activity for 7.5 contact hours for nurses. Nurses should only claim credit commensurate with the extent of their participation in the activity.

HPH employees: Manager's approval is required prior to registering. Register online through HPH Learning Center (HLC).  Type in catalog: ACP

Non HPH participants: Register via email: Michelle Cantillo, RN, HPH ACP Coordinator.  For further information contact Michelle at: 808-535-7874
Thur. Nov. 17 - The Fine Art & Science of Pain and Palliative Care Conference.

Join us this year again for Hawaii's most important Palliative Care Conference, hosted by Queen's Medical Center.

      Thursday, November 17, 2016
Ko'olau Ballrooms & Conference Center
Kaneohe, Hawai'i

Fee: QMC Physicians & Staff before Nov 3: $115 after: $135
Non-QMC Physicians & Staff before Nov. 3: $175 after $195

Meeting patients' pain and palliative care needs demands a balance of the best of the art and science of caring. Challenges such as safely and effectively treating pain and maintaining resilience and presence can leave one with the feeling of staring at a blank canvas. This conference has gathered a multi-talented faculty to share the state of both the art and the science of pain management and palliative care, to inspire you with their creative presentations, and take you from that blank canvas to a larger palate of care options to create your masterpiece in meeting these vital patient needs.

This conference has broad appeal to physicians, nurses, social workers, chaplains, and other healthcare professionals.

The PDF flyer with the registration form and program is on our website.

Thur. 11/17 "Caregiving, Aging, and Intellectual Disabilities" JABSOM Auditorium

Announcing a special presentation, free and open to the public:
 
"Caregiving, Aging, and Intellectual Disabilities". An overview of aging in adults with Intellectual and Developmental Disabilities (IDD) and ways to help support older adults with IDD for quality of life and health. Presenters will address dementia in the IDD population and recommend ways to promote health care advocacy.
 
Thur. November 17, 2016,
4:30-6:30 pm
JABSOM Auditorium (John A. Burns School of Medicine)
651 Ilalo St. Honolulu, 96813 (Kakaako)
(Parking instructions will be sent prior to event)

 Free event. Refreshments will be provided.
 
Space is limited so please register by phone or email:
Contact: Jody Mishan, 295-2624 or jmishan@hawaii.rr.com

Thur. December 1: Monthly Kokua Mau Meeting

Please join us for our joint November and December monthly meeting on Dec. 1, to learn, mingle and network.  This month features Self Care over the Holidays facilitated by Felicia Marquez-Wong, St. Francis Hospice and Pat Nishimoto, Tripler Army Medical Center.

The Crucial Role of Spiritual Care - Case Studies and Practical Tools for Professionals
Thur. Dec 1, 2016

3pm-5pm
Conference Room 224
Weinberg Building
St. Francis Healthcare System of Hawai'i
2226 Liliha Street in Honolulu

We have set up a conference call for those who are unable to participate in person.  Conference Dial-in Number (712) 775-7100; Participant Access Code 1079885#. Please let us know ASAP if you will be calling in so we can get you the slides. 

Parking is validated and click here for a map and further details.  Please RSVP to Jeannette for a basic headcount.  (You can certainly come even if you didn't RSVP.)
 
Note: November: No Meeting since time conflicts with Thanksgiving
Dec. 8, Being Mortal - Screening of the Film

"Being Mortal" delves into the hopes of patients and families facing terminal illness. The film investigates the practice of caring for the dying and explores the relationships between patients and their doctors. It follows a surgeon, Dr. Atul Gawande, as he shares stories from the people and families he encounters. When Dr. Gawande's own father gets cancer, his search for answers about how to best care for the dying becomes a personal quest.

Thur. Dec. 8
5:00-7:00pm; Registration 4:30pm
Kapi'olani Medical Center for Women & Children,
1319 Punahou St., Confernce Rooms 4-7, New Diamond Head Tower
(Parking will be validated)

RSVP: 433-7676

Kokua Mau is hiring an Advance Care Planning Coordinator

Kōkua Mau's vision is that conversations about Advance Care Planning become common place in our communities, long before crisis hits and giving people time to discuss their wishes with loved ones.  If you are interested in making that happen,
please consider applying to work with us as Kōkua Mau's Advance Care Planning coordinator.  Thanks to the Stupski Family Fund grant, we have the amazing opportunity to hire a full-time coordinator (or 2 part-time people) to help move our community to the next level.
 
We are seeking an Advance Care Planning Coordinator to develop and coordinate multiple projects, work with Kōkua Mau member organizations and local coalitions, and coordinate public outreach efforts on advance care planning. For further information and the full job announcement, go to www.kokuamau.org/about-us/careers
 
Please submit cover letters and resume by Nov. 1, 2016.
ACP and Medicare Reimbursement

Advance Care Planning (ACP) conversations with clients are increasingly recognized as best practice and reimbursements rates from are now available.  HMSA has adopted the Medicare codes and will recognize them in their P4Q program. These codes will be recognized for people with HMSA as a primary or secondary payer.

As of January 1, 2016, Medicare began reimbursing healthcare providers for advance care planning (ACP) discussions with Medicare beneficiaries. Authorization for payment is set forth in the November 2015 Final Rule, published by the Centers for Medicare and Medicaid Services (CMS).

To help you better understand the new reimbursement rules, we have two free tools for you.   Please visit our website to access the PDF files.
  • ACP by the Medicare Learning Network
  • FAQs: Advance Care Planning Under Medicare - from Kokua Mau for Hawaii
As you prepare your patients and clients for ACP conversations, we encourage you to look at the free resources available from Kokua Mau.  Having these conversations is an important, but often a difficult and emotionally challenging task and we have resources to help you. The Starter Kit from The Conversation Project is a great resource available for free to all in Hawaii and there is also now a Starter Kit for people with dementia.  

Kokua Mau's Let's Talk Story Program

Help us to get our community talking. We have renamed our Speakers Bureau to the Let's Talk Story Program and we are ready to go out into the community to get conversations going.  A team of 19 speakers are ready to go. We have two avenues you can explore to get 'THE Conversation' started.
  • Let's Talk Story program
  • Free Screening of "Being Mortal"
The goal of our Let's Talk Story Program in a nutshell:
  • Learn how to talk with your loved ones about what matters most to you.
  • Share about the kind of care you want to receive with your doctor. You'll feel more confident and ready for the future.
Kōkua Mau wants to get our community talking about wishes for care at the end of life. Our new Let's Talk Story Program will go out to community organizations, churches and temples with our free, 2-hour interactive sessions facilitated by Kōkua Mau's trained experts. We know these are not easy conversations but they are some of the most important that you will ever have. Please help us spread the word about this great opportunity to facilitate "The Conversation."

Our goal is to help individuals and families understand decisions they may need to make and find resources and information in our community to talk about their wishes for care at the end of life.

If your group or somebody you know is interested in a free workshop on this important topic, contact Kōkua Mau at info@kokuamau.org or (808) 585-9977.

Please visit our website for more details and download the PDF of the flyers for our Let's Talk Story program.
Talk Story Program Option: Free Screening of "Being Mortal"

Do you want to show the documentary "Being Mortal" at your facility, organization or meeting? Kokua Mau is now an 'official site' to show the hour-long PBS documentary for free in Hawaii. Please contact us and we can collaborate on a screening for you.
 
"Being Mortal" delves into the hopes of patients and families facing terminal illness. The film investigates the practice of caring for the dying and explores the relationships between patients and their doctors. It follows a surgeon, Dr. Atul Gawande, as he shares stories from the people and families he encounters. When Dr. Gawande's own father gets cancer, his search for answers about how to best care for the dying becomes a personal quest.
 
After the screening, we encourage you to have guided conversation on how to take concrete steps to identify and communicate wishes about end-of-life goals and preferences. Watch a short trailer here

Multilingual Resources 

All multilingual resources are intended as tools to help members of our community with limited English proficiency. As is common with such complicated issues, these documents do not replace a one-on-one conversation, sometimes with the help of an interpreter, to walk people through the decisions they have to make for themselves or their loved ones. We translated six key documents into 10 languages:
  • Hawai'i Advance Health Care Directive
  • Advanced Directive Information Brochure
  • The official POLST Form for Hawai'i
  • POLST Information for Consumers
  • Information about CPR
  • Information about Tube Feeding
For all multilingual resources (currently 48 PDF files) click on the "languages" menu button in the top right corner of our website, with two ways to access the multilingual PDF files:
  • By Language: Click on the language link and you get a list of all resources available in that language. We will add selected materials in the language (such as the Conversation Starter Kit) when we become aware of it.
     
  • By Document: Further down on the "Languages" page just click on the "multilingual" link for e.g. Consumer Guide to POLST and you find all the languages available for the Consumer Guide to POLST on one webpage.
Once you open one of the PDF files you will see that, for example, the Multilingual Advance Directive or POLST form have a cover sheet in English providing additional specific information. This background information is important for healthcare workers or English-speaking loved ones and make each PDF file a stand-alone document.

Please click on one of the links and explore the multilingual resources. We are looking forward to your ideas and feedback.

We want to thank all the volunteers who have dedicated countless hours reviewing documents and giving us feedback. It has been a herculean task but our community project is finally a reality thanks to all of you that helped us with your expertise.

We thank the collaborative effort of our sponsors that made this translation project possible.
  • AlohaCare
  • Executive Office on Aging (EOA)
  • Hawaii Health Systems Corporation (HHSC)
  • Hawaii Medical Service Association (HMSA)
  • Kaiser Permanente in Hawaii
  • 'Ohana Health Plan
  • University Health Alliance (UHA)
  • United Healthcare
facebook.com/kokuamau

In response to popular demand we have created (hot off the digital press) our brand new Kōkua Mau FaceBook page. We hope FB to become an additional avenue to share information about Advance Care Planning and available resources in Hawaii with a wider community.

Go to www.facebook.com/kokuamau and check it out. If you are on FB please do what you do best, such as liking us and/or sharing our events or post. If there is anything else you would like to see on our FB page, please let us know.

Best wishes and please share your updates with us, 


Jeannette Koijane
Executive Director
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