We have added two key documents about Advance Care Planning (ACP) conversations and reimbursement by providers and Medicare on the Kōkua Mau website.
We hope you can join us this month for Palliative Pupus and our Monthly Meeting where we will be showing 2 excellent plenary presentations from the recent Virtual Palliative Care Conference. Last but not least, the registration and program for The Queen's Medical System's Annual "The Fine Art and Science of Pain and Palliative Care 2016" in November is now available. This is the foremost conference on palliative care in Hawaii and I hope to see you all there. Please note that it is NOT on Veteran's Day this year.
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Aloha United Way Campaign & Kokua Mau
It is that time of the year: The Aloha United Way Campaign just started, which supports important organizations in our community.
For the second year we are honored to be part of it. You can make contribution specifically to Kōkua Mau - by using our designation number 80410 on the Donor Designation Form (or the online version).
Please tell your colleagues, friends and loved ones who might be part of an AUW campaign as well. The coconut wireless is still the best way to spread the word about this wonderful opportunity to support Kōkua Mau.
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Mon. 9/12 "Ain't the Way to Die"
Advance Care Planning (ACP) Workshop for Health Care Professionals. Gain skills on starting and leading ACP Conversations because: Everyone has the right to have their wishes known, followed and documented. Sept. 12 or Oct. 24, 2016
8:00am - 4:30pm
Queen's Conference Center Room 200
1301 Punchbowl Street Honolulu, HI 96813
No Fee, Lunch on your own
Limited Enrollment
Non-QMC Employees Contact: Lori Protzman, lprotzman@queens.org or 691-7716 Continuing Nursing Education: Nursing contact hours 7.41. The Clinical Education Team of the Queen's Medical Center is an approved provider of continuing nursing education by the Western Multi-State Division, an accredited approver by the American Nurses Credentialing Center's Commission on Accreditation. Continuing Social Worker Education: Credits Approved by NASW HI. Contact hours will be awarded after successful attendance of full course and completing course evaluation.
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Fri. 9/16 A Free Advance Care Planning Event
Advance Care Planning is the process of thinking about, talking about, writing down and sharing your own health care wishes. It is the greatest gift we can give to our loved ones. Have you completed your Advance Directive? Who is your health care power of attorney? What is Provider Orders for Life-Sustaining Treatment (POSLT). Please bring your family and loved ones with you to discuss these important topics together.
Sept. 16, 2016,
or Nov. 4, 2016,
8:30 to 11:00 a.m.
First Insurance Center
1100 Ward Ave., 9th Floor, Room 980 Validated parking at 1100 Ward Ave. Honolulu HI 96814
Speakers: Dawn Minaai, MD, and fellow guest speakers.
A notary will be available to those who want to complete their Advance Health Care Directive after the class.
Refreshments will be provided. Attendees and their health care power of attorney or loved one are encouraged to participate. Seating is limited. Call 522-3199 or email chantel.leong@straub.net to register today.
Please download and review the Hawaii Advance Health Care Directive prior to attending the event.
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Mon. 9/19 Death Café Honolulu
Death Café Honolulu
Monday, Sept. 19th
6-8 pm
Islands Hospice, 1301 Young St. in Honolulu.
Join Death Café Honolulu for a free event with iced tea, cake, and conversation about death, dying, & all things related.
Our objective is to increase awareness of death with a view to helping people make the most of their (finite) lives. Conversation is directed by attendees.
There is a free parking lot attached to the building. There will be free popcorn. Please feel free to bring some more snacks to share.
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Wed. 9/21 Palliative Pupus
Please join us Sept. 21 for Palliative Pupus. Come hear an interactive interdisciplinary story from the cutting edge of hospice and palliative care and mingle with colleagues. Wed. Sept. 21, 2016
5:15 to 7:00 PM
The Queens Conference Center (QCC) Room 200
510 S. Beretania Street, Honolulu, HI 96813
If you are unable to attend and would like to call in, please contact us for details. Please bring some pupus to share and invite your colleagues. This is a great chance for people who wonder what palliative and hospice care really looks like as we describe and discuss a real person and their journey. Please note Palliative Pupus participants: There is FREE parking after 4 PM in the municipal lot on South Beretania, just Diamond Head of Queen's. See our website for a map.
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Thur. 9/29 Monthly Kokua Mau Meeting
Please join us next week for our September monthly meeting to learn, mingle and network. Sorry, but this will not be a session you can call in to. Thur. September 29 , 2016
3pm-5pm
Conference Room 224
Weinberg Building
St. Francis Healthcare System of Hawai'i
2226 Liliha Street in Honolulu
In the last Kōkua Mau Meeting the group decided to view the following 2 sessions, a rebroadcast from the Virtual Palliative Care Conference in early August: 1. Strengthen relationships and minimize barriers: Take your communication Skills 'up a notch'.Speaker: Kathleen Neuendorf, MD, Cleveland Clinic, Cleveland, OH The hospice and palliative care field has emphasized using highly effective communication skills for many years. Colleagues often consult The Cleveland Clinic for its proficiency in talking to patients and families. Yet, despite the use of those skills and our intention to communicate optimally, we sometimes find ourselves in conversations that feel repetitive, counterproductive or may even have us wondering "What just happened?" In this session, we will discuss communication skills in the context of a relationship and reflect on times that the communication skills we use seem to create barriers when talking to patients instead of strengthening a relationship. For these more challenging conversations, alternative strategies for communication will be proposed and demonstrated to help you take your skills 'up a notch.' 2: Talk about a sticky wicket! Managing Pain in the face of suspected drug abuse.Speaker:Mary Lynn McPherson, PharmD, MA, BCPS, CPE, University of Maryland, Baltimore, MD We are in the midst of two enormous, competing public health crises in the US - the epidemic of opioid misuse, abuse and diversion (and deaths) and poorly controlled pain. Hospice and palliative care has not escaped this tug-of-war. Savvy hospice and palliative care practitioners must develop skills to detect drug abuse and diversion in patients, families and caregivers and develop effective strategies to manage the patient/environment. Participants in this session will also learn how to manage recovering opioid abusing patients who are now receiving opioid agonist therapy (e.g., methadone maintenance or buprenorphine) now that they are receiving hospice care. Parking is validated and click here for a map and further details. Please RSVP to Trisha for a basic headcount and to get the slides. (You can certainly come even if you didn't RSVP.) Preview of Future Meetings:October 27: Spirituality - Anke Flohr, Pacific Health Ministry & JP Sabbithi, Hospice Hawaii November: No Meeting since time conflicts with Thanksgiving December 1: Self Care over the holidays - Felicia Marquez-Wong, St. Francis Hospice and Pat Nishimoto, Tripler Army Medical Center
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ACP and Medicare Reimbursement
Advance Care Planning (ACP) conversations with clients are increasingly recognized as best practice and reimbursements rates from are now available. HMSA has adopted the Medicare codes and will recognize them in their P4Q program. These codes will be recognized for people with HMSA as a primary or secondary payer. As of January 1, 2016, Medicare began reimbursing healthcare providers for advance care planning (ACP) discussions with Medicare beneficiaries. Authorization for payment is set forth in the November 2015 Final Rule, published by the Centers for Medicare and Medicaid Services (CMS). To help you better understand the new reimbursement rules, we have two free tools for you. Please visit our website to access the PDF files. - ACP by the Medicare Learning Network
- FAQs: Advance Care Planning Under Medicare - from Kokua Mau for Hawaii
As you prepare your patients and clients for ACP conversations, we encourage you to look at the free resources available from Kokua Mau. Having these conversations is an important, but often a difficult and emotionally challenging task and we have resources to help you. The Starter Kit from The Conversation Project is a great resource available for free to all in Hawaii and there is also now a Starter Kit for people with dementia.
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Save the date: Nov. 17 - The fine Art & Science of Pain and Palliative Care Conference.
Join us this year again for Hawaii's most important Palliative Care Conference, hosted by Queen's Medical Center.
Thursday, November 17, 2016 Ko'olau Ballrooms & Conference Center
Kaneohe, Hawai'i
Fee: QMC Physicians & Staff before Nov 3: $115 after: $135 Non-QMC Physicians & Staff before Nov. 3: $175 after $195 Meeting patients' pain and palliative care needs demands a balance of the best of the art and science of caring. Challenges such as safely and effectively treating pain and maintaining resilience and presence can leave one with the feeling of staring at a blank canvas. This conference has gathered a multi-talented faculty to share the state of both the art and the science of pain management and palliative care, to inspire you with their creative presentations, and take you from that blank canvas to a larger palate of care options to create your masterpiece in meeting these vital patient needs. This conference has broad appeal to physicians, nurses, social workers, chaplains, and other healthcare professionals. The PDF flyer with the registration form and program is on our website.
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Introducing Kokua Mau's Let's Talk Story Program
Help us to get our community talking. We have renamed our Speakers Bureau to the Let's Talk Story Program and we are ready to go out into the community to get conversations going. A team of 19 speakers are ready to go. We have two avenues you can explore to get ' THE Conversation' started. - Let's Talk Story program
- Free Screening of "Being Mortal"
The goal of our Let's Talk Story Program in a nutshell: - Learn how to talk with your loved ones about what matters most to you.
- Share about the kind of care you want to receive with your doctor. You'll feel more confident and ready for the future.
Kōkua Mau wants to get our community talking about wishes for care at the end of life. Our new Let's Talk Story Program will go out to community organizations, churches and temples with our free, 2-hour interactive sessions facilitated by Kōkua Mau's trained experts. We know these are not easy conversations but they are some of the most important that you will ever have. Please help us spread the word about this great opportunity to facilitate "The Conversation." Our goal is to help individuals and families understand decisions they may need to make and find resources and information in our community to talk about their wishes for care at the end of life. If your group or somebody you know is interested in a free workshop on this important topic, contact Kōkua Mau at i nfo@kokuamau.org or (808) 585-9977. Please visit our website for more details and download the PDF of the flyers for our Let's Talk Story program.
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Talk Story Program Option: Free Screening of "Being Mortal"
Do you want to show the documentary "Being Mortal" at your facility, organization or meeting? Kokua Mau is now an 'official site' to show the hour-long PBS documentary for free in Hawaii. Please contact us and we can collaborate on a screening for you. "Being Mortal" delves into the hopes of patients and families facing terminal illness. The film investigates the practice of caring for the dying and explores the relationships between patients and their doctors. It follows a surgeon, Dr. Atul Gawande, as he shares stories from the people and families he encounters. When Dr. Gawande's own father gets cancer, his search for answers about how to best care for the dying becomes a personal quest. After the screening, we encourage you to have guided conversation on how to take concrete steps to identify and communicate wishes about end-of-life goals and preferences. Watch a short trailer here
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Multilingual Resources
All multilingual resources are intended as tools to help members of our community with limited English proficiency. As is common with such complicated issues, these documents do not replace a one-on-one conversation, sometimes with the help of an interpreter, to walk people through the decisions they have to make for themselves or their loved ones. We translated six key documents into 10 languages: - Hawai'i Advance Health Care Directive
- Advanced Directive Information Brochure
- The official POLST Form for Hawai'i
- POLST Information for Consumers
- Information about CPR
- Information about Tube Feeding
For all multilingual resources (currently 48 PDF files) click on the "languages" menu button in the top right corner of our website, with two ways to access the multilingual PDF files: - By Language: Click on the language link and you get a list of all resources available in that language. We will add selected materials in the language (such as the Conversation Starter Kit) when we become aware of it.
- By Document: Further down on the "Languages" page just click on the "multilingual" link for e.g. Consumer Guide to POLST and you find all the languages available for the Consumer Guide to POLST on one webpage.
Once you open one of the PDF files you will see that, for example, the Multilingual Advance Directive or POLST form have a cover sheet in English providing additional specific information. This background information is important for healthcare workers or English-speaking loved ones and make each PDF file a stand-alone document. We want to thank all the volunteers who have dedicated countless hours reviewing documents and giving us feedback. It has been a herculean task but our community project is finally a reality thanks to all of you that helped us with your expertise.
We thank the collaborative effort of our sponsors that made this translation project possible.
- AlohaCare
- Executive Office on Aging (EOA)
- Hawaii Health Systems Corporation (HHSC)
- Hawaii Medical Service Association (HMSA)
- Kaiser Permanente in Hawaii
- 'Ohana Health Plan
- University Health Alliance (UHA)
- United Healthcare
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facebook.com/kokuamau
In response to popular demand we have created (hot off the digital press) our brand new Kokua Mau FaceBook page. We hope FB to become an additional avenue to share information about Advance Care Planning and available resources in Hawaii with a wider community. Go to www.facebook.com/kokuamau and check it out. If you are on FB please do what you do best, such as liking us and/or sharing our events or post. If there is anything else you would like to see on our FB page, please let us know.
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Join Kokua Mau or renew your membership for 2016
We ask you to join or renew your Kōkua Mau Membership. Membership is tax-deductible and your financial support helps us to maintain and expand our programs. This includes the e-newsletters, free materials for download (including POLST and the new Advance Directive), our well-visited website, various training opportunities, monthly meetings, Palliative Pupus, and our expanding Speakers Bureau. We look forward to incresead outreach activities with churches, temples and other community groups - let us know if you would like to schedule our Speakers Bureau to visit. We also look forward to ongoing education and networking opportunities for professionals, both those organized by Kōkua Mau and those where we can collaborate with partners. Membership and donations are an essential part of keeping Kōkua Mau fiscally sustainable. Last year we had nearly 100 individuals who joined and details for membership are below. We especially encourage organizational membership by community leaders that support our mission. Please contact Kokua Mau's Executive Director Jeannette Koijane for details. How do I join? 2 easy ways
Download a membership form, include a check and and mail it to the Kokua Mau address on the form. (Renewing members can just send in a check without the form.) Online: Chose your membership level online or on the PDF file and click the Donate Now button on the right hand side of the webpage. Please put ' membership' in the ' Designation (Optional)' field, click 'add to giving cart' and follow the subsequent steps. We know, the free version of network for good does not look exciting but it is free. With all donations going into programs we don't offer you another tote bag, but we still do have the ever popular: low cost virtual Kōkua Mau mug. In thanks for your membership: All members are honored on the Kōkua Mau website and on written materials that are displayed at events Thank you! Benefits of Joining Kōkua Mau? Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (Kōkau Mau is not a state agency!)
Expanding networking and education for professionals.
Kōkua Mau continues to provide professionals an opportunity for education and networking through:
- Kōkua Mau e-newsletter providing updates on local and national events, resources and research
- Kōkua Mau website is well visited and constantly updated with free materials for the community
- Monthly Kokua Mau meetings, which usually include a speaker, local updates and networking opportunities
- Palliative Pupus - our cutting-edge, clinical case discussion
- Coming soon: Key documents in 10 languages
For over 17 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities.
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Best wishes and please share your updates with us,
Jeannette Koijane Executive Director
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Useful quick links to Kōkua Mau Topics
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